Martha has struggled with ataxia for over 30 years, here she tells us about her past careers. I’m Martha and I am the fourth generation with hereditary ataxia in my family. I have struggled with ataxia for over 30 years. Since I was a child I’ve always aspired to sing on Broadway (1956 – understudy …
Chris cared for his wife, Anne, who had Friedreich’s ataxia. Since her passing, Chris has written a book to share his experiences.
Our Media Ambassador, Annabel Wilford, shares a story about her grandma who has ataxia and experienced prejudice due to her ataxic symptoms.
Despite Ayesha being diagnosed with SCA7 quite quickly, she lives in Pakistan and tells us that there is no support available.
After not being believed by many medical professionals, Marcia faced a very difficult time trying to find answers for her symptoms.
Chris knew her condition was more than anxiety, and after asking for a second opinion, she was diagnosed with late onset Friedreich’s ataxia.
Sophie’s ataxia diagnosis journey was made incredibly difficult, her mum Karina tells us about it.
Despite the amount of medical professionals James has seen, Kelly tells us that they still have no confirmed diagnosis for James.
Leeann started noticing symptoms in Kieran from four years old, but it wasn’t until three years later they received a diagnosis.
For Marc it took one to two years to get an ataxia diagnosis and the process was anything but easy.
