Your Blog

Hey everyone! You may remember me from my previous blog. I’m back and would love to tell you more about myself! I am blessed to have two wonderful children and […]

Phoebe is 12 years old and has Friedreich’s Ataxia, she is a part-time wheelchair user. She lives in Devon with her younger sister. She is fun and outgoing with a

Helen McKnight takes her ataxia to a karate tournament!   I began my karate journey with preparation and nutrition. I eat nutritious foods. To build up my muscles, I need

Hi, I’m Ben, I’m 49, and I live in Buckhurst Hill, Essex. However, I’m originally from South London, which is why I support Millwall FC. I have progressive cerebellar ataxia,

Will Street has been a Friend and an amazing supporter of Ataxia UK for years. Some of you may know him through his company WillStreetTWF. We also wanted to extend

Hi, I’m Canberk from Turkey. Actually, from Hatay, the southern city of Turkey. I was born in 1996. My childhood was quite good, we were always travelling and going on

Hi Ataxia UK family and friends! This blog is about my Rugby journey and how ataxia affected my playing abilities. My name is Glyn Bennett, I was born in 1960

We’re supporting The Neurological Alliance’s #BackThe1in6 campaign, urging governments throughout the UK to establish a Neuro Taskforce to improve services for people with neurological conditions. Join us and sign the petition.

I would like to welcome you back to The Atlantic Crossing series. In this blog I will tell you all about the diverse environment and how much fun we had!.

Meet Richard, the Co-Chair of Ataxia UK, who will in his blog tell you a bit about himself. Hey Ataxia UK family and friends, some of you know me already

Hi everyone! It’s David here, Jim’s gym buddy, you might know us from my previous blog.   In this blog I will tell you how Jim’s motivation encouraged him to

Ed writes about his thoughts and journey after being diagnosed It’s worrying. Finding out you have this genetic disease which does not have a cure and there’s very little known

 Lali started a blog series with ‘Finding my ship’. In this blog, she will continue to tell you about her journey of exploration of the Atlantic Ocean. From Cape Verde,

Ed, one of Ataxia UK’s  media ambassadors, talks about his diagnosis journey. Hi, My name’s Ed and I have hereditary cerebellar ataxia – specifically, SYNE1-related spinocerebellar ataxia (ARCA8). Symptoms have

Ali, a supporter from Turkey, writes about his diagnosis journey and experience with Ataxia UK. Hi everyone! I’m Ali Demirsoy, 24, I live in Gaziantep, Turkey. Generally, I’m at home

Martyn Hurt here – you may remember me from my previous blogs!   Before being diagnosed, I had never heard of ataxia at all, never mind different types. I knew

David talks about his gym buddy Jim, 73, who has spinocerebellar ataxia type 6. Jim was diagnosed with ataxia 4 years ago. Jim and I have been sports buddies for

Neil Casey was relieved to find out ataxia is the condition that had been troubling him for a long time, then he became a volunteer for Ataxia UK. I’m Neil,

Jay Patel is an All About Ataxia facilitator and shares his experiences of living with ataxia. I have SCA28. Most of my motor functions are affected to some degree. The

In aid of this year’s Rare Disease Day, Anastasia will be hosting a virtual quiz with some ‘rare’ themed questions! So join us on Zoom on Monday 28 February from

As Gemma continues her search for her exact ataxia type, she volunteers at our All About Ataxia sessions. I have a form of spinocerebellar ataxia but I am still undergoing

Peter Wormington writes about his experience with ataxia so far. I first realised something was wrong when I found the floor rather too sloping after a couple of pints on

Despite Olie’s diagnosis being a difficult time, he writes about how he changed his perspective. Six years ago at 21 years old, I was about to begin an exciting career

Hi. I’m Lali and I have ataxia. In this blog I will tell you about my adventurous journey of the Atlantic crossing. I flew out to the Canary Islands really

Helen McKnight has done karate on and off since she was 14 years old – here she tells us why.   After many misdiagnoses and doctors appointments I was finally diagnosed with spinocerebellar ataxia type

Hey ataxia fam and friends, I’m Dee! And I have Friedreich’s ataxia (This is not an AA meeting) I’m so used to people asking ‘Huh? What is that?’ It has

Hello! My name is Martyn Hurt and I’m 50 years old. I have type 2 episodic ataxia (EA2.) I was born in Nottingham but we moved away when I was