Ataxia is a big part of Tallulah Clark’s life – here she talks about the challenges around rare diseases. I’ve been staring at my screen aimlessly for the last half an hour, because truthfully today I don’t just want to write about my ataxia. Today is a fairly ok average day in my world and …
Rare Disease Day: The curse of the Invisible Illness Read More »
Dale Gardner, Media Ambassador for Ataxia UK, lives with Friedreich’s ataxia, but despite its challenges, he talks about how strong and proud he is. At 26 I had no symptoms or even knowledge of ataxia. That was until one day when I visited the cinema with friends. Afterwards, they dropped me off and as I walked to the front door, I turned …
In part one of Adrian’s story, he talks about early signs of ataxia and its affect on his career and life. In late 2016 I went to the doctor because my wife had noticed me losing my balance and tripping over a lot. The doctor had me perform several exercises and when it came to trying to …
Tim Wahl talks about the challenges that episodic ataxia has presented throughout his life. My life with episodic ataxia includes a long succession of medical specialists and a spectrum of diagnoses— “mild” epilepsy, migraine, vasovagal syncope, and hypoglycaemia. The one that took the prize was “anticipatory anxiety.” Ineffective medicines from anti-convulsive and anti-depressants to tranquillisers …
My name is Mari, I am 26 years old and have ataxia. I am a Media Ambassador for Ataxia UK and this is my first blog. Due to Covid-19 my family decided to have a break in the UK. We looked for somewhere that was fully accessible for me as I am a full-time wheelchair …
Martha has struggled with ataxia for over 30 years, here she tells us about her past careers. I’m Martha and I am the fourth generation with hereditary ataxia in my family. I have struggled with ataxia for over 30 years. Since I was a child I’ve always aspired to sing on Broadway (1956 – understudy …
Chris cared for his wife, Anne, who had Friedreich’s ataxia. Since her passing, Chris has written a book to share his experiences.
Our Media Ambassador, Annabel Wilford, shares a story about her grandma who has ataxia and experienced prejudice due to her ataxic symptoms.
Despite Ayesha being diagnosed with SCA7 quite quickly, she lives in Pakistan and tells us that there is no support available.
After not being believed by many medical professionals, Marcia faced a very difficult time trying to find answers for her symptoms.
