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World Wellbeing Week is from 24th to 30th June, it’s a perfect time to reflect on the importance of wellbeing, especially within the ataxia community.  We understand that living with […]

Hi, it’s Ali again. You might remember me from my previous blog post.   Not much has changed since I shared my story with you all. The only new thing is

After the amazing presentation about assistance dogs from Dogs for Good at our Annual Conference in October 2023, we thought it would be interesting to hear from the ataxia community

Louise, in her blog post, explains her ataxia journey and reminds us to be inspired by our courageous resilience. My name is Louise, and I was born in Ceredigion, Wales,

Here is a snippet of Anamaria’s journey, she shared her story in support of the Rare Disease Day Campaign. My adventure with this condition began at the age of 16,

Here is a fantastic blog post from our wonderful Friend, Tallulah. She talks about love and self-worth. As she puts it, “I talk about my own preconceptions, my internalized ableism

Our friend, Laura, has kindly shared her thoughts with us in support of the Rare Disease Day campaign. She talks about the importance of acceptance and a little about her

Our Friend, Alan, has contacted us following his ataxia diagnosis. Here, we bring you a story of his diagnosis, his daily life, struggles and coping mechanisms. If you find yourself

Being someone’s ‘carer’ may only be part of the relationship description. You may be a parent, partner, sibling, child, grandchild, friend or other relative. This relationship can be just as,

Holly (7) is Ataxia UK’s young friend, who, this summer holidays, will cycle 100 miles to support the Ataxia UK community. She did this incredible fundraiser for her Pappy, David.

Meet Laxmi, she lives in India and has Friedreich’s ataxia (FA). In her blog post, she explains the importance of family support!  I want to tell you a bit about myself. I

Carl, in his blog post explains his ataxia journey. I didn’t realise I had ataxia, in fact, until a couple of years ago, when I started to experience some problems

Our friend Angela has Episodic and Gluten ataxia. In her blog post, she shares her ataxia journey.  DIAGNOSIS JOURNEY  Hello, I am Angela Higgott, and this is my story. I

On the 14th of June, our friend Ben, also known as Tube Snapper, summited and descended Mount Snowdon – the highest mountain in Wales. He completed this incredible challenge in

My experience to date of having Ataxia seems like everything little additional illness takes longer to recover from. I am not sure if that’s because I am getting older or

Tallulah shared her and her friend Marina’s story with BBC Mundo, and she has kindly shared this with us. Here is the translated version! It all started with a funny

Meet our lovely friend, Ian. In his blog post, Ian writes about his ataxia journey. Younger days: For as long as I can remember, I’ve always been nervous about speaking

Carers week was from the 5th to the 11th of June, and to mark the importance of this week, a member of the Ataxia UK team interviewed Jane, a former

Volunteers Week is from 1 June until 7 June. We wanted to use this time to thank all our fantastic volunteers for all their support and incredible work. They have

We welcome Bayram, a friend who joined us recently. In his blog post, he tells us a bit about himself. Hi, I’m Bayram. I’m 32 years old and have Spinocerebellar

Ataxia UK’s Friend Beth has written another one in her series of blogs, this time focusing on the importance of being heard by medical professionals and expressing emotions. I think

You may know Martyn from his previous blogs. In this blog post, Martyn discusses his mobility and medication journey. After getting a diagnosis I was prescribed Acetazolamide and Topiramate. I

I’ve been living with the knowledge of having FA for almost eight years now. One might think I got used to this life and I should know what I am

I’m Duygu Akdeniz from Izmir, Turkey. I’m 30 years old. I worked as a librarian at the Ministry of National Education until October 2021. I have Friedreich’s Ataxia. The diagnosis

#AtaxiaUK is joining The Neurological Alliance and 44 other organisations from across England. We are urging the Secretary of State for Health and Care, Stephen Barclay to #BackThe1in6 and include

There I was. A wheelchair-using woman about to enter the Kurt Geiger showroom, about to model for a new disability-inclusive brand for their first runway show called Unhidden in the

Travelling is something I’ve always loved to do. I’ve been fortunate enough to have had the opportunity from a young age to immerse myself into many different cultures, try delicious

The Ataxia UK staff interviewed Yvette Loach and Vanessa Bartlett, the mother and Aunty of James Loach. James, a loving young man who passed away 10 years ago at the

Beth writes about her challenging experience with her bank’s voice recognition software.  My bank uses voice recognition as a security measure because they say your voice is unique. I have