Taking Part In Research – Ataxia

Healthcare Research

Taking Part In Research

Are you a person with ataxia, or interested in ataxia, looking to take part in research? Ataxia UK helps researchers to recruit participants for their trials and projects. Find a list of ongoing research below in which you may be able to take part.

It would be impossible for some of these studies to take place without your help, and we're very grateful for your participation. For further information on taking part in clinical trials, take a look at Genetic Alliance UK's FAQ's on Clinical Trials booklet.

What does taking part in research entail?

Research trials and projects can include providing blood samples, completing questionnaires or taking part in treatment trials. In some cases, participants are needed for natural history studies. These are important to collect information about how the condition affects people and how it progresses over time, which is useful information when doing treatment trials.

Carla and Adam Turner tell us about their daughter Eva's experience in taking part in a next generation sequencing research project:

"Thank you Ataxia UK! Your funding has meant we have successfully navigated the first step on our long and unknown journey. You have made a direct difference to our lives and for that we will always be grateful. Keep doing what you do: your funding makes a massive difference to ordinary families catapulted into an extraordinary life! ”

How To Volunteer
To stay informed of any opportunities to participate in research projects, join Ataxia UK. By telling us exactly what kind of ataxia you have been diagnosed with we can inform you of relevant opportunities, as some studies are focused on only one type of ataxia.

Any researchers involved in ataxia studies who require participants are welcome to contact Ataxia UK (research@ataxia.org.uk).

All studies will need to have relevant Ethics Committee approvals in place and comply with best practice.

Healthcare Research Image

Healthcare Research

People with Cerebellar Ataxia

For people with cerebellar ataxia

Brain Donation Image

Brain Donation

For people with Friedreich's ataxia Image

For people with Friedreich's ataxia

For people with ataxia of unknown cause Image

For people with ataxia of unknown cause

SUBSCRIBE TO OUR NEWSLETTER

Something went wrong. Please check your entries and try again.
Donate Now
Welcome to our new site! We hope you like it.
As it's brand new, there may be a few temporary glitches such as broken links - we are working on getting these all fixed ASAP. If you'd like to give us any feedback or let us know if something isn't quite right, please email website@ataxia.org.uk
+
Scroll to Top