LATEST NEWS

ATAXIA UK LATEST NEWS

Below you can find all of our latest news relating to fundraising, volunteering and general updates from across the charity.

All
16-30
Ataxia Magazine
Ataxia research conferences
Ataxia UK news
Cerebellar ataxia
Cerebellar ataxia pharma news
COVID-19
DRPLA
Friedreich's ataxia
Friedreich's ataxia pharma news
Fundraisers
ICAR 2022
In Memory
Latest News
OMAV updates
Past supporter events
PROSPAX
Research News
Research News Archive
SCAs
spastic ataxias
Uncategorised
Virtual Activities
Virtual Fundraising
Your Blog
Your Fundraising Stories

This isn’t just surviving, this is living a full, vibrant life – Mohammad Shahid

03/10/2024 | Uncategorised

International Ataxia Awareness Day 2024 – Laura Mantle

01/10/2024 | Your Blog

Living with the challenges of ataxia – Monika

29/09/2024 | Your Blog

In conversation with the London Ataxia Centre Speech and Language Therapist, Lucie Hogger

27/09/2024 | Cerebellar ataxia, DRPLA, Friedreich's ataxia, Research News, SCAs, spastic ataxias

Intrabio announces FDA approval of their drug Levacetylleucine (Aqneursa) for the treatment of Niemann-Pick Disease Type C

26/09/2024 | Cerebellar ataxia, Cerebellar ataxia pharma news, Research News, SCAs

Biohaven announces positive results in their study of Troriluzole for Spinocerebellar ataxia (SCA)

26/09/2024 | Cerebellar ataxia, Cerebellar ataxia pharma news, Research News, SCAs

My Pet and Me – Harriet Brown

16/09/2024 | Your Blog

Vico Therapeutics announces positive interim data in their phase 1/2a trial of VO659, which is being tested in people with Huntington’s disease (HD) and spinocerebellar ataxias 1 and 3

13/09/2024 | Cerebellar ataxia, Cerebellar ataxia pharma news, Research News, SCAs

Satisfaction is significantly higher in those attending UK specialist ataxia centres compared with those who do not, new paper shows

11/09/2024 | Cerebellar ataxia, DRPLA, Friedreich's ataxia, Research News, SCAs, spastic ataxias

In conversation with Dr. Federico Herrera part 2

09/09/2024 | Cerebellar ataxia, Research News, SCAs, spastic ataxias

All About Autoimmune and Gluten ataxia – part 2

09/09/2024 | Uncategorised

Ataxia Magazine 226

28/08/2024 | Ataxia Magazine

All About Ataxia PLUS Your Mental Health

20/08/2024 | Uncategorised

Update on genetic testing for SCA27B

14/08/2024 | Cerebellar ataxia, Research News, SCAs

All About Autoimmune and Gluten ataxia – Carol

08/08/2024 | Your Blog

Chase Your Dreams – Ali

02/08/2024 | Your Blog

Ataxia UK hosts Webinar on UK approval process for Skyclarys in adults with FA

24/07/2024 | Friedreich's ataxia, Friedreich's ataxia pharma news, OMAV updates, Research News

I have ataxia, but ataxia doesn’t have me

24/07/2024 | Your Blog

Lexeo announces positive results from their phase 1/2 clinical trial programme for FA cardiomyopathy

15/07/2024 | Friedreich's ataxia, Friedreich's ataxia pharma news, Research News

Ataxia UK hosts an educational webinar on the UK medicines approval process

12/07/2024 | Ataxia UK news, Cerebellar ataxia, Cerebellar ataxia pharma news, DRPLA, Friedreich's ataxia, Friedreich's ataxia pharma news, Latest News, Research News, SCAs, spastic ataxias

In conversation with Dr Yi Shiau Ng, Consultant Neurologist, and Clinical Senior Lecturer at Newcastle University

11/07/2024 | Cerebellar ataxia, Research News, SCAs

In conversation with Dr. Federico Herrera, Group Leader of the Cell Structure and Dynamics (CSD) Lab from the Biosystems and Integrative Sciences Institute (BioISI) at the Faculty of Sciences of the University of Lisbon (Ciências ULisboa).

11/07/2024 | Cerebellar ataxia, Research News, spastic ataxias

Thank you to all our incredible supporters!

03/07/2024 | Your Blog

Ataxia Magazine 225

27/06/2024 | Ataxia Magazine

PROSPAX Consortium publishes two new research papers

25/06/2024 | Cerebellar ataxia, PROSPAX, Research News, SCAs, spastic ataxias

Celebrating World Wellbeing Week

24/06/2024 | Your Blog

In conversation with London Ataxia Centre Specialist Physiotherapist, Rachel Higgins

05/06/2024 | Cerebellar ataxia, Friedreich's ataxia, Research News, SCAs, spastic ataxias

Observe a Research Ethics Committee meeting

31/05/2024 | Latest News

Testing an experimental treatment for DRPLA and possible benefits for other rare ataxias

28/05/2024 | DRPLA, Research News

Virtual Activities

21/05/2024 | Latest News

Large magnifying glass on light blue background

Larimar Therapeutics announces progress of the Nomlabofusp (CTI-1601) trial for Friedreich’s ataxia

20/05/2024 | Friedreich's ataxia, Friedreich's ataxia pharma news, Research News

In Conversation with London Ataxia Centre Consultant Neurologist, Professor Paola Giunti

20/05/2024 | Cerebellar ataxia, DRPLA, Friedreich's ataxia, Research News, SCAs, spastic ataxias

Mindfulness

15/05/2024 | Your Blog

Pre-implantation Genetic Testing licensed in UK for SCAR17

13/05/2024 | Cerebellar ataxia, Research News, SCAs

You are not alone – Ali

08/05/2024 | Your Blog

In conversation with London Ataxia Centre Specialist Ataxia Nurse, Suzanne Booth

01/05/2024 | Cerebellar ataxia, Friedreich's ataxia, Research News, SCAs

My pet and me

01/05/2024 | Your Blog

Alterity Therapeutics presents data on the potential of ATH434 to treat FA

29/04/2024 | Cerebellar ataxia, Cerebellar ataxia pharma news, Friedreich's ataxia, Friedreich's ataxia pharma news, Research News

