Helpline - Ataxia UK

The Ataxia UK Helpline is here to help!

Ataxia UK wants to ensure everyone affected by ataxia has access to the information, advice and support they need to live their best life.

Knowing what to do next after a diagnosis or wondering how to support a loved one can be a bit intimidating; the Ataxia UK Helpline is here to help.

Our Helpline and Advocacy Officer, Jessica, works alongside our volunteers who all have lived experience of ataxia and members of our research team to provide support, information, and advice to anyone affected by ataxia.

The Helpline is more than a place to find out about ataxias, it's a resource and support hub for people who are affected by ataxias, in all aspects of your life. As well as providing support and information around diagnosis, treatment and living with ataxia, there is a range of other issues we can help with, including:

• Benefits
• Housing​
• Finances​
• Care needs​
• Health needs​
• Mental health​
• End of life care​
• Aid and adaptations
• Transport​ and travel
• Employment​
• Education​
• Accessing Grants​

Ataxia UK is here to help you when you need us, even if it’s just to talk things through. We will do our best to provide you with information and advice about the problem and try to help you to navigate the situation if we can.

If you would like to find out more, or talk to a member of the team, please get in touch by calling 0800 995 6037 or by emailing

The Helpline is open Monday to Thursday 10.30am until 2.30pm.

If you can’t get through on the phone, please leave a message or send us an email. We aim to respond to emails and voicemails within 3 working days, though it is usually a bit quicker than that. If you don’t hear back from us within a week, there may have been a technical problem, so please try us again!

What if I can't get through to the Helpline?
We only have one Helpline operator on at a time so if the line is engaged please do leave us a message and we will call you back. In the meantime, you may find the answer to your questioning the resources available on our help and advice page.

Why didn't you call me back?
The only reason for us not to return a call is if we cannot make out your number - please do try calling us again or email us.

Is the Helpline confidential?
Yes it is. We won't share anything you tell us outside of Ataxia UK (or the Helpline Team) unless you tell us it is okay to do so; except if we think someone is in danger or the law says we must.

"Ataxia UK gives me the reassurance I need to live day-to-day with ataxia"
Dave Stubley


Ataxia UK is a member of Helplines Partnership, a membership body for organisations that provide information, support or advice via phone, email, text or online.

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