Helpline – Ataxia


Use our helpline

Knowing what to do next after a diagnosis, or wondering how to support a loved one can be a bit intimidating; Ataxia UK are here to offer support, information and advice to anyone affected by ataxia. Why not get in touch? Sheila Benneyworth, our Support Officer, and Julie Greenfield, Head of Research are available to talk or email via our helpline.

If you would like to email our helpline, you can do so using this address: or you can call Ataxia UK's helpline on 0800 995 6037. Opening hours are 10.30-2.30, Monday to Thursday. The helpline is closed on Fridays.

What if I can't get through to the helpline?
We only have one helpline operator on at a time so if the line is engaged please do leave us a message and we will call you back. In the meantime, you may find the answer to your questioning the resources available on our help and advice page.

Why didn't you call me back?
The only reason for us not to return a call is if we cannot make out your number - please do try calling us again or email us.

Is the helpline confidential?
Yes. We can't trace your number through the switchboard and you can stay anonymous if you prefer. To make things easier, we now offer you the option to join as a Friend of Ataxia UK over the phone.

"Ataxia UK gives me the reassurance I need to live day-to-day with ataxia"
Dave Stubley

Our lovely Helpline & Membership officer Shiela.

Ataxia UK is also a member of The Helplines Association, a quality standard for the voluntary sector.


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