On Friday 20th and Saturday 21st October 2023, Ataxia UK held their first ever hybrid in-person and virtual annual conference for families affected by ataxia. The conference, which took place …
Reflections on the Ataxia UK Annual Conference 2023 Read More »
In this article, Owen Gittins, a 3rd year undergraduate student in biochemistry at the University of Cambridge, shares his journey into and involvement in Friedreich’s ataxia (FA) research. My …
On 19th September, Euro-ataxia hosted its first webinar on gene therapy as part of a new series with Ataxia UK. 70 audience members attended live, and 70 watched the recording. …
Euro-ataxia hosts first in a series of webinars with Ataxia UK on gene therapy Read More »
The team at the Sheffield Ataxia Centre, led by Prof Marios Hadjivassiliou, has been investigating whether faulty genes called RFC1 seen in a condition called CANVAS (cerebellar ataxia, neuropathy and …
On 12th September, Ataxia UK hosted its first networking event for UK-based researchers in London. We were excited to welcome almost 50 attendees, including researchers, clinicians, Ataxia UK representatives and …
Ataxia UK hosts first-ever event for UK-based researchers Read More »
You may have seen that recently the United States Food and Drug Administration (FDA) issued a refuse to file letter to Biohaven regarding their New Drug Application (NDA) for troriluzole …
In 2019, Ataxia UK won a grant for three years of support from the Lottery Community Fund for a programme to study isolation and loneliness in the ataxia community and …
Ataxia UK is thrilled to announce the refunding by the National Lottery Community Fund Read More »
Neurological Alliance, of which Ataxia UK is a member, is working with the University Hospital Southampton to better understand the use of digital technology in neurology outpatient care. As part …
Watch this video of Millie Mae in conversation with Dan Beacon, discussing her life with Friedreich’s ataxia, her plans for the future and catching up on her journey since we …
Throughout the charity sector and beyond, it is being found following two years of the pandemic people are reluctant to commit themselves to events very far in advance with many …
At Ataxia UK we are starting the process of deciding its priorities and developing its plan for the next three years. If we’re going to do that properly, we need …
Help shape our strategy for the next three years Read More »
Ataxia Unlocked Don’t worry if you missed this year’s conference as we recorded some of the brilliant sessions which you can watch below. Paul Coia interviews… …
InControl are delighted to announce the launch of our first annual wellbeing week. We are offering a range of virtual workshops designed to increase your emotional wellbeing as the lockdown …
If you are a Friend of Ataxia UK or receive communications from us, please let us know when you move address so we can continue sending to you. It’s really …
In October 2019 Ataxia UK commissioned Nick Hopkins Consulting to carry out a research project exploring the financial inclusion related experiences of people with ataxia. The aim of the research …
Researching the financial circumstances of Ataxia UK Friends Read More »
With the availability of the vaccines in the UK, Ataxia UK has had a number of enquiries from people with ataxia about it. We, therefore, discussed this with our Medical …
We’re giving away a signed copy of I’m Fine, Thanks by Chris Doveton! I’m Fine, Thanks is a heart-wrenching story of love, grief and redemption; giving the reader tools and …
Read the results of our InControl Wellbeing Survey, distributed in June 2020.
Our telephones lines may be down for the next few weeks, click here for more information.
Emma applied to the Mark Dower Trust for a grant towards an exercise bike. After successfully receiving the grant, here she tells us about it.
Watch a recording of our webinar with Prof Paola Giunti and Ataxia Nurse Suzanne Booth.
Staff are working from home due to Covid-19, find out how you can contact the office.
Self-isolation can be lonely and boring. That’s why we have created a series of online activities to bring the ataxia community together!
Due to circumstances with the spread of coronavirus, Ataxia UK has decided to postpone the Scottish Conference which was due to happen in June 2020.
How Covid-19 can affect someone with ataxia and ways to keep yourself safe during this pandemic.
Donate here to double your donations to Ataxia UK at no extra cost to you!
Thanks to your generous giving to the Big Give last year, we are ecstatic to announce the first Ataxia Specialist Centre for children.