Study identifies gene that causes SCA4

29/04/2024 | Cerebellar ataxia, Research News, SCAs

Adapting to my ataxia

08/04/2024 | Your Blog

SBT-589 may be cardioprotective in FA

20/03/2024 | Friedreich's ataxia, Friedreich's ataxia pharma news, Research News

Anamaria’s ataxia Journey

12/03/2024 | Your Blog

An interview with Netherlands-based PhD researcher Ilse Willemse, on the SPAX app for home monitoring in ARSACS and SPG7 as part of the European PROSPAX project

06/03/2024 | PROSPAX, Research News, spastic ataxias

LUCKY TO BE LOVED

04/03/2024 | Your Blog

Learning to Accept – Laura

01/03/2024 | Your Blog

Voyager Therapeutics and Neurocrine Biosciences announce selection of a lead gene therapy candidate for their FA program

01/03/2024 | Friedreich's ataxia, Friedreich's ataxia pharma news, Research News

Ataxia Magazine 224

28/02/2024 | Ataxia Magazine

Ataxia Magazine 223

28/02/2024 | Ataxia Magazine

The PROSPAX Consortium publishes an infographic on their natural history study of individuals with ARSACS and SPG-7 in Europe

26/02/2024 | PROSPAX, Research News, spastic ataxias

Quality of care is higher in Specialist Ataxia Centres, European study finds

26/02/2024 | Cerebellar ataxia, Friedreich's ataxia, Research News, SCAs

Summary of my Thoughts and Fears

30/01/2024 | Your Blog

New study shows impacts of FA on daily life, wellbeing, and relationships in those with FA and their caregivers

26/01/2024 | Friedreich's ataxia, Research News

Biohaven submits application to the EMA for a new drug approval of Troriluzole for SCA3

12/01/2024 | Cerebellar ataxia, Cerebellar ataxia pharma news, Research News

Thank you for all your wonderful support in 2023

31/12/2023 | Ataxia UK news, Latest News

The importance of caregiving and caregivers – Trevor

20/12/2023 | Your Blog

Positive news regarding Skyclarys® approval in the EU

15/12/2023 | Friedreich's ataxia, Friedreich's ataxia pharma news, Latest News, OMAV updates, Research News

Paper published on study of effectiveness of omaveloxolone for Friedreich’s ataxia using natural history study data

14/12/2023 | Friedreich's ataxia, Friedreich's ataxia pharma news, OMAV updates, Research News, Research News Archive

Seelos Therapeutics has stopped their phase 2/3 trial of Trehalose for SCA3

01/12/2023 | Cerebellar ataxia, Cerebellar ataxia pharma news, Research News, SCAs

All About Ataxia

30/11/2023 | Uncategorised

Reflecting on the 7th International ARSACS Symposium 2023

22/11/2023 | Ataxia research conferences, Cerebellar ataxia, Research News, Virtual Activities

Person speaking

Results of Ataxia UK-funded study assessing speech therapy in people with progressive ataxias

21/11/2023 | Cerebellar ataxia, Friedreich's ataxia, Research News, SCAs

Pill bottle alongside digital tablet, paper notes and a pill packet

Update from PTC Therapeutics on their MOVE-FA programme for Friedreich’s ataxia

16/11/2023 | Friedreich's ataxia, Friedreich's ataxia pharma news, Research News

Sharing the success of the DRPLA Research Conference

10/11/2023 | DRPLA, Research News

Reflections on the Ataxia UK Annual Conference 2023

31/10/2023 | Ataxia UK news, Cerebellar ataxia, Cerebellar ataxia pharma news, Friedreich's ataxia, Friedreich's ataxia pharma news, Latest News, OMAV updates, Past supporter events, Research News, SCAs, Virtual Activities

University student joins Friedreich’s ataxia research lab following his sister’s FA diagnosis

18/10/2023 | Ataxia UK news, Friedreich's ataxia, Latest News, Research News

Euro-ataxia hosts first in a series of webinars with Ataxia UK on gene therapy  

25/09/2023 | Ataxia UK news, Cerebellar ataxia, Friedreich's ataxia, Latest News, Research News

New research from the Sheffield Ataxia Centre on CANVAS could help in diagnosing the condition

25/09/2023 | Ataxia UK news, Cerebellar ataxia, Research News

Ataxia UK hosts first-ever event for UK-based researchers 

25/09/2023 | Ataxia research conferences, Ataxia UK news, Research News

AAA+ Life Hacks

19/09/2023 | Virtual Activities

Ataxia Magazine 222

08/09/2023 | Ataxia Magazine

Holly’s Big Cycle for Pappy

04/09/2023 | Your Blog

Research Impact Report 2023

01/09/2023 | Research News

Design Therapeutics announce results from Phase 1 FA trial

17/08/2023 | Friedreich's ataxia, Friedreich's ataxia pharma news, Research News

Complete a quick survey to encourage flexibility in New Drug Application approvals by FDA

12/08/2023 | Ataxia UK news, Latest News

American Academy of Neurology 2023

02/08/2023 | Cerebellar ataxia, Research News, SCAs

I Have a Rare Condition

01/08/2023 | Your Blog

Interview with Junko Shiozawa

01/08/2023 | DRPLA

The World is a Wonderful Place

01/08/2023 | Your Blog

Biohaven update on Troriluzole programme

28/07/2023 | Cerebellar ataxia, Cerebellar ataxia pharma news, Research News, SCAs

Gene therapy educational webinar

27/07/2023 | Cerebellar ataxia, Friedreich's ataxia, Research News, SCAs

Larimar Therapeutics receives FDA clearance to proceed with next stage of trial

27/07/2023 | Friedreich's ataxia, Friedreich's ataxia pharma news, Research News

Ataxia Magazine 221

27/07/2023 | Ataxia Magazine

Angela and daughter Chelsea

Angela’s Story

20/07/2023 | Your Blog

Snowdon Challenge

#SnowdonForAtaxia – Ben

18/07/2023 | Your Blog

I will keep going – Beth

17/07/2023 | Your Blog

Tallulah (left) and Marina suffer from ataxia, but not the same type.

