Help shape our strategy for the next three years – Ataxia

Help shape our strategy for the next three years

Help shape our strategy for the next three years

At Ataxia UK we are starting the process of deciding its priorities and developing its plan for the next three years. If we’re going to do that properly, we need an up to date understanding of what’s happening in the lives of our Friends and their families, what you think of our services and other help on offer to you, where you think we should focus, and how you think we should develop what we do in the future. We’ve commissioned an independent researcher (Nick Hopkins- who did our work last year on money issues) to do this work for us.
There are three ways that you can help:
  • Complete our survey – see the links below by 28 June
  • Take part in an interview
  • Take part in a focus group. 
Our Survey
There are two versions of our survey. The first is targeted at people with ataxia, and can also be completed by carers on behalf of people with ataxia, click here to complete. The second is targeted at carers for people with ataxia, and focuses on the issues they face, click here to complete. If you prefer to fill out a hard-copy version of the survey, please email
Interviews and focus groups
If you’d like to take part in an interview or a small focus group, you can let us know on the form that is part of the survey, or you can contact Nick directly on
We know that confidentiality and privacy are really important to our friends, and that we are asking questions that are personal
Please reassured that:
  • You are not required to give your name at any point on this survey, and there will be no way of identifying you from your response.
  • If you do give your name to volunteer for an interview or focus group, it will be not be linked to the answers you have given. 
  • Your data will be handled securely in accordance with GDPR legislation by the researcher. Beyond receiving paper responses and forwarding these to the researcher, Ataxia UK will not have access to any identifiable individual responses.
  • If you do not want to answer a question, or if it doesn’t apply to you, you can skip it.

Thank you!


Something went wrong. Please check your entries and try again.
fundraise image


Take part in a challenge or create your fundraiser. Every penny you raise will help those affected by ataxia.

Donate Image


To make either a one off or recurring donation which will help fund research into treatments and cures and supports those affected ataxia

Volunteer Image


Support the ataxia community and volunteer with Ataxia UK. From social media to telephone befriending, there are loads of ways you can make a difference to someone's life.

Donate Now
Scroll to Top
  • No products in the cart.