Ataxia UK Branches and Support Groups
Our Support Groups and Branches are what truly make Ataxia UK a nationwide charity. Living with a rare condition can feel isolating, and Ataxia UK aims to reduce that feeling by coordinating a network of groups across the UK, where people affected by ataxia can meet up, socialise, share experiences and advice, or just have a good time.
About Our Groups
Our Support Groups and Branches are set up and run by volunteers who are Friends of the charity. Support Groups tend to be spaces in which members can have fun and blow off some steam. Branches are localised bodies of the charity itself, which have a Chair and Treasurer and hold fundraisers throughout the year.
Over 50 Groups and Branches across the UK meet up, socialise, share tips and advice and fundraise; finding solace, support and fun among people who understand their condition. Some meet weekly, others monthly and some just when and where they can. They are always welcoming to new people.
How to join/start a group
Ataxia UK is a charity that supports anyone affected by the condition, not just those who have it: family members, friends, partners, children and carers are very welcome to attend. If you want to join a Support Group or Branch, check the regions of the UK below to find one near you, along with their contact details.
Many of our groups are running virtual meetings on Zoom during the pandemic, while some are starting to return to in-person meetings. If you'd like to attend, please get in touch with the relevant group leader and they can send you a link to join or venue details.
Saturday 8 January @12-2pm – Islington & Ware (online)
Sunday 9 January @ 2-4pm – West of Scotland (online)
Sunday 9 January @ 2-4pm – South London (online)
Thursday 13 January @ 11am-1pm – Farnham (online)
Thursday 13 January @ 11am-1pm – Nottinghamshire (online)
Saturday 15 January @ 11am-1pm – West Country (online)
Sunday 16 January @ 2:30pm – North West London (online)
Monday 17 January @ 10am – Thames Valley (online)
Saturday 22 January @ 11am-1pm – Coventry & Warwickshire (online)
Wednesday 26 January @10am-12pm – Southampton - Book Club, The Man Who Died Twice by Richard Osman (online)
Wednesday 26 January @ 7-9pm – Essex (online)
Thursday 27 January @ 2-4pm – Leeds (online)
Saturday 29 January @ 2-4pm – East (around Peterborough) (online)
If you want to start a Group or Branch, get in touch with us at email@example.com.
Our meetings usually take place at 11am at The Deal Centre for the Retired, 3 Park Street, Deal, Kent. We will be running groups virtually via Zoom starting in January 2021. Get in touch with Andrew to come along.
Rainham and Gravesend
T: 07738 366 433
T: 07776 188 877
In August 2020 we reached the 8th Birthday of the group. From an original 10 members, we now have 35 on our mailing list while we normally have an attendance of 14 at our meetings which are held on the second Thursday of each second month. Several of the those who don’t attend actually cannot do so but like to be kept abreast of our news and activities.
We enjoy getting together with non-judgemental friends who don’t need any explanation or apology for our ataxia. We share ideas and advice from our own experiences and we are always delighted to welcome anybody affected by ataxia to join us.
T: 07759 539 987
Tim and Sue Flanders
Since Covid restrictions have been lifted, the Thames Valley group has organised a number of in-person meetings. We choose venues across the region so we can aim to accommodate as many of our members as possible, and rely on donations and fundraising to facilitate these. For more information on how to join and upcoming meetings, please contact Katrina using the details above.
Meetings are currently being held online via Zoom. We welcome new members so please contact Jennifer for more information and to get involved.
Bishop's Stortford and Ware
T: 01279 843 687
See our website here
Meetings usually take place in the Beefeater at the Premier Inn, Marsh Lane, Ware, SG12 9QB. Please visit our website or contact Barry for dates and times of meetings which are currently being held on Zoom.
We are a friendly group and just have a laugh and joke, really. There is no fee or agenda, just come along and feel at home and have a chat! All kinds of people with ataxia are most welcome.
East of England
East (generally the Peterborough area)
T: 01205 722 771
Read the latest newsletter here
You are welcome to come and join us for a social get together where we help one another to overcome everyday difficulties living with ataxia. Our meetings are usually at the Stanground Community Centre, Whittlesey Road, Stanground, Peterborough, PE2 8QS. They are approximately every two months. All are welcome. Please contact Dave for dates and timings of meetings currently being held on Zoom.
Ipswich & Colchester
We are currently looking for a new volunteer Support Group leader after the wonderful Patsy stepped down after 14 years! Please get in touch with firstname.lastname@example.org if you're interested in finding out more information.