“Having ataxia is like living with a ticking time bomb, but when I wake up still being able to walk, I only feel gratitude.” – Talluah

05/07/2023 | Your Blog

History of Symptoms – Ian

04/07/2023 | Your Blog

Ataxia UK is thrilled to announce the refunding by the National Lottery Community Fund

30/06/2023 | Ataxia UK news, Latest News

Lexeo Therapeutics FA trial update

15/06/2023 | Friedreich's ataxia, Friedreich's ataxia pharma news, Research News

An interview with Jane, a former carer.

12/06/2023 | Your Blog

Biohaven submits NDA to FDA

01/06/2023 | Cerebellar ataxia, Cerebellar ataxia pharma news, Research News

Results from PTC Therapeutics Friedreich’s ataxia trial

31/05/2023 | Friedreich's ataxia, Friedreich's ataxia pharma news, Research News

Newly discovered ataxia SCA27B shows promising response to a treatment

31/05/2023 | Cerebellar ataxia, Research News, SCAs

Thank you to all our volunteers

31/05/2023 | Your Blog

Adore this world and find inner peace – Bayram

30/05/2023 | Your Blog

Preliminary results of Larimar Therapeutics FA trial show increase in frataxin levels

25/05/2023 | Friedreich's ataxia, Friedreich's ataxia pharma news, Research News

You are entitled to dignity and respect – Beth

19/05/2023 | Your Blog

Enjoy the ride, savour the moment & always ride on!

10/05/2023 | Uncategorised

SCA-Remote study recruiting people without ataxia

04/05/2023 | Cerebellar ataxia, Research News, SCAs

Biogen announce they have stopped SCA3 clinical trial

26/04/2023 | Cerebellar ataxia, Cerebellar ataxia pharma news, Research News, SCAs

8.8 million euros for accelerated drug repurposing for rare neurological disorders

20/04/2023 | Cerebellar ataxia, Research News, SCAs

Mobility & Medications – Martyn Hurt

19/04/2023 | Your Blog

Larimar Therapeutics – FA trial update

13/04/2023 | Friedreich's ataxia, Friedreich's ataxia pharma news, Research News

Vico Therapeutics – First patient dosed in trial

13/04/2023 | Cerebellar ataxia, Cerebellar ataxia pharma news, Research News, SCAs

Here’s my opinion! – Georg Herdt

03/04/2023 | Your Blog

Trehalose in SCA3

30/03/2023 | Cerebellar ataxia, Research News, SCAs

Ataxia Magazine 220

27/03/2023 | Ataxia Magazine

Here is my story! – Duygu Akdeniz

27/03/2023 | Your Blog

Occupational Therapy and You

23/03/2023 | Virtual Activities, Your Blog

An Open Letter Regarding A Closed Matter

22/03/2023 | Your Blog

Optimal clinical pathway for people in England with rare neurological conditions

22/03/2023 | Cerebellar ataxia, DRPLA, Friedreich's ataxia, Research News, SCAs

London Fashion Week in Wheels – a blog by Ataxia UK’s Friend – Dee

09/03/2023 | Your Blog

Successful meet up in Cardiff with DRPLA families

09/03/2023 | DRPLA, Research News

My wobbly adventure – Singapore & Thailand! Blog by Ataxia UK’s Friend – Tallulah

07/03/2023 | Your Blog

Positive results from Ataxia UK-funded speech therapy project

03/03/2023 | Cerebellar ataxia, Friedreich's ataxia, Research News, SCAs

James Loach, the young man who touched the hearts of many

23/02/2023 | Your Blog

Exploratory study – ARSACS exercise programme

23/02/2023 | Cerebellar ataxia, Research News

Ben Spencer Visits all of London’s Tube Stations!

22/02/2023 | Uncategorised

Frustration With Voice Changes – a story by Ataxia UK’s Friend Beth

14/02/2023 | Your Blog

DRPLA Natural History and Biomarkers Study – an interview with Dr Hector Garcia-Moreno and Ola Volhin

06/02/2023 | DRPLA, Research News

We have it and we have to live with it – a story by Ataxia UK’s Friend Christine

03/02/2023 | Your Blog

Research project – understanding the spectrum of SCA1, SCA2, SCA3 & SCA6

03/02/2023 | Research News, Research News Archive

There is still a good life out there – a story by Ataxia UK’s Friend Hannah

01/02/2023 | Your Blog

New genetic cause of late-onset ataxia discovered

27/01/2023 | Cerebellar ataxia, Research News, SCAs

Wearable technology for Friedreich’s ataxia

23/01/2023 | Friedreich's ataxia, Research News

A note from Ataxia UK regarding AmazonSmile

19/01/2023 | Latest News, Virtual Fundraising

Did you take part in the 100,000 Genomes Project?

18/01/2023 | Cerebellar ataxia, Research News, SCAs

The Difference Between Preference and Fear

12/01/2023 | Uncategorised

Help understand the use of digital health tech

01/01/2023 | Ataxia UK news, Latest News, Virtual Activities

FREE course to improve understanding of health research processes

31/12/2022 | Latest News, Research News, Virtual Activities

Enjoy life and take on everyday challenges!

20/12/2022 | Uncategorised

Millie Mae in conversation with Dan Beacon

19/12/2022 | 16-30, Ataxia UK news, Latest News, Your Blog

Design Therapeutics announce positive data from Friedreich’s ataxia trial

16/12/2022 | Friedreich's ataxia, Friedreich's ataxia pharma news, Research News

Ataxia Magazine – Issue 219 – Autumn 2022 – The Magazine for people affected by ataxia. Join us for the Virtual Annual Conference. From fantastic peakers, interactive classes and entertainment, we've got something for everyone.

