Wellbeing Week 21-25 June
Join us for a a week of wellbeing-focused events from the 21-25 June. Save the date and look out for more details coming soon!
Ataxia UK news
Change your address with Ataxia UK
If you are a Friend of Ataxia UK or receive communications from us, please let us know when you move address so we can continue sending to you. It’s really easy to do this, just email help@ataxia.org.uk with your new address and we will update our records. Thank you!
Researching the financial circumstances of Ataxia UK Friends
In October 2019 Ataxia UK commissioned Nick Hopkins Consulting to carry out a research project exploring the financial inclusion related experiences of people with ataxia. The aim of the research was to provide an evidence base to guide Ataxia UK’s future financial inclusion related information, support and advice provision and campaigning/ influencing activities. The report …
Researching the financial circumstances of Ataxia UK Friends Read More »
Open letter to Reata and the FDA
FARA’s campaign asks people affected by Friedreich’s ataxia to sign their open letter. The letter addresses the US regulator, FDA, and Reata pharmaceuticals. The letter requests Reata to submit a new drug application. It also asks the FDA to consider the approval of a new drug application for Omaveloxolone based on current evidence. Omaveloxolone is …
Covid-19 vaccine update
With the availability of the vaccines in the UK, Ataxia UK has had a number of enquiries from people with ataxia about it. We, therefore, discussed this with our Medical Advisory Panel who said they would strongly advise people with ataxia to have the vaccine, when it is offered to them. Prof Giunti and Suzanne …
Book competition! (Closed)
We’re giving away a signed copy of I’m Fine, Thanks by Chris Doveton! I’m Fine, Thanks is a heart-wrenching story of love, grief and redemption; giving the reader tools and inspiration to overcome life’s struggles and find hope during the darkest of times. This page-turning memoir follows the journey of Chris and his wife Anne, …
Wellbeing survey report
Read the results of our InControl Wellbeing Survey, distributed in June 2020.
Telephone notice
Our telephones lines may be down for the next few weeks, click here for more information.
The Mark Dower Trust: Emma Keogh
Emma applied to the Mark Dower Trust for a grant towards an exercise bike. After successfully receiving the grant, here she tells us about it.
