Scarlett Parr-Reid - Ataxia UK

Scarlett Parr-Reid

The PROSPAX Consortium publishes an infographic on their natural history study of individuals with ARSACS and SPG-7 in Europe

The PROSPAX (PROgression chart of SPAstic ataXias) project is a collaborative effort between neurologists across several sites throughout Europe and Canada. The aim is to better understand how spastic ataxias …

The PROSPAX Consortium publishes an infographic on their natural history study of individuals with ARSACS and SPG-7 in Europe Read More »

New study shows impacts of FA on daily life, wellbeing, and relationships in those with FA and their caregivers  

Findings from a recent study, ‘Health-related quality of life in Friedreich Ataxia: A study of impacts on patients and caregivers’, were presented at the International Society for Pharmacoeconomics and Outcomes …

New study shows impacts of FA on daily life, wellbeing, and relationships in those with FA and their caregivers   Read More »

Paper published on study of effectiveness of omaveloxolone for Friedreich’s ataxia using natural history study data

The natural history of Friedreich’s ataxia (FA) has been studied as part of a project called the Friedreich’s ataxia Clinical Outcome Measures Study (FACOMS). Natural history studies track the course …

Paper published on study of effectiveness of omaveloxolone for Friedreich’s ataxia using natural history study data Read More »

Reflections on the Ataxia UK Annual Conference 2023

On Friday 20th and Saturday 21st October 2023, Ataxia UK held their first ever hybrid in-person and virtual annual conference for families affected by ataxia. The conference, which took place …

Reflections on the Ataxia UK Annual Conference 2023 Read More »

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