Virtual Activities
At Ataxia UK, we wanted to create social activities that help the ataxia community to stay connected with each other from the comfort of your own home. The sessions are created and hosted by the Services team and our wonderful volunteers, including wellbeing activities, information sessions on a range of topics covering different aspects of living with ataxia and fun activities like Tony’s music club.
We hope these sessions will be informative, entertaining and leave people feeling a little less isolated.
We have a number of events planned throughout 2026.
Virtual Activities Coming up...
Join us on Tuesday 12 May 2026 11:00-12:00pm for Chair Pilates with Sonia Forde. This session will combine a variety of seated exercises that will help with mobility and posture. There are limited places for this session, so don’t delay in signing up, here.
Our Managing Symptoms session from Wellbeing Week 2026 has been rescheduled! The session will now be taking place on the 12th of May at 2pm.
Click here for the booking form and to find out more.
Our Managing Symptoms session will have a Q&A element. Please submit any questions you have ahead of the session by emailing the Services Team by the 7th of May:Â Â volunteering@ataxia.org.uk
Our next seminar All About Ataxia Seminar will be taking place on the 31st May 2026 from 9am-2pm.
All About Ataxia is an information seminar that gives anyone affected by ataxia (patients, carers/family members) information about the clinical and practical implications of living with ataxia. They explain what is known about ataxia, how it may progress, and what can be done to mitigate its effects.
There will be lots of opportunities to ask questions, and share experiences in small facilitated groups with other participants. There will also be a question and answer session at the event where your questions will be put forward to our facilitators, please could you submit any questions that you have to volunteering@ataxia.org.uk
- Tuesday 2nd June 11am-12pm - Chair Pilates with Sonia Forde
- Thursday 4th June 11am-12:30pm - AbilityNet: The Basics
- Friday 5th June 1-2:30pm - Music Club with Tony Kaye
Join us this Carers Week (8th-14th June) for a week of FREE virtual activities as we celebrate and give thanks to our carers for their contributions to those in the ataxia community.
Please see here for more details and to get involved.
Coming up in Carers Week:
- Tuesday 9th June 1-2pm - Mindfulness with Lucy Holland
- Wednesday 10th June 2-3:30pm - Carers Support Group
- Friday 12th June 12:30-2:30pm - All About Ataxia Plus: Care Needs
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Please Note: Using Zoom
Once you have completed the booking form, an email from Ataxia UK will be sent to the email address you provided. This email will contain a registration Zoom link to the session you have booked for. Please click the link and register your attendance using this Zoom registration link, and Zoom will then send you an email with the direct link to join.
It is important to make sure your email address is typed correctly and you check your spam/junk folder as it is likely it will be sent there.
Recording and Confidentiality Notice
By joining this virtual activity/ conference/ information session you consent to the following:
Camera & Audio:
In the event that the host is unable to verify your identity you will be asked to turn on your camera and audio for verification. Failure to do so may result in your removal from the meeting
Activity/Information Session/Conference (no recording permitted):
This is a private session hosted by Ataxia UK and only Ataxia UK may record any part of the session. Portions of the session (for example, exercise or information segments) may be recorded by the host and the host only. A copy/ parts of the recording may be shared afterwards only with attendees for their personal use.
Discussion segments, including Q&A or personal sharing, will not be recorded and remain private and confidential to those present. Attendees are asked not to record, capture, upload or distribute any part of this meeting themselves.
All content produced by Ataxia UK is and shall remain the exclusive intellectual property of Ataxia UK.
If you would like more information on the sessions or support with using Zoom, please contact volunteering@ataxia.org.uk. We look forward to seeing you there!
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