Ataxia Magazine 219

16/12/2022 | Ataxia Magazine

Understanding the cause of ARSACS

15/12/2022 | Cerebellar ataxia, Research News

Measuring physical activity in trials

14/12/2022 | Cerebellar ataxia, DRPLA, Friedreich's ataxia, Research News, SCAs

Making research happen

14/12/2022 | Research News

Helen McKnight at her karate tournament

My Tournament Journey Part one

09/12/2022 | Your Blog

Agreement creates the largest worldwide database for Friedreich’s ataxia

01/12/2022 | Friedreich's ataxia, Research News

Top Ten UK research priorities for interventions in childhood neurological conditions

01/12/2022 | Cerebellar ataxia, DRPLA, Friedreich's ataxia, Research News, SCAs

Reflections from ICAR by Ataxia UK Trustee Carol

21/11/2022 | ICAR 2022, Your Blog

Bill Treacher – In Memory

21/11/2022 | In Memory

Ben and his partner Richard

Tubesnapper

21/11/2022 | Your Blog

International Congress for Ataxia Research 2022

10/11/2022 | Research News

Thriving with Friedreich’s

09/11/2022 | Your Blog

Covid-19 vaccine: Autumn 2022 Booster

03/11/2022 | COVID-19

The DRPLA Natural History and Biomarkers Study is now recruiting participants

21/10/2022 | DRPLA, Research News

Drug combination shows positive effect in models of FA

20/10/2022 | Friedreich's ataxia, Research News

Gait measurements as a potential biomarker for SCA3

20/10/2022 | Cerebellar ataxia, Research News, SCAs

Live your best life

04/10/2022 | Your Blog

PROSPAX and TREAT-ARCA project updates

29/09/2022 | Cerebellar ataxia, Research News

In this issue of the magazine – Happy 10th Birthday to Ataxia UK on HealthUnlocked.

Ataxia Magazine 218

28/09/2022 | Ataxia Magazine

Rugby in my life

05/09/2022 | Your Blog

Will you #BackThe1in6?

11/08/2022 | Your Blog

Chair Pilates

11/08/2022 | Your Blog

The Atlantic crossing: Fun & Diverse

02/08/2022 | Your Blog

Win Your Daily Battles

26/07/2022 | Your Blog

Research Impact Report 2022

26/07/2022 | Cerebellar ataxia, Friedreich's ataxia, Research News, SCAs

Jim at his new Gym!

30/06/2022 | Your Blog

Identification of SCA3 biomarkers – an interview with Dr Hector Garcia-Moreno

23/06/2022 | Cerebellar ataxia, Research News, SCAs

2022 CureDRPLA Research Conference

21/06/2022 | DRPLA, Research News

Meet the Graves, founders of Micro Acres Wales

13/06/2022 | Latest News, Your Blog

Ataxia Magazine 217

06/06/2022 | Ataxia Magazine

Ataxia Magazine 216

06/06/2022 | Ataxia Magazine

My Thoughts? And What’s Next.

30/05/2022 | Your Blog

The Atlantic crossing: Cape Verde Onwards

20/05/2022 | Your Blog

Ed’s Diagnosis Journey

13/05/2022 | Your Blog

Greetings from Gaziantep!

03/05/2022 | Your Blog

Photo by Clay Banks on Unsplash

Biogen announce new clinical trial for SCA3 

29/04/2022 | Research News, Research News Archive

Annual Conference 2022 – Update

29/04/2022 | Ataxia UK news

Martyn’s Diagnosis Journey

14/04/2022 | Your Blog

Covid-19 Booster update

01/04/2022 | COVID-19

Jim’s story from David’s pen!

24/03/2022 | Your Blog

LEXEO Therapeutics announce plans for clinical trial

14/03/2022 | Friedreich's ataxia, Friedreich's ataxia pharma news, Research News

All About Ataxia: Neil Casey

11/03/2022 | Your Blog

Paper published on the attitudes of people with ataxia towards clinical trials

04/03/2022 | Cerebellar ataxia, DRPLA, Friedreich's ataxia, Research News, SCAs

Update on Novartis Gene Therapies Friedreich’s ataxia Program

04/03/2022 | Friedreich's ataxia, Friedreich's ataxia pharma news, Research News

Stealth Biotherapeutics begins phase 1/2 trial of Elamipretide in FA

03/03/2022 | Friedreich's ataxia, Friedreich's ataxia pharma news, Research News

Giving Back: Jay Patel

01/03/2022 | Your Blog

Rare Disease Day Quiz

23/02/2022 | Your Blog

All About Ataxia: Gemma Sheen

21/02/2022 | Your Blog

A simple DNA test can detect common neurological disorders

17/02/2022 | Cerebellar ataxia, DRPLA, Friedreich's ataxia, Research News, SCAs

Me and my ataxia

11/02/2022 | Your Blog

Diagnosis shouldn’t mean you give up hope

10/02/2022 | Your Blog

Finding My Ship

08/02/2022 | Your Blog

The effects of karate

25/01/2022 | Your Blog

Dee’s story

05/01/2022 | Your Blog

Eligibility for Covid-19 treatments

23/12/2021 | COVID-19

The Helpline is open!

10/12/2021 | Latest News

Research Impact Report 2021

09/12/2021 | Research News, Research News Archive

Covid-19 vaccine: Boosters

08/12/2021 | COVID-19

Photo of Martyn

A bit about me

08/12/2021 | Your Blog

Give the gift of speech: Peter Kahn

30/11/2021 | Your Blog

Give the gift of speech: Mark Deere

30/11/2021 | Your Blog

Photo of Heather Deville

Give the gift of speech: Heather Deville

30/11/2021 | Your Blog

Ataxia UK Annual Conference: Gluten-free diet tips for gluten ataxia patients

22/11/2021 | Cerebellar ataxia, Research News

Community & political involvement

10/11/2021 | Your Blog

Magazine 215 cover page

Ataxia Magazine 215

29/10/2021 | Ataxia Magazine

New research suggests a reason for a delayed age of onset in some people with Friedreich’s ataxia: Full interview with researcher Dr Suran Nethisinghe

27/09/2021 | Friedreich's ataxia, Research News

US FDA and European Commission grants VICO Therapeutics Orphan Drug Designation for VO659, an Investigational Therapy for Spinocerebellar Ataxia

