I was diagnosed with Friedreich’s ataxia at the age of 44, after experiencing symptoms for a