A recent poll showed that only 10% of the UK population have heard of ataxia. On 25th September every year, we ask our Friends to get involved and help spread […]
International Ataxia Awareness Day 2025 Read More »
Ataxia UK believes strongly in working collaboratively and thus works in partnership with a number of ataxia organisations around the world. The ataxias are rare conditions making such collaborations particularly
The International Congress for Ataxia Research (ICAR) 2024 took place in London from 12th – 15th November. It was organised by Ataxia UK, the National Ataxia Foundation, the Friedreich’s Ataxia
Highlights of the International Congress for Ataxia Research 2024 Read More »
On 12th July Ataxia UK hosted a webinar on how medicines get approved for use in the UK and how decisions are made on their funding in the NHS. The
Ataxia UK hosts an educational webinar on the UK medicines approval process Read More »
Friends through Volunteers to Branches & Support Groups, Fundraisers to donors, Trusts & Foundations, Researchers, and beyond… 2023 has been another challenging year, yet the camaraderie across the ataxia community
Thank you for all your wonderful support in 2023 Read More »
On Friday 20th and Saturday 21st October 2023, Ataxia UK held their first ever hybrid in-person and virtual annual conference for families affected by ataxia. The conference, which took place
Reflections on the Ataxia UK Annual Conference 2023 Read More »
In this article, Owen Gittins, a 3rd year undergraduate student in biochemistry at the University of Cambridge, shares his journey into and involvement in Friedreich’s ataxia (FA) research. My
On 19th September, Euro-ataxia hosted its first webinar on gene therapy as part of a new series with Ataxia UK. 70 audience members attended live, and 70 watched the recording.
Euro-ataxia hosts first in a series of webinars with Ataxia UK on gene therapy   Read More »
The team at the Sheffield Ataxia Centre, led by Prof Marios Hadjivassiliou, has been investigating whether faulty genes called RFC1 seen in a condition called CANVAS (cerebellar ataxia, neuropathy and
On 12th September, Ataxia UK hosted its first networking event for UK-based researchers in London. We were excited to welcome almost 50 attendees, including researchers, clinicians, Ataxia UK representatives and
Ataxia UK hosts first-ever event for UK-based researchers  Read More »
You may have seen that recently the United States Food and Drug Administration (FDA) issued a refuse to file letter to Biohaven regarding their New Drug Application (NDA) for troriluzole
In 2019, Ataxia UK won a grant for three years of support from the Lottery Community Fund for a programme to study isolation and loneliness in the ataxia community and
Ataxia UK is thrilled to announce the refunding by the National Lottery Community Fund Read More »
Neurological Alliance, of which Ataxia UK is a member, is working with the University Hospital Southampton to better understand the use of digital technology in neurology outpatient care. As part
Help understand the use of digital health tech Read More »
Watch this video of Millie Mae in conversation with Dan Beacon, discussing her life with Friedreich’s ataxia, her plans for the future and catching up on her journey since we
Millie Mae in conversation with Dan Beacon Read More »
Throughout the charity sector and beyond, it is being found following two years of the pandemic people are reluctant to commit themselves to events very far in advance with many
Annual Conference 2022 – Update Read More »
At Ataxia UK we are starting the process of deciding its priorities and developing its plan for the next three years. If we’re going to do that properly, we need
Help shape our strategy for the next three years Read More »
Ataxia Unlocked Don’t worry if you missed this year’s conference as we recorded some of the brilliant sessions which you can watch below. Paul Coia interviews…
Virtual Annual Conference Read More »
InControl are delighted to announce the launch of our first annual wellbeing week. We are offering a range of virtual workshops designed to increase your emotional wellbeing as the lockdown
Wellbeing Week 21-25 June Read More »
If you are a Friend of Ataxia UK or receive communications from us, please let us know when you move address so we can continue sending to you. It’s really
Change your address with Ataxia UK Read More »
In October 2019 Ataxia UK commissioned Nick Hopkins Consulting to carry out a research project exploring the financial inclusion related experiences of people with ataxia. The aim of the research
Researching the financial circumstances of Ataxia UK Friends Read More »
With the availability of the vaccines in the UK, Ataxia UK has had a number of enquiries from people with ataxia about it. We, therefore, discussed this with our Medical
Covid-19 vaccine update Read More »
We’re giving away a signed copy of I’m Fine, Thanks by Chris Doveton! I’m Fine, Thanks is a heart-wrenching story of love, grief and redemption; giving the reader tools and
Book competition! (Closed) Read More »
Read the results of our InControl Wellbeing Survey, distributed in June 2020.
Wellbeing survey report Read More »
Our telephones lines may be down for the next few weeks, click here for more information.
Emma applied to the Mark Dower Trust for a grant towards an exercise bike. After successfully receiving the grant, here she tells us about it.
The Mark Dower Trust: Emma Keogh Read More »
Watch a recording of our webinar with Prof Paola Giunti and Ataxia Nurse Suzanne Booth.
Covid-19 Q&A webinar Read More »
Staff are working from home due to Covid-19, find out how you can contact the office.
Self-isolation can be lonely and boring. That’s why we have created a series of online activities to bring the ataxia community together!
Now that’s what Ataxia UK calls lockdown Read More »
Due to circumstances with the spread of coronavirus, Ataxia UK has decided to postpone the Scottish Conference which was due to happen in June 2020.
Ataxia UK’s Scottish Conference postponed Read More »
