On March 24th 2025, the pharmaceutical company Larimar Therapeutics announced their plans to start conducting a phase 3 trial of their Friedreich’s ataxia (FA) drug Nomlabofusp in mid-2025. This follows […]
Larimar Therapeutics announce plans for phase 3 trial of Nomlabofusp for FA Read More »
Ataxia UK is thrilled to be working in partnership with Parkhead CAB in Glasgow to provide a new Scottish Advice Service, tailored to meet the needs of people affected by
Scottish Rare Disease Advice Service Read More »
On January 30th 2025, the pharmaceutical company Alterity Therapeutics announced positive data from their phase 2 placebo-controlled trial in early-stage MSA. MSA is a progressive neurological condition leading to impaired
Our Friend, Ali, is back with a great bog post. In this piece, he talks about the importance of raising awareness and not being afraid. It’s very important to raise
Thanks to my ataxia, I am now more strong-willed – Ali Read More »
After recovering from brain cancer at 29, Suzanne’s life was forever altered by ataxia, a rare neurological disorder. But she refuses to be defined by her limitations, in her own
I am Independent and I am not trapped – Suzanne Masters Read More »
Our Friend, Matt, travelled to Japan in March. Here is a piece he wrote about his awesome time in Japan, where he talks about the richness of the Japanese culture,
Matt’s Trip to Japan Read More »
Here is a blog post from our Friend, Mohammad, who talks about his ataxia journey. Ataxia threw a curveball at my life, but here’s the thing – it didn’t strike
This isn’t just surviving, this is living a full, vibrant life – Mohammad Shahid Read More »
Tests at Sheffield hospital Hi, I’m Carol and I run the “Gluten Ataxia and Autoimmune” support group as a volunteer. I am not a medical professional, but someone with a
All About Autoimmune and Gluten ataxia – part 2 Read More »
Thursday 12 September 6pm-7pm We invite you to participate in our upcoming session, All About Ataxia PLUS Your Mental Health, on Thursday, 12 September, from 6-7pm. This session has been
All About Ataxia PLUS Your Mental Health Read More »
Join us at our next All About Ataxia seminar on Tuesday the 25th of March 2025 We have redesigned the format of All About Ataxia to enable it to be
Calum O’Neill, a 25-year-old para-cyclist with ataxia from East London, is training extremely hard for the Great Britain Cycling Team. Calum kindly agreed to share his inspiring paracycling journey… Can
Enjoy the ride, savour the moment & always ride on! Read More »
A friend of Ataxia UK has spent months visiting all of London’s Tube stations to make the most of his mobility while raising awareness of his condition. Ben, aka TubeSnapper,
Ben Spencer Visits all of London’s Tube Stations! Read More »
Beth Winder shares her thoughts on the ‘difference between preference and fear’ in this eye-opening piece! Being an Ataxia warrior means that you constantly have to keep moving forward. The
The Difference Between Preference and Fear Read More »
Hi, I’m Junaid. I’m a qualified personal trainer and have a degree in information technology. It has not been easy for me to reach where I am today. Although I
Enjoy life and take on everyday challenges! Read More »
We spoke to Rizwan Aziz about his experience of volunteering… What volunteering role(s) do you do at Ataxia UK? I am a befriender for the Friends Connect service. How
Volunteer’s Week: Rizwan Aziz Read More »
Join us on Tuesday 8 June at 11:30am-12.30pm for an hour of Chair Pilates, led by Sonia Forde who has over 17 years’ experience as a Pilates teacher. Read more
Chair Pilates – June 2021 Read More »
Join us on Tuesday 27 April at 11:30am-12.30pm for an hour of Chair Pilates, led by Sonia Forde who has over 17 years’ experience as a Pilates teacher. Read more
Chair Pilates – April 2021 Read More »
Join us on Tuesday 23 March at 11:30am-12.30pm for an hour of Chair Pilates, led by Sonia Forde who has over 17 years’ experience as a Pilates teacher. Read more
Add the 28 February 2021 to your diaries and join us on social media as we raise awareness of ataxia. Rare is Many, Rare is Strong, Rare is Proud. A
Rare Disease Day 2021 Read More »
Friday 5 February 2021 Paola Giunti has confirmed that patients from the London Ataxia Centre are being called by text for vaccination by UCLH. If you receive this text and
Each month, My Favourite Voucher Codes gives 20% of their profits to charity – Ataxia UK is part of October’s competition so please help us win by voting!
Vote For Ataxia UK To Win Cash! Read More »
Sign up for the Halloween 5km run and complete it on or before 31 October to get your spooky medal!
Virtual Halloween 5km Run! Read More »
Halloween is just round the corner and why not have some fun with some spooky fundraising?!
Spooky Fundraising For Halloween Read More »
