You are not alone - Ataxia UK

You are not alone 

Post Published: May 8, 2024

Hi, it’s Ali again. You might remember me from my previous blog post.  

Not much has changed since I shared my story with you all. The only new thing is that I am now able to do some of my daily tasks on my own. I am trying my best to keep my life standard at a good rate.  

I play video games where I meet new people there on a regular basis. I enjoy helping people, listening to their worries, and just comforting them. Like always, I am always striving to find out more about this world. Although I do like being alone, I do spend quality time with my family. I have three younger brothers and I aim to support them in every way possible. We talk, laugh, and have fun together.  

Living with ataxia is extremely difficult. However, I have to be positive and stand strong against all barriers because that keeps me going. I tell myself I am capable, and I truly believe that. Of course, I do struggle when it comes to moving around since my body is weak, but I am in a firm place mentally.  

My family’s support is incredibly important to me, especially having my mum there to support me puts me at ease. Her knowledge, her advice, her support means the world to me.  

No matter what obstacle you come across, you should stand firm and smash all barriers. We all have our ups and downs, and this is part of life, so go easy on yourself. Try to live in the moment and enjoy this wonderful life. You are not alone; we are here for you. This is a big community, so reach out to people and do not be afraid to meet new people. Just know that we are all on the same boat, we are in this together. 

If you have an idea for a topic to write about already, speak with Irmak Dogan (communications@ataxia.org.uk) to discuss it further. If you don’t have any ideas, send along a self-introduction and she’ll commission you with a topic. Whatever you decide, it’s always best for your topic to be something you feel strongly about. 

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