26/08/2021 | Cerebellar ataxia, Cerebellar ataxia pharma news, Research News, SCAs

Ataxia UK-funded project develops new TTBK2 cell models

26/08/2021 | Cerebellar ataxia, Research News, SCAs

Ataxia Magazine 214

Ataxia Magazine 214

24/08/2021 | Ataxia Magazine

In memory of Jaina

16/07/2021 | Your Blog

Transitions (change)

06/07/2021 | Your Blog

Ataxia Magazine 213

24/06/2021 | Ataxia Magazine

Development and Validation of a Patient-Reported Questionnaire of Ataxia Progression

23/06/2021 | Cerebellar ataxia, DRPLA, Friedreich's ataxia, Research News, SCAs

Help shape our strategy for the next three years

07/06/2021 | Ataxia UK news

Virtual Annual Conference

04/06/2021 | Ataxia UK news, Latest News

Chair Pilates – 25 January 2022

03/06/2021 | Your Blog

Chair Pilates – 27 July 2021

03/06/2021 | Your Blog

Chair Pilates – 29 June 2021

03/06/2021 | Your Blog

Travelling with ataxia, to be continued…

02/06/2021 | Your Blog

Volunteers’ Week: Mari Akhurst

01/06/2021 | Your Blog

Volunteer’s Week: Rizwan Aziz

31/05/2021 | Uncategorised, Your Blog

Volunteers’ Week: Emma Buckett

31/05/2021 | Your Blog

Volunteers’ Week: Mark Deere

31/05/2021 | Your Blog

Minds in Movement: Ataxia UK’s Online Exhibition Fundraiser

28/05/2021 | Fundraisers

Larimar Therapeutics: FA Drug Update

26/05/2021 | Friedreich's ataxia, Friedreich's ataxia pharma news, Research News

Reata Pharmaceuticals – Omaveloxolone Update

17/05/2021 | Friedreich's ataxia, Friedreich's ataxia pharma news, OMAV updates, Research News

New paper published on lower urinary tract and bowel dysfunction in spinocerebellar ataxias

15/04/2021 | Cerebellar ataxia, Research News, SCAs

Wellbeing Week 21-25 June

13/04/2021 | Ataxia UK news

Book Fundraiser

09/04/2021 | Virtual Fundraising

Lali and Calypso

Motherhood

09/04/2021 | Your Blog

Change your address with Ataxia UK

07/04/2021 | Ataxia UK news

New Ataxia Consortium created to accelerate the development of treatments for the Ataxias

31/03/2021 | Cerebellar ataxia, Cerebellar ataxia pharma news, DRPLA, Friedreich's ataxia, Friedreich's ataxia pharma news, Research News, SCAs

DRPLA Patient Registry

26/03/2021 | DRPLA, Research News

Neuromodulation of the cerebellum rescues movement in a mouse model of ataxia

18/03/2021 | Cerebellar ataxia, Research News

Ataxia in disguise

11/03/2021 | Your Blog

Chair Pilates – June 2021

10/03/2021 | Uncategorised

Chair Pilates – April 2021

10/03/2021 | Uncategorised

Photo of 'Moondays' album

Ataxia doesn’t stop my love for music

05/03/2021 | Your Blog

Image of Covid-19 vaccine bottles

Covid-19 vaccine and gene therapy

02/03/2021 | COVID-19

Tallulah in front of building

Rare Disease Day: The curse of the Invisible Illness

27/02/2021 | Your Blog

Rare Disease Day: Dale’s story

27/02/2021 | Your Blog

The Voice of the Patient: Living with Polyglutamine Spinocerebellar Ataxias and Dentatorubral-Pallidoluysian Atrophy

25/02/2021 | Cerebellar ataxia, DRPLA, Research News, SCAs

Update from Novartis Gene Therapies on treatment for FA

25/02/2021 | Research News, Research News Archive

The affects of ataxia

22/02/2021 | Your Blog

Chair Pilates

17/02/2021 | Uncategorised

Rare Disease Day 2021

09/02/2021 | Uncategorised

Covid-19 vaccine priority groups

05/02/2021 | COVID-19

Copywriter with paper saying 'news'

News updates

05/02/2021 | COVID-19, Uncategorised

UK Rare Disease Framework launched to improve diagnosis and treatment of rare diseases

26/01/2021 | Cerebellar ataxia, DRPLA, Friedreich's ataxia, Research News, SCAs

Image of Tim Wahl

My life with episodic ataxia

25/01/2021 | Your Blog

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Ataxia Magazine 212

21/01/2021 | Ataxia Magazine

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Ataxia Magazine 211

21/01/2021 | Ataxia Magazine

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Researching the financial circumstances of Ataxia UK Friends

20/01/2021 | Ataxia UK news

Open letter to Reata and the FDA

18/01/2021 | Friedreich's ataxia, Friedreich's ataxia pharma news, OMAV updates, Research News

FA drug clinical trial update: Larimar Therapeutics

15/12/2020 | Friedreich's ataxia, Friedreich's ataxia pharma news, Research News

Photo of Covid-19 vaccine bottle

Covid-19 vaccine update

11/12/2020 | Ataxia UK news, COVID-19, Latest News

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Book competition! (Closed)

11/12/2020 | Ataxia UK news

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An accessible break away!

09/12/2020 | Your Blog

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Surviving and keep going!

02/12/2020 | Your Blog

Omaveloxolone (Omav) Update

27/11/2020 | Friedreich's ataxia, Friedreich's ataxia pharma news, OMAV updates, Research News

Picture of a Microscope

Neurofilament light tracks SCA3 progression

26/11/2020 | Cerebellar ataxia, Research News, SCAs

3P3AKS

19/11/2020 | Fundraisers

The Big Give Christmas Challenge 2020

09/11/2020 | Latest News

Andrew Bailey

02/11/2020 | In Memory

Gerald Black

02/11/2020 | In Memory

Barbara Binner

02/11/2020 | In Memory

Mark Eugene Smith

02/11/2020 | In Memory

Carol Ann Beckley

02/11/2020 | In Memory

Louisa Arnold

02/11/2020 | In Memory

Roger Westacott

02/11/2020 | In Memory

Tony Niland

02/11/2020 | In Memory

Evelyn Irvin

02/11/2020 | In Memory

William Fullbrook

02/11/2020 | In Memory

Barry Smeaton

02/11/2020 | In Memory

Darren Winfield-Stanesby

02/11/2020 | In Memory

William Derek Main

02/11/2020 | In Memory

Evelyn Irvin

02/11/2020 | In Memory

Natasha Graffen

02/11/2020 | In Memory

Jeanette Fryat

02/11/2020 | In Memory

Vote For Ataxia UK To Win Cash!

