- Complete our survey – see the links below by 28 June
- Take part in an interview
- Take part in a focus group.
- You are not required to give your name at any point on this survey, and there will be no way of identifying you from your response.
- If you do give your name to volunteer for an interview or focus group, it will be not be linked to the answers you have given.
- Your data will be handled securely in accordance with GDPR legislation by the researcher. Beyond receiving paper responses and forwarding these to the researcher, Ataxia UK will not have access to any identifiable individual responses.
- If you do not want to answer a question, or if it doesn’t apply to you, you can skip it.