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My words come out much more easily when they are written rather than spoken. I have a lot to say—things I want to shout as loudly as I can—but instead, […]

I was diagnosed with Friedreich’s Ataxia at the age of 44, after experiencing symptoms for a couple of years. I am now 47. I feel that being more open about

I was diagnosed with Friedreich’s ataxia at the age of 44, after experiencing symptoms for a couple of years. I am now 47. We are now into a new year.

I was diagnosed with Friedreich’s ataxia at the age of 44, after experiencing symptoms for a couple of years. I am now 46. December is a fairly busy month, socially,

Nov 2025 – Acts of Kindness I was diagnosed with Friedreich’s Ataxia at the age of 44 after experiencing symptoms for a couple of years. I am now 46. One

I was diagnosed with Friedreich’s Ataxia at the age of 44, after experiencing symptoms for a couple of years. I am now 46. Life has definitely become smaller as the

Our Chair Pilates sessions are led by Sonia Forde who has over 17 years’ experience as a Pilates teacher. Read more about Sonia’s work here. Next sessions: Tuesday 10 March

Winter is Coming by Clare Sheeran I was diagnosed with Friedreich’s ataxia at the age of 44; I am now 46. This monthly blog is just my ramblings and musings

I am totally aware that Friedreich’s Ataxia can really get you down. I am also very aware that late-onset is very different from when you develop symptoms at a young

At the age of 44, two years ago, I was diagnosed with Friedreich’s Ataxia after experiencing symptoms for a couple of years. Until then, my life was very full. I

I’ve written blogs for Ataxia UK before, but in case people don’t know me, I’m Laura. I was diagnosed with Cerebellar Ataxia when I was 17 and thought that my

By 2021, my partner Patrick was leading a full and active life. He had worked hard all over the country and in his spare time enjoyed gardening, rambling, and cycling.

I do realise that late-onset is a different beast and that most people who develop Friedreich’s Ataxia (FA) at a young age have more severe symptoms, and some may not

Our Mindfulness sessions are led by Lucy Holland. The benefits of yoga and mindfulness have been a constant in Lucy’s life for over 20 years and she has been sharing

Our Friend Ester generously spent some time sharing her experiences of ups and downs with speech therapy, and how she finally managed to receive the support she needed and deserved.

What a heart-warming and honest piece from our Friend, Glen. He wrote this article in support of Rare Disease Day 2025 campaign. Thank you, Glen, for sharing your story.  This

You may remember Laura from her previous blog posts, this time she is back with another great read. She wrote this piece in support of Rare Disease Day 2025.  I

Here is lovely Rare Disease Day read from Helena, who wrote about her diagnosis journey. Just before Christmas 2023, I had an MRI to check my neurological health was okay,

Here is a blog post from Martha, Ataxia UK Friend, where she talks about her ataxia story and ataxia care. Hi, my name is Martha, here is a piece I

Here is another fantastic blog post from our Friend, Tallulah, who has written about having ataxia and being pregnant. This article was shared in support of Rare Disease Day 2025.

Our Friend, Philip, is part a lovely online racing community called ‘Bongo’ and he has chosen to write about his journey.  My name is Philip, and I am 55 years old.

Here a blog post from our Friend, Laura, in support of this year’s International Ataxia Awareness Day. I don’t expect many people to know that the 25th of September is

Hey everyone, my name is Monika. I am a 47-year-old widow, and I would like to share my journey of living with Cerebellar ataxia, a genetic condition that has profoundly

Harriet Brown, a Trustee of Ataxia UK who has idiopathic cerebellar ataxia tells us about her dog, Henry.  Henry is our 2 ½ year-old cocker spaniel. He came to live

An overview of the ataxias:  Hi, I’m Carol, and I run the “Gluten Ataxia and Autoimmune” support group as a volunteer for Ataxia UK. I am not a medical professional,

Here is another fantastic blog post from our friend Ali. In his blog post, Ali talks about the importance of staying positive and believing in yourself. I’m calling out to