Forever Yours: Jane’s Story
Alan Maxwell tells us about his late wife, Jane, and her achievement in putting together her autobiography on living with ataxia, ‘Forever Yours.’
Forever Yours: Jane’s Story Read More »
Alan Maxwell tells us about his late wife, Jane, and her achievement in putting together her autobiography on living with ataxia, ‘Forever Yours.’
Forever Yours: Jane’s Story Read More »
Deanna tells us about receiving her Friedreich’s ataxia diagnosis, humorously listing the pros and cons of having the condition, and how her attitude towards life has changed since.
The Exeter Campaign: Rachel Lyons, Lord Mayor of Exeter 2013-14, was instrumental in helping Ataxia UK and the Exeter Branch to fund an awareness campaign by choosing us as her charity of the year.
Former Lord Mayor of Exeter, Rachel Lyons Read More »
The Exeter Campaign: Beka is 15 years old, and has Friedreich’s ataxia. She was once an award-winning horse rider, but can no longer ride. This is her story.
Beka and the Exeter campaign Read More »
The Exeter Campaign: Meet Bex, the face of the Exeter campaign. Bex has long been involved with the Ataxia UK support network, starting her own Branch of the charity in Exeter eleven years ago.
Bex and the Exeter campaign Read More »
The Exeter Campaign: Phil has episodic ataxia, which can attack at any time without warning. The unpredictability of his condition has limited what he’s able to do for work as well as pleasure.
Phil and the Exeter campaign Read More »
Hi Adam,
Thanks for your help with this! I would like to feature the following content in a ‘read more’ expandable block beneath the existing text on this listing page: https://www.ataxia.org.uk/Blogs/our-friends-blog/Category/members-blog
Many thanks indeed!
All the best,
Steph
Nigel Davis was diagnosed with idiopathic spino-cerebellar ataxia (SCA with an unknown cause) at 17. He was able to manage his condition for some time, but after teaching for 19 years, he was forced to retire.
Seeing the world: Nigel’s story Read More »
Will Martin is 27 and was diagnosed with Friedreich’s ataxia whilst at secondary school. Will talks to us about how ataxia has isolated him from his peers, made him deflect from education and shares his crowdfunding goals for a new wheelchair.
Crowdfunding for a chair: Will’s story Read More »
Tallulah is 19 and has Ataxia with Oculomotor Apraxia Type 2 (AOA2), one of the rarest forms of ataxia. It took a full decade to receive a diagnosis, and she’s already fundraising for ataxia research.
Student Life: Tallulah’s Story Read More »
Laura Bishop is 25 and was diagnosed with Friedreich’s ataxia ten years ago. Having dealt with the difficulty of facing the condition as a teenager and the trauma of two serious operations, Laura has come to terms with her ataxia, but is still fearful about what the future will hold…
My FA-mily: Laura’s story Read More »
Richard Brown was diagnosed with Friedreich’s ataxia at 14. It had a devastating impact on what things he thought he could do in life. Here, Richard takes us through his thought process in becoming a parent with ataxia.
Being a father with ataxia: Richard’s story Read More »
Nicola writes about her son Jordan, who has Friedreich’s ataxia, and her experiences as a parent of a child with the condition.
Being a parent: Nicola’s story Read More »
Frances was diagnosed with spino-cerebellar ataxia type 3 (SCA3) in 2009 at 49. Her symptoms were worsening, but she didn’t want to believe anything was wrong. Frances tells us about acceptance, the changes she has had to make for her career and how she manages her symptoms.
Coming to terms with it: Frances’s story Read More »
Austin Fredericks was diagnosed with SCA in 2011. He’s a qualified electrician, has faced prejudice by people who assume he isn’t fit to work, and has even been taken to court for ‘drunk driving’ whilst sober.
Driving with ataxia: Austin’s Story Read More »
Michelle Brown tells us about the many races she ran in very quick succession this autumn, in support of her father and fundraising for Ataxia UK.
My “Three in Four” Challenge Read More »
Toyah Wordsworth discusses how volunteering and employment gave her the confidence to create her own business, and a board game to help younger people become further educated about disability.
Removing Barriers by Toyah Wordsworth Read More »
Arran Eleanor Rigney started a company after learning of her ataxia diagnosis. She aims to help smaller businesses get noticed through her marketing skills, as well as employing her artistic talents to sell her exclusive range of Christmas cards to raise money for Ataxia UK.
When Life Gives you Lemons, Start a Business Read More »
A list of personal blogs, articles and thoughts that our Friends would like to share with the ataxia community.
Our Friends’ Blogs Read More »
Lisa Murphy, author of Theo’s Diary: The Observations of an Indulged Cat, tells us how writing has had a positive impact on her mental health.
Theo’s Diary – The Observations of an Indulged Cat Read More »
It took almost ten years for Geoff Brown to receive his diagnosis; in that time he has become a wheelchair user and almost entirely lost his sight. Nevertheless, Geoff is still intending to follow his dreams.
Around the World in a Yacht Read More »
Richard Brown talks about crowdfunding for his own trike, taking his needs into his own hands.
Thanks for the Trike Read More »
A unique group of co-authors who have two things in common: the ability to write historical, heartfelt horror, and the desire to fundraise towards finding a cure for FA.
Writing The Legacy of Marie Schlau Read More »
Toyah Wordsworth discusses how volunteering and employment gave her the confidence to create her own business, and a board game to help younger people become further educated about disability.
Removing Barriers by Toyah Wordsworth Read More »
To kick off our Friend’s blog is our regular contributor to the Ataxia Magazine, Matthew Law. Matthew writes a series on advice and adaptations, and here is one of his first articles for what was then The Ataxian in 2013.
Something old, something new Read More »
Continuing Matthew Law’s series on Adapting to Life advice series, here is his article from the 2013 Summer issue of the Ataxia Magazine.
Matthew Law tells us about his wheelchair (2013) and what a difference it made to his life after retirement.
We are delighted to share with you this creative, yet thought-provoking ataxia poem, courtesy of Ruth Chalkley.
Ataxia – By Ruth Chalkley Read More »