All About Ataxia is an information seminar that gives anyone affected by ataxia (patients, carers/family members) information about the clinical and practical implications of living with ataxia. They explain what is known about ataxia, how it may progress, and what can be done to mitigate its effects.

This session will also include breakout rooms and opportunities to talk to others with ataxia. There is a question and answer portion in this session and as the session will be facilitated by volunteers who all have a lived experience of ataxia, they will be answering them from the perspective of lived experience and not as medical professionals.

Please submit any questions to volunteering@ataxia.org.uk by the 22nd of January 2027.

We are joined by Genny Hart, Specialist Physiotherapist from the London Ataxia Centre, to lead a session on the benefits of movement and exercise for people with ataxia (and everyone!). 

We encourage you to submit any questions you have ahead of the the session by emailing volunteering@ataxia.org.uk. Please submit any questions before the end of the day on the 22nd of January.

Please note that we are unable to answer questions regarding specific patient cases, individual diagnoses, or personal treatment plans.

The session will include a presentation and exercise portion.

To make sure you get the most out of this session, please do wear flexible clothing, bring along a water bottle & towel and ensure that you are in an area safe for you to do physical exercise. You may need/wish to bring along weights/therabands. If you do not have weights, a can of beans would work too!

*Disclaimer*

To reduce the risk of injury, before beginning this or any exercise programme, please consult a healthcare provider for the appropriate exercise prescription and safety precautions. As with any exercise programme, if at any point you begin to feel faint, dizzy or have physical discomfort, you should stop immediately and consult a physician.​

 Join our very own Specialist Ataxia Nurse, Camilla Notley as she presents a session on managing your ataxia symptoms.

If you have any questions, please submit them to volunteering@ataxia.org.uk by the 22nd of January 2027.

We look forward to seeing you there.

Looking for inspiration for your next adventure?

Join us as we explore fantastic accessible days out, events and experiences designed for everyone affected by ataxia.

From museums, theatres, farms and gardens to theme parks, sporting events and family attractions, discover a wide range of accessible places to visit and activities to enjoy. You'll also learn about disability and access cards that can help you save money, gain free carer admission and access additional support at many attractions, cinemas and events.

Living with ataxia can bring emotional challenges as well as physical ones.

Join Dr Stephanie Yin from Rareminds for a workshop exploring emotional wellbeing and the impact of living with ataxia.

This workshop will explore the emotional challenges of living with a rare condition, looking at themes such as building relationships with healthcare teams, managing uncertainty and anxiety. Plus practical tools for coping day-to-day with the impact of ataxia.