New FREE eLearning course aims to improve understanding of health research processes
The European Federation of Neurological Associations (EFNA) has launched a new eLearning course on the theme of research, with modules on ‘Patient and Public Involvement in research’, ‘Overcoming the barriers to clinical trials access’ and ‘Data generation: Surveys to support policy and advocacy’.
The course is the latest in EFNA’s digital ‘Training Initiatives for Neurology Advocates’ (TINA) programme, which also includes courses on topics such as EU Funding, Communications for Advocacy and Personalised Healthcare.
The modules are video-based and divided into sections that can be watched independently at times that suit the viewer. Each module includes supporting notes, as well as the option to take a quiz on the content and receive a personalised certificate of completion.
Courses are in English, but subtitles in other languages can be enabled.
Module 1, ‘Patient and Public Involvement in research’, is presented by PPI expert, Claire Nolan. Claire guides viewers through a typical study cycle, exploring the different stages of building and delivering a research study, looking at where PPI can and should happen in a study, and the impact and benefits of it.
Module 2, ‘Overcoming the barriers to clinical trials access’, is presented in association with the Global Alliance for Patient Advocacy (GAfPA). Clinical trials are an essential part of developing the new medicines, devices and diagnostics that improve health and quality of life worldwide.
This module will explain how impediments to clinical trials enrolment are in fact the first barrier to patients accessing the next generation of innovative treatments and cures. The module will specify the multifaceted access barriers, and the opportunities for policymakers, health care providers and patient advocates to improve access and advance medical innovation.
Module 3, ‘Data generation: Surveys to support policy and advocacy’, is presented by Dr. Orla Galvin, EFNA’s Executive Director. Owing to a lack of data, the task of providing real world evidence to support policy and advocacy actions is increasingly undertaken by patient groups in order to address key issues for their community. Surveys can be an effective way to collect information in a meaningful and useful way. The objective of this module is to outline what factors to consider when conducting a survey for the generation of data- steps to take and some pitfalls to avoid.
The TINA eLearning series on Research is kindly supported by Novartis, Roche, Boehringer Ingelheim and Biogen.