This research was carried out by Prof Giunti and her team at the London Ataxia Centre at the National Hospital for Neurology and Neurosurgery using the London arm of the […]
Vitamin D levels and Friedreich’s ataxia Read More »
Our Chair Pilates sessions are led by Sonia Forde, a Pilates teacher with over 17 years’ experience. Sonia has been working with Ataxia UK for the past five years, supporting
Volunteers Week Special – Chair Pilates Read More »
IntraBio is a biopharmaceutical company focused on developing treatments for progressive neurological conditions. This page provides updates on their levacetylleucine programme. Levacetylleucine is a chemically modified version of the amino
IntraBio and levacetylleucine (AQNEURSA) updates Read More »
Spinocerebellar ataxia type-3 (SCA3) is one of the most common types of SCA worldwide, and is characterised by progressive decline in daily function and quality of life. Whilst cerebellar ataxia
Upcoming project: Co-designing audio support messages with and for people with ataxia: a telephone version of the “I’m not drunk” ID card Principal Investigators: Dr Maria Cairney and Prof Anja
Upcoming project: Investigating The Molecular Mechanisms of SCA2 Using 3D Cerebellar Organoids and Multi-Omics Approaches: A Platform for Advancing Ataxia Research Principal applicants: Prof Jorgen Erik Nielsen, Senior Researcher Patrick
Title: Augmented Reality-Based Closed-Loop Rehabilitation for Postural Instability in Ataxia Principal researchers: Boubker Zaaimi (Aston University, UK), Prof Stuart Baker (Newcastle University, UK), Prof Mark Baker (Newcastle University, UK)
Augmented Reality-Based Closed-Loop Rehabilitation for Postural Instability in Ataxia Read More »
Caring for people with progressive ataxia – lived experience of family carers and co-development of support mechanisms Principal researchers: Prof Anja Lowit and Prof Christopher Graham, Strathclyde University, Scotland.
Join us at our next All About Ataxia seminar on Sunday the 31st of May 2026. We have redesigned the format of All About Ataxia to enable it to be
On March 24th 2025, the pharmaceutical company Larimar Therapeutics announced their plans to start conducting a phase 3 trial of their Friedreich’s ataxia (FA) drug Nomlabofusp in mid-2025. This follows
Larimar Therapeutics announce plans for phase 3 trial of Nomlabofusp for FA Read More »
On January 30th 2025, the pharmaceutical company Alterity Therapeutics announced positive data from their phase 2 placebo-controlled trial in early-stage MSA. MSA is a progressive neurological condition leading to impaired
Our Friend, Ali, is back with a great bog post. In this piece, he talks about the importance of raising awareness and not being afraid. It’s very important to raise
Thanks to my ataxia, I am now more strong-willed – Ali Read More »
After recovering from brain cancer at 29, Suzanne’s life was forever altered by ataxia, a rare neurological disorder. But she refuses to be defined by her limitations, in her own
I am Independent and I am not trapped – Suzanne Masters Read More »
Our Friend, Matt, travelled to Japan in March. Here is a piece he wrote about his awesome time in Japan, where he talks about the richness of the Japanese culture,
Matt’s Trip to Japan Read More »
Here is a blog post from our Friend, Mohammad, who talks about his ataxia journey. Ataxia threw a curveball at my life, but here’s the thing – it didn’t strike
This isn’t just surviving, this is living a full, vibrant life – Mohammad Shahid Read More »
Tests at Sheffield hospital Hi, I’m Carol and I run the “Gluten Ataxia and Autoimmune” support group as a volunteer. I am not a medical professional, but someone with a
All About Autoimmune and Gluten ataxia – part 2 Read More »
Thursday 12 September 6pm-7pm We invite you to participate in our upcoming session, All About Ataxia PLUS Your Mental Health, on Thursday, 12 September, from 6-7pm. This session has been
All About Ataxia PLUS Your Mental Health Read More »
Calum O’Neill, a 25-year-old para-cyclist with ataxia from East London, is training extremely hard for the Great Britain Cycling Team. Calum kindly agreed to share his inspiring paracycling journey… Can
Enjoy the ride, savour the moment & always ride on! Read More »
A friend of Ataxia UK has spent months visiting all of London’s Tube stations to make the most of his mobility while raising awareness of his condition. Ben, aka TubeSnapper,
Ben Spencer Visits all of London’s Tube Stations! Read More »
Beth Winder shares her thoughts on the ‘difference between preference and fear’ in this eye-opening piece! Being an Ataxia warrior means that you constantly have to keep moving forward. The
The Difference Between Preference and Fear Read More »
Hi, I’m Junaid. I’m a qualified personal trainer and have a degree in information technology. It has not been easy for me to reach where I am today. Although I
Enjoy life and take on everyday challenges! Read More »
We spoke to Rizwan Aziz about his experience of volunteering… What volunteering role(s) do you do at Ataxia UK? I am a befriender for the Friends Connect service. How
Volunteer’s Week: Rizwan Aziz Read More »
Join us on Tuesday 8 June at 11:30am-12.30pm for an hour of Chair Pilates, led by Sonia Forde who has over 17 years’ experience as a Pilates teacher. Read more
Chair Pilates – June 2021 Read More »
Join us on Tuesday 27 April at 11:30am-12.30pm for an hour of Chair Pilates, led by Sonia Forde who has over 17 years’ experience as a Pilates teacher. Read more
Chair Pilates – April 2021 Read More »
Join us on Tuesday 23 March at 11:30am-12.30pm for an hour of Chair Pilates, led by Sonia Forde who has over 17 years’ experience as a Pilates teacher. Read more
Add the 28 February 2021 to your diaries and join us on social media as we raise awareness of ataxia. Rare is Many, Rare is Strong, Rare is Proud. A
Rare Disease Day 2021 Read More »
Friday 5 February 2021 Paola Giunti has confirmed that patients from the London Ataxia Centre are being called by text for vaccination by UCLH. If you receive this text and
Each month, My Favourite Voucher Codes gives 20% of their profits to charity – Ataxia UK is part of October’s competition so please help us win by voting!
Vote For Ataxia UK To Win Cash! Read More »
Sign up for the Halloween 5km run and complete it on or before 31 October to get your spooky medal!
Virtual Halloween 5km Run! Read More »
Halloween is just round the corner and why not have some fun with some spooky fundraising?!
Spooky Fundraising For Halloween Read More »
