Let’s talk about diagnosis… with Chris
Chris knew her condition was more than anxiety, and after asking for a second opinion, she was diagnosed with late onset Friedreich’s ataxia.
Let’s talk about diagnosis… with Chris Read More »
Chris knew her condition was more than anxiety, and after asking for a second opinion, she was diagnosed with late onset Friedreich’s ataxia.
Let’s talk about diagnosis… with Chris Read More »
Sophie’s ataxia diagnosis journey was made incredibly difficult, her mum Karina tells us about it.
Let’s talk about diagnosis… with Karina and Sophie Read More »
Despite the amount of medical professionals James has seen, Kelly tells us that they still have no confirmed diagnosis for James.
Let’s talk about diagnosis… with Kelly and James Read More »
Leeann started noticing symptoms in Kieran from four years old, but it wasn’t until three years later they received a diagnosis.
Let’s talk about diagnosis… with Leeann and Kieran Read More »
For Marc it took one to two years to get an ataxia diagnosis and the process was anything but easy.
Let’s talk about diagnosis… with Marc Read More »
Melissa tells us about her daughter Ivy who is struggling to find a cause for her ataxia.
Let’s talk about diagnosis… with Melissa and Ivy Read More »
After 27 years of episodes, I Mhairi was finally diagnosed with ataxia; here’s her story.
Let’s talk about diagnosis… with Mhairi Read More »
Phil was in the dark about his condition for over two years, then he was eventually diagnosed with ataxia.
Let’s talk about diagnosis… with Phil Read More »
Sarah’s ataxia diagnosis journey was intense and it took almost a decade.
Let’s talk about diagnosis… with Sarah Read More »
An ataxia diagnosis never comes lightly, but for Kate Davenport and her daughter, it was a life-changing shock. Read her story here.
Life can change in a heartbeat Read More »
After Beth’s first blog post focusing on her emotional challenges with ataxia, this time she looks at physical challenges.
My emotional struggle with ataxia: part two Read More »
In part one of Beth’s story, she explores and discusses her emotional journey with having ataxia.
My emotional struggle with ataxia: part one Read More »
Read about Max’s journey to his ataxia diagnosis, and his love for media.
Max achieves big, despite his ataxia Read More »
Ataxia UK’s Co-Chair Richard Brown tells us about his life in lockdown.
Lockdown life with ataxia: part one Read More »
The measure is always in dusting yourself off, and to keep trying until all the incredible hard work sticks
A Time for Reflection Read More »
This strange new reality feels like a temporary apocalypse, an unwelcome interruption to our daily norms
Ataxia VS Covid-19 Read More »
Ami Hook-Ireland shares her story of the challenges she faced living with ataxia and how ongoing support made a positive difference in her life.
The importance of support: before and after receiving a diagnosis Read More »
David has late-onset spinocerebellar ataxia type 6 and has written a blog about different forms of mobility assistance in hope that it will help anyone considering to purchase one.
“Everyday is Different Depending on my Stability” Read More »
Here is Mari Durward-Akhurst to tell the story of her incredible achievement, and the roots of her riding.
“Winning the European Team Silver Medal was indescribable, a dream come true” Read More »
Anita Gracey has Friedreich’s ataxia and writes poems about how her condition affects her life.
A Social Worker, a Home-Help and a GP walk into a Service User’s life Read More »
Ann tells us about her granddaughter’s challenges accessing care for her ataxia and the lengthy travels the members of the Support Group have to go on.
The Big Give Christmas Challenge: Ann’s story Read More »
Ceri shares with us how important access to better care would be a dream to her family.
The Big Give Christmas Challenge: Ceri’s story Read More »
Gemma faces many challenges when travelling to get the card she needs. Read her story here.
The Big Give Christmas Challenge: Gemma’s story Read More »
Living in North England, Georgia has to travel a long way to access the care she needs for her ataxia.
The Big Give Christmas Challenge: Georgia’s story Read More »
This Christmas Taryn tells us how access to appropriate care would benefit her life.
The Big Give Christmas Challenge: Taryn’s Story Read More »
Terry Wigzell is another person from the ataxia community who has faced prejudice from the police and TfL workers. Read his story here.
Disordered not Drunk: Terry’s story Read More »
Here, Dinesh tells us about a time when someone wrongly accused him of being drunk, and the detrimental effect it had afterwards.
Disordered not Drunk: Dinesh’s story Read More »
James Moore is Emmerdale’s well-loved actor and recently won the Best Newcomer Award 2019. He shares his story of a time when someone didn’t believe him about his own health condition.
Disordered not Drunk: James’ Story Read More »
After a day in the library trying to help his mum, Joe was accused of being drunk and lying. Find out what happened here.
Disordered not Drunk: Joe’s Story Read More »
You don’t expect to be judged when using public transport, but for people like Jason, this is what happened. Here’s what happened when Jason was accused of being drunk due to his ataxia.
Disordered not Drunk: Jason’s story Read More »