While groups are running virtually on Zoom, members from the Ipswich & Colchester area are free to join any of the other Support Group meetings. Please contact email@example.com if you'd like to be put in touch with one of the other groups.
Ataxia UK Norfolk Online Support Group
Click here to see the group
A small, quick-to-respond online support group. Fancy a chat? Need to vent? Or just want to share your experience? Then we will be there for you every step of the way.
T: 07403 280 338
You can find out about our group by checking out our Facebook group. Please get in touch with Mel for more details about when our next meetings will be held, or to ask for more information!
Cannock and Lichfield
T: 0121 7837 858
Meetings are being held online via Zoom. Please contact Sue for more information and upcoming meeting dates.
Coventry and Warwickshire
07866 861632 or 01789 509698
Coventry & Warwickshire Ataxia Support Group is an informal group of people with various types of Ataxia and their families/carers. Before Covid we met quarterly, at a Coventry pub. Members presently do not feel comfortable meeting face to face; we are holding online Zoom catch ups, other areas also welcome to join us. Kate is happy to chat on the phone, if you would like to know more.
Sheldon and Birmingham Branch
0121 7837 858
We meet every other month and have a good time discussing all topics and we are very welcoming. We are currently holding meetings online so please contact Sue for meeting dates and information.
T: 01162 848 201
Read the latest newsletter here
New members are always welcome! We have now resumed in person meetings so please get in touch for further details.
Meetings are currently being held on Zoom so please contact Anita for more information.
The South of England
We are currently looking for a new volunteer Support Group leader after the wonderful Anneli stepped down after many years! Please get in touch with firstname.lastname@example.org if you're interested in finding out more information.
While groups are running virtually on Zoom, members from the South Downs area are free to join any of the other Support Group meetings. Please contact email@example.com if you'd like to be put in touch with one of the other groups.
The South West
T: 07812 026632
Gloucestershire & Worcestershire
T: 07773 940 586 or 01392 660 398
Meetings are being held online using Zoom. Please contact Becky for upcoming meeting dates and information.
We meet monthly on Zoom on the fourth Wednesday at 10am. We also meet in person on an ad hoc basis and plan to arrange social and fundraising events in the future. Please contact Gina for more information.
We meet once every six weeks on a Saturday afternoon however the date/time is flexible with your needs and requirements. We are a group that love sharing recipes and tips for living with our different ataxias. We welcome all affected by ataxia to join us!
0113 219 1700 or 0777 387 5323
We will be holding our first online meeting in December 2020 so please get in touch if you'd like to join us.
Karen & Gavin Dalton
Please find below details of the North Yorkshire Ataxia Friendship Group - currently we are not holding meetings due to Covid-19, but hopefully they will start again when the lockdown allows.
The North Yorkshire Ataxia Friendship Group meet monthly at the Holiday Inn, Tadcaster Rd in York. We meet to have an informal chat about ataxia and a whole range of non-related things, and generally support each other and have tea/coffee, biscuits and a laugh. All together we have about 25 people who meet and about 10 of the people have ataxia of some form. Throughout the year we arrange days out, fundraising, hog roast/BBQ, a day at the races and also a Christmas lunch. We would love to see you at any of our meetings. We have people travelling from Skipton, Knaresborough, Ripon, Filey, Harrogate, Hull, Driffield and Malton and look forward to welcoming new members.
We are currently holding our meetings online using Zoom. Please contact Toyah for meeting dates and information.
0166 187 1917
0191 581 9995
The East Durham group communicates mostly via email with some quarterly meet ups. Please contact Philip for more information.
0152 483 2536
This is a new email address. If anyone has tried to contact Karen since May on her previous email address, please try again using this address.
0138 727 9431
0789 668 0080
London North Central
We are a friendly group and just have a laugh and joke really. There is no fee and no agenda, just come along and feel at home and have a chat! All people with ataxia are most welcome. We are currently holding online meetings using Zoom, so please get in touch or look at our website for upcoming meeting dates.
London North West
See the latest goings on here or visit the group's website here
We are currently holding online meetings, so please get in touch if you'd like to join. You can see upcoming meeting dates on our website.
Meetings are currently being held online. Please contact Tim for more information and meeting dates.
East of Scotland
West of Scotland
If anyone has tried to contact Nancy recently, try again please as these are new contact details.
Jeanne Roberts (Jen)
0289 187 3592