Jaina’s cousin, Shivani, contacted Ataxia UK to share the blog posts written by Jaina before she sadly passed away. Jaina was diagnosed with Friedreich’s ataxia at 13 years old. In her blogs, she wrote about her life with ataxia and how ataxia affected her. Jaina’s hope with her blogs was to inspire others who are …
Beth writes about her attitudes towards others’ perception of disability, and how it affects her life. It is exceedingly difficult to take on others uncomfortableness with your disability. It takes time to understand ataxia and find a way to keep going. You must not let the thoughts of how others see you, affect you. When …
Join us on Tuesday 14 September at 11:30am-12.30pm for an hour of Chair Pilates, led by Sonia Forde who has over 17 years’ experience as a Pilates teacher. Read more about Sonia’s work here. About the class A seated movement class using Pilates techniques which will focus on mobilising and stretching the whole body. It …
Join us on Tuesday 27 July at 11:30am-12.30pm for an hour of Chair Pilates, led by Sonia Forde who has over 17 years’ experience as a Pilates teacher. Read more about Sonia’s work here. About the class A seated movement class using Pilates techniques which will focus on mobilising and stretching the whole body. It …
Join us on Tuesday 29 June at 11:30am-12.30pm for an hour of Chair Pilates, led by Sonia Forde who has over 17 years’ experience as a Pilates teacher. Read more about Sonia’s work here. About the class A seated movement class using Pilates techniques which will focus on mobilising and stretching the whole body. It …
Lali writes about her travelling experience with ataxia, including accessible finds in Nice that helped her to travel comfortably. The best thing for me when travelling is to have good friends who will always help and wait for me. Even better if they are strong, so usually that will be a boy! (Sorry to my …
Mari is a Media Ambassador and helps to respond to messages and comments across our social media channels. Here’s her experience so far. What volunteering role do you do at Ataxia UK? Media Ambassador. How long have you been volunteering with Ataxia UK? Over 6 months. What made you become a volunteer? I wanted to …
We spoke to Rizwan Aziz about his experience of volunteering… What volunteering role(s) do you do at Ataxia UK? I am a befriender for the Friends Connect service. How long have you been volunteering with Ataxia UK? I signed up as a volunteer around 8 months ago, and then waited a while to be …
One of our brilliant volunteers, Emma, writes about her experience with Ataxia UK. My name is Emma and I am 41 years old. I have Friedriech’s ataxia and was diagnosed at a very young age. I currently volunteer as a Friends Connect Befriender with Ataxia UK. I have been a member of Ataxia UK since the ‘80’s, but I …
We talked to Mark about his volunteering experience with Ataxia UK… What volunteering role(s) do you do at Ataxia UK? I assist James and Anastasia in the InControl team with administration. How long have you been volunteering with Ataxia UK? I started assisting in March 2020 (at the time of the first lockdown!) What made you become a volunteer? …