30/10/2020 | Uncategorised

Virtual Halloween 5km Run!

30/10/2020 | Uncategorised

Measuring the faulty protein in SCA3

30/10/2020 | Cerebellar ataxia, Research News, SCAs

Spooky Fundraising For Halloween

29/10/2020 | Uncategorised

Helpline update

29/10/2020 | Ataxia UK news

Ataxia Magazine 210

23/10/2020 | Ataxia Magazine

Experimental Treatment for Essential Tremor: MRI guided focused ultrasound for the brain

23/10/2020 | Research News

‘I’m fine, thanks’ by Chris Doveton

23/10/2020 | Your Blog

Wellbeing survey report

13/10/2020 | Ataxia UK news

Cruel consequence of ataxia unawareness

08/10/2020 | Your Blog

Positive results from Niemann Pick Type C clinical trial

01/10/2020 | Research News

Diagnosing and treating primary autoimmune cerebellar ataxia (PACA)

25/09/2020 | Cerebellar ataxia, Research News

Let’s talk about diagnosis… with Marcia

24/09/2020 | Your Blog

Let’s talk about diagnosis… with Ayesha

24/09/2020 | Your Blog

Let’s talk about diagnosis… with Chris

23/09/2020 | Your Blog

Let’s talk about diagnosis… with Karina and Sophie

23/09/2020 | Your Blog

Let’s talk about diagnosis… with Kelly and James

23/09/2020 | Your Blog

Let’s talk about diagnosis… with Leeann and Kieran

23/09/2020 | Your Blog

Let’s talk about diagnosis… with Marc

23/09/2020 | Your Blog

Let’s talk about diagnosis… with Melissa and Ivy

23/09/2020 | Your Blog

Let’s talk about diagnosis… with Mhairi

23/09/2020 | Your Blog

Let’s talk about diagnosis… with Phil

23/09/2020 | Your Blog

Let’s talk about diagnosis… with Sarah

23/09/2020 | Your Blog

Update From Us

19/09/2020 | Latest News

COVID-19 !&A Webinar

18/09/2020 | Latest News

Telephone notice

08/09/2020 | Ataxia UK news

IARC 2019

08/09/2020 | Ataxia research conferences

Flu jab for those with ataxia

07/09/2020 | COVID-19

The Mark Dower Trust: Emma Keogh

02/09/2020 | Latest News

Disappointing news from Reata and FDA regarding Omaveloxolone

14/08/2020 | Friedreich's ataxia, Friedreich's ataxia pharma news, Research News

Life can change in a heartbeat

11/08/2020 | Your Blog

The Mark Dower Trust: Emma Keogh

30/07/2020 | Ataxia UK news

Covid-19 Q&A webinar

20/07/2020 | Ataxia UK news

Speech therapy project shows success

30/06/2020 | Cerebellar ataxia, Friedreich's ataxia, Research News, SCAs

Arginine shows promise in a number of different ataxias

22/06/2020 | Cerebellar ataxia, DRPLA, Research News, SCAs

Ataxia Magazine 209

18/06/2020 | Ataxia Magazine

My emotional struggle with ataxia: part two

18/06/2020 | Your Blog

Ataxia Magazine 208

17/06/2020 | Ataxia Magazine

My emotional struggle with ataxia: part one

11/06/2020 | Your Blog

Max achieves big, despite his ataxia

29/05/2020 | Your Blog

Research Impact Report 2020

11/05/2020 | Research News, Research News Archive

Lockdown life with ataxia: part one

28/04/2020 | Your Blog

Genetic approach to treat many spinocerebellar ataxias

24/04/2020 | Cerebellar ataxia, DRPLA, Research News, SCAs

Ataxia VS Covid-19

17/04/2020 | Your Blog

A Time for Reflection

17/04/2020 | Your Blog

Lockdown online activities

16/04/2020 | COVID-19

The importance of support: before and after receiving a diagnosis

09/04/2020 | Your Blog

Update from us

08/04/2020 | Ataxia UK news

Now that’s what Ataxia UK calls lockdown

03/04/2020 | Ataxia UK news

“Everyday is Different Depending on my Stability”

31/03/2020 | Your Blog

Are you classed as ‘extremely vulnerable’?

30/03/2020 | COVID-19

Advice from ataxia specialists on Covid-19

30/03/2020 | COVID-19

Helpful resources

27/03/2020 | COVID-19

Exenatide in FA research

26/03/2020 | Friedreich's ataxia, Research News

Webinars and Q&A with ataxia specialists

24/03/2020 | COVID-19

“Winning the European Team Silver Medal was indescribable, a dream come true”

11/03/2020 | Your Blog

Ataxia Ambassadors

11/03/2020 | 16-30

Ataxia UK’s Scottish Conference postponed

10/03/2020 | Ataxia UK news

Get involved

10/03/2020 | 16-30

Advice

10/03/2020 | 16-30

The Mark Dower Trust

10/03/2020 | 16-30

Implications of coronavirus (covid-19) for people with ataxia

09/03/2020 | Ataxia UK news

New clinical trial testing HIV treatment, Etravirine, as potential therapy for FA to begin this year in Italy

21/02/2020 | Friedreich's ataxia, Research News

Exicure to launch gene therapy programme in Friedreich’s ataxia

21/02/2020 | Friedreich's ataxia, Friedreich's ataxia pharma news, Research News

Ataxia UK “I’m not drunk” ID card

29/01/2020 | Ataxia UK news

Triplet Therapeutics is developing a fundamentally different treatment for repeat expansion disorders such as various spinocerebellar ataxias

28/01/2020 | Research News, Research News Archive

uniQure publishes data from spinocerebellar ataxia type 3 gene therapy study

28/01/2020 | Cerebellar ataxia, Cerebellar ataxia pharma news, Research News, SCAs

Chondrial Therapeutics Announces Dosing of First Patients in Phase 1 FA trial

19/12/2019 | Friedreich's ataxia, Friedreich's ataxia pharma news, Research News

365 days of shorts

19/12/2019 | Your Fundraising Stories

Friedreich’s ataxia research project identifies new drug targets

17/12/2019 | Friedreich's ataxia, Friedreich's ataxia pharma news, Research News

Targeting the genetic cause of DRPLA

17/12/2019 | DRPLA, Research News

The Big Give – you did it!

