Results presented from patient communications survey – Ataxia

Results presented from patient communications survey

Results presented from patient communications survey

ISMPP conference flyer

At this year’s Ataxia UK annual conference we welcomed our partners Costello Medical who asked us if they could survey people with ataxia and their carers about how they access scientific and medical literature on ataxia. Thank you for all those who got involved in completing the survey.

We have data on what people felt about the Ataxia UK magazine and e-newsletter that will help us in producing future issues. We were very pleased to see that a high proportion of readers felt this e-newsletter was informative and provided important up-to-date information about research.

The results were presented at the International Society for Medical Publication Professionals (ISMPP) conference (see flyer below) in London this month. Costello Medical representative Danielle Sheard said: ‘The poster went down well at the conference. During the meeting there were a number of discussions about what more the pharma industry could be doing to help make scientific literature more accessible to patients, and there being no “one-size-fits-all” approach, so I think the whole industry is moving in a very positive direction on this issue.’

To view the results click here

Posted on 25/01/2019


Something went wrong. Please check your entries and try again.
fundraise image


Take part in a challenge or create your fundraiser. Every penny you raise will help those affected by ataxia.

Donate Image


To make either a one off or recurring donation which will help fund research into treatments and cures and supports those affected ataxia

Volunteer Image


Support the ataxia community and volunteer with Ataxia UK. From social media to telephone befriending, there are loads of ways you can make a difference to someone's life.

Donate Now
Welcome to our new site! We hope you like it.
As it's brand new, there may be a few temporary glitches such as broken links - we are working on getting these all fixed ASAP. If you'd like to give us any feedback or let us know if something isn't quite right, please email
Scroll to Top