At Ataxia UK we are starting the process of deciding its priorities and developing its plan for the next three years. If we’re going to do that properly, we need an up to date understanding of what’s happening in the lives of our Friends and their families, what you think of our services and other …
Help shape our strategy for the next three years Read More »
Ataxia Unlocked Welcome to Ataxia Unlocked; this year’s virtual Annual Conference. Join the weekend from the comfort of your own home and meet other people affected by ataxia. Below is a snippet of our agenda so you know what to expect. We also have Virtual Workshops, Birds of a Feather and It Works For Me sessions. …
InControl are delighted to announce the launch of our first annual wellbeing week. We are offering a range of virtual workshops designed to increase your emotional wellbeing as the lockdown lifts in the UK. All our free workshops are running on Zoom from 1pm-2pm, and everyone is welcome to attend. Monday 21 June: Speech Therapy …
If you are a Friend of Ataxia UK or receive communications from us, please let us know when you move address so we can continue sending to you. It’s really easy to do this, just email help@ataxia.org.uk with your new address and we will update our records. Thank you!
In October 2019 Ataxia UK commissioned Nick Hopkins Consulting to carry out a research project exploring the financial inclusion related experiences of people with ataxia. The aim of the research was to provide an evidence base to guide Ataxia UK’s future financial inclusion related information, support and advice provision and campaigning/ influencing activities. The report …
Researching the financial circumstances of Ataxia UK Friends Read More »
FARA’s campaign asks people affected by Friedreich’s ataxia to sign their open letter. The letter addresses the US regulator, FDA, and Reata pharmaceuticals. The letter requests Reata to submit a new drug application. It also asks the FDA to consider the approval of a new drug application for Omaveloxolone based on current evidence. Omaveloxolone is …
With the availability of the vaccines in the UK, Ataxia UK has had a number of enquiries from people with ataxia about it. We, therefore, discussed this with our Medical Advisory Panel who said they would strongly advise people with ataxia to have the vaccine, when it is offered to them. Prof Giunti and Suzanne …
We’re giving away a signed copy of I’m Fine, Thanks by Chris Doveton! I’m Fine, Thanks is a heart-wrenching story of love, grief and redemption; giving the reader tools and inspiration to overcome life’s struggles and find hope during the darkest of times. This page-turning memoir follows the journey of Chris and his wife Anne, …
Read the results of our InControl Wellbeing Survey, distributed in June 2020.