16/12/2019 | Ataxia UK news

A Social Worker, a Home-Help and a GP walk into a Service User’s life

13/12/2019 | Your Blog

Ataxia Magazine 207

04/12/2019 | Ataxia Magazine

Ataxia Magazine 206

03/12/2019 | Ataxia Magazine

Ataxia Magazine 205

01/12/2019 | Ataxia Magazine

Euro-ataxia publishes patient charter outlining mission for patient involvement in ataxia clinical trials

29/11/2019 | Cerebellar ataxia, DRPLA, Friedreich's ataxia, Research News, SCAs

Cadent Therapeutics aims to begin new trial in SCAs by the end of 2019

28/11/2019 | Cerebellar ataxia, Cerebellar ataxia pharma news, Research News, SCAs

The Big Give Christmas Challenge: Ann’s story

28/11/2019 | Your Blog

The Big Give Christmas Challenge: Ceri’s story

28/11/2019 | Your Blog

The Big Give Christmas Challenge: Gemma’s story

28/11/2019 | Your Blog

The Big Give Christmas Challenge: Georgia’s story

28/11/2019 | Your Blog

The Big Give Christmas Challenge: Taryn’s Story

28/11/2019 | Your Blog

Double your donation, double your impact!

25/11/2019 | Ataxia UK news

Depressive symptoms predict quality of life in FA patients and deserve recognition

21/11/2019 | Friedreich's ataxia, Research News

The International Ataxia Research Conference 2019 in Washington DC was a great success

21/11/2019 | Research News

The UK’s first Ataxia Centre for Children!

31/10/2019 | Ataxia UK news

Minoryx Therapeutics granted FDA Orphan Drug Designation in Friedreich’s Ataxia for new drug leriglitazone

22/10/2019 | Friedreich's ataxia, Friedreich's ataxia pharma news, Research News

Very exciting results from Friedreich’s ataxia (FA) study

16/10/2019 | Friedreich's ataxia, Friedreich's ataxia pharma news, OMAV updates, Research News

Minoryx Therapeutics completes enrollment in FRAMES phase 2 trial with leriglitazone in Friedreich’s Ataxia

08/10/2019 | Friedreich's ataxia, Friedreich's ataxia pharma news, Research News

Ataxia UK funds new trial investigating non-invasive brain stimulation as a potential therapy for all ataxias

01/10/2019 | Cerebellar ataxia, Friedreich's ataxia, Research News, SCAs

Disordered not Drunk: Terry’s story

24/09/2019 | Your Blog

Disordered not Drunk: Dinesh’s story

20/09/2019 | Your Blog

Disordered not Drunk: James’ Story

20/09/2019 | Your Blog

Disordered not Drunk: Joe’s Story

20/09/2019 | Your Blog

Ataxia UK and FARA-funded project into heart disease associated with FA

20/09/2019 | Friedreich's ataxia, Research News

The current state of biomarker research for Friedreich’s ataxia: a recent report from the 2018 FARA biomarker meeting

10/09/2019 | Friedreich's ataxia, Research News

Levels of the protein Nrf2 affect the development of the brain and spinal cord in Friedreich’s ataxia

10/09/2019 | Friedreich's ataxia, Research News

Completing a half marathon, go Maisie!

06/09/2019 | Your Blog

Disordered not Drunk: Jason’s story

06/09/2019 | Your Blog

Disordered not Drunk: Martin’s story

06/09/2019 | Your Blog

Blue badge, Hynt and Live access cards

28/08/2019 | Your Blog

My journey to an ataxia diagnosis

21/08/2019 | Your Blog

Toxic protein production reduced in SCA3 and SCA1 by genetic approach

16/08/2019 | Cerebellar ataxia, Cerebellar ataxia pharma news, Research News, SCAs

The Edgson family: Kathy, Kizzy and the pets

15/08/2019 | Your Blog

Ataxia UK funds new FA research project developing new FA animal models to test gene therapy

13/08/2019 | Friedreich's ataxia, Research News

BioMarin’s BMN 290 Programme: An Update for the Friedreich’s Ataxia Community

02/08/2019 | Friedreich's ataxia, Friedreich's ataxia pharma news, Research News

FPE Capital Jurassic Coast 100km Walk

31/07/2019 | Past supporter events

Disordered not Drunk: Beryl’s story

29/07/2019 | Your Blog

Survey seeking your advice on the treatment of sialorrhoea

25/07/2019 | Research News, Research News Archive

Disordered not Drunk: Derek’s story

22/07/2019 | Your Blog

The Neurological Alliance Report: Neuro Patience

19/07/2019 | Cerebellar ataxia, DRPLA, Friedreich's ataxia, Research News, SCAs

Gene-silencing treatment approved for hereditary amyloidosis

18/07/2019 | Cerebellar ataxia, Research News, SCAs

Multiple Sclerosis drug increases levels of frataxin

17/07/2019 | Friedreich's ataxia, Research News

Disordered not drunk: Laura’s story

15/07/2019 | Your Blog

Disordered not drunk: Dan’s story

08/07/2019 | Your Blog

Disordered not Drunk: Tara’s Story

24/06/2019 | Your Blog

The Big Give Christmas Challenge 2019

21/06/2019 | Ataxia UK news

Correcting half the faulty heart muscle cells in mouse model of FA completely reverses cardiomyopathy

