Your Blog

Helen McKnight has done karate on and off since she was 14 years old – here she tells us why.   After many misdiagnoses and doctors appointments I was finally diagnosed with spinocerebellar ataxia type […]

Hey ataxia fam and friends, I’m Dee! And I have Friedreich’s ataxia (This is not an AA meeting) I’m so used to people asking ‘Huh? What is that?’ It has

Hello! My name is Martyn Hurt and I’m 50 years old. I have type 2 episodic ataxia (EA2.) I was born in Nottingham but we moved away when I was

Peter Kahn has cerebellar ataxia and tells us how the speech therapy group with Anja Lowit has changed his life.  I was diagnosed with cerebellar ataxia around seven years ago and I’m 70 years old now. I am

Mark Deere has SCA28 and his speech problems have resulted in him having to stop working. Here he tells us why speech therapy is so important for those living with ataxia.  In 1990 I

Heather Deville has Friedreich’s ataxia (FA) and talks about how speech therapy has given her the confidence to speak in company.  I was diagnosed with FA at 49 years old and am now 57. Prior to my FA diagnosis

Greetings, I’m Martyn, I have type 2 episodic (EA2). I’d like to talk a bit about my political and community involvement experiences. I have been involved in community work since

Jaina’s cousin, Shivani, contacted Ataxia UK to share the blog posts written by Jaina before she sadly passed away. Jaina was diagnosed with Friedreich’s ataxia at 13 years old. In

Beth writes about her attitudes towards others’ perception of disability, and how it affects her life. It is exceedingly difficult to take on others uncomfortableness with your disability. It takes

Join us on Tuesday 25 January at 11:30am-12.30pm for an hour of Chair Pilates, led by Sonia Forde who has over 17 years’ experience as a Pilates teacher. Read more

Join us on Tuesday 27 July at 11:30am-12.30pm for an hour of Chair Pilates, led by Sonia Forde who has over 17 years’ experience as a Pilates teacher. Read more

Join us on Tuesday 29 June at 11:30am-12.30pm for an hour of Chair Pilates, led by Sonia Forde who has over 17 years’ experience as a Pilates teacher. Read more

Lali writes about her travelling experience with ataxia, including accessible finds in Nice that helped her to travel comfortably. The best thing for me when travelling is to have good

Mari is a Media Ambassador and helps to respond to messages and comments across our social media channels. Here’s her experience so far. What volunteering role do you do at

One of our brilliant volunteers, Emma, writes about her experience with Ataxia UK. My name is Emma and I am 41 years old. I have Friedriech’s ataxia and was diagnosed at a very young

We talked to Mark about his volunteering experience with Ataxia UK… What volunteering role(s) do you do at Ataxia UK? I assist James and Anastasia in the InControl team with administration.  How long have

Media Ambassdor, Lali Cardozo, talks about being a mother with ataxia to Calypso.   Calypso is my daughter; she was seven pounds and two ounces when she was born at 11.45pm on 17 October. She was a petite, average sized baby and

Carol talks about her seven-year journey to an ataxia diagnosis, but the cause still remains a mystery. It started for me in the summer of 2014. We moved house and

In part two of Adrian’s blog, he talks about his love of music and, despite the challenges of ataxia, his commitment to making music. I have loved music from a

Ataxia is a big part of Tallulah Clark’s life – here she talks about the challenges around rare diseases. I’ve been staring at my screen aimlessly for the last half

Dale Gardner, Media Ambassador for Ataxia UK, lives with Friedreich’s ataxia, but despite its challenges, he talks about how strong and proud he is.   At 26 I had no symptoms

In part one of Adrian’s story, he talks about early signs of ataxia and its affect on his career and life. In late 2016 I went to the doctor because

Tim Wahl talks about the challenges that episodic ataxia has presented throughout his life. My life with episodic ataxia includes a long succession of medical specialists and a spectrum of

My name is Mari, I am 26 years old and have ataxia. I am a Media Ambassador for Ataxia UK and this is my first blog. Due to Covid-19 my

Martha has struggled with ataxia for over 30 years, here she tells us about her past careers. I’m Martha and I am the fourth generation with hereditary ataxia in my

Chris cared for his wife, Anne, who had Friedreich’s ataxia. Since her passing, Chris has written a book to share his experiences.

Our Media Ambassador, Annabel Wilford, shares a story about her grandma who has ataxia and experienced prejudice due to her ataxic symptoms.

Despite Ayesha being diagnosed with SCA7 quite quickly, she lives in Pakistan and tells us that there is no support available.

After not being believed by many medical professionals, Marcia faced a very difficult time trying to find answers for her symptoms.