20/06/2019 | Friedreich's ataxia, Research News

Research Outcomes Report 2019

11/06/2019 | Research News, Research News Archive

Global Ataxia Initiatives SCA Global and ARCA Global aim to advance ataxia research worldwide

11/06/2019 | Cerebellar ataxia, Research News, SCAs

Places to Change: working towards social inclusion

10/06/2019 | Your Blog

Accessibility changes

04/06/2019 | Ataxia UK news

Campaign for Friendship ID cards

31/05/2019 | Ataxia UK news

The Road Travelled So Far

30/05/2019 | Your Blog

The eyes might be the windows to disease progression in FA

23/05/2019 | Friedreich's ataxia, Research News

uniQure releases new data from Spinocerebellar Ataxia Type 3 gene therapy study

23/05/2019 | Cerebellar ataxia, Cerebellar ataxia pharma news, Research News, SCAs

Mutation in RFC1 gene is likely to be common cause of late-onset ataxia

25/04/2019 | Cerebellar ataxia, Research News

Easter office hours

17/04/2019 | Ataxia UK news

Real-time audio-biofeedback (ABF) shown to improve stability in degenerative cerebellar ataxia

11/04/2019 | Cerebellar ataxia, Research News

Preliminary evidence suggests that speech treatment could improve difficulty speaking in ARSACS

09/04/2019 | Cerebellar ataxia, Research News

Ataxia Magazine 204

03/04/2019 | Ataxia Magazine

Ataxia Magazine 203

02/04/2019 | Ataxia Magazine

Ataxia: my poem

22/03/2019 | Your Blog

AMRC Impact Report

20/03/2019 | Research News

New initiative for rare diseases launched by Finnish pharmaceutical company

08/03/2019 | Cerebellar ataxia, Cerebellar ataxia pharma news, Research News, SCAs

EFACTS reports most common ‘non-ataxia’ symptoms in FA

01/03/2019 | Friedreich's ataxia, Research News

Effects of physiotherapy in patients with spinocerebellar ataxia type 7

01/03/2019 | Cerebellar ataxia, Research News, SCAs

Euro-ataxia annual meeting

01/03/2019 | Cerebellar ataxia, DRPLA, Friedreich's ataxia, Research News, SCAs

Minoryx therapeutics announces new trial in Friedreich’s ataxia in a few European countries

27/02/2019 | Friedreich's ataxia, Friedreich's ataxia pharma news, Research News

Friedreich’s ataxia may cause greater susceptibility to skin damage by UVA rays

27/02/2019 | Friedreich's ataxia, Research News

Ataxia UK’s Annual Spring Raffle

25/02/2019 | Ataxia UK news

Your voice: your message

22/02/2019 | Ataxia UK news

Ataxia UK medical guidelines published in peer-reviewed journal

22/02/2019 | Cerebellar ataxia, DRPLA, Friedreich's ataxia, Research News, SCAs

Non-invasive eye exam found to predict disease severity in Friedreich’s ataxia

08/02/2019 | Friedreich's ataxia, Research News

New method for diagnosing ARSACS discovered at Specialist Ataxia Centre in London

31/01/2019 | Cerebellar ataxia, Research News

New options for targeting gene mutation in FA described in nucleic acid therapeutics

31/01/2019 | Friedreich's ataxia, Research News

Positive results announced for potential FA treatment

31/01/2019 | Friedreich's ataxia, Friedreich's ataxia pharma news, OMAV updates, Research News

Raising awareness and understanding of ataxia among healthcare professionals

31/01/2019 | Research News

FDA oprphan drug designation for spinocerebellar ataxia

31/01/2019 | Research News

GoFAR reinforces partnership with Powell Gene Therapy Center at University of Florida (UF) to develop a gene therapy for Friedreich’s ataxia

31/01/2019 | Research News

Government commits to align as closely as possible with EU rules on clinical trials following Brexit

31/01/2019 | Research News

New EU Orphan drug designation for Freidreich’s ataxia

29/01/2019 | Friedreich's ataxia, Friedreich's ataxia pharma news, OMAV updates, Research News

Results of a study evaluating TAK-831 in adults with Friedreich’s ataxia (FA)

29/01/2019 | Friedreich's ataxia, Friedreich's ataxia pharma news, Research News

Euro-ataxia conference 2018

29/01/2019 | Cerebellar ataxia, DRPLA, Friedreich's ataxia, Research News, SCAs

Results presented from patient communications survey

29/01/2019 | Research News

Results published from part 1 of Friedreich’s ataxia drug trial

29/01/2019 | Friedreich's ataxia, Friedreich's ataxia pharma news, OMAV updates, Research News

Final draft of National Genomic Test Directory includes hereditary ataxia

29/01/2019 | Cerebellar ataxia, DRPLA, Friedreich's ataxia, Research News, SCAs

Science and research funds from EU programmes guaranteed even in no-deal Brexit scenario

29/01/2019 | Research News

Glut 1 deficiency syndrome trial announces negative results

29/01/2019 | Research News

Study discovers 3 potential blood based biomarkers for FA

29/01/2019 | Friedreich's ataxia, Research News

HIV treatment identified as potential future therapy for FA

29/01/2019 | Friedreich's ataxia, Research News

Hope for gene therapy for Friedreich’s ataxia

29/01/2019 | Friedreich's ataxia, Research News

Increasing levels of a protein in FA may be potential future therapy

29/01/2019 | Friedreich's ataxia, Research News

International Ataxia Research Conference (IARC) 2019 – Save the date!

29/01/2019 | Research News

Interview with PhD student and ataxia researcher Wayne Yau

29/01/2019 | Cerebellar ataxia, Research News, SCAs

Investigational therapy, EPI-743, shows promise in Phase 2 clinical trial for Friedreich’s ataxia

29/01/2019 | Friedreich's ataxia, Friedreich's ataxia pharma news, Research News

AMRC releases annual research expenditure statistics

29/01/2019 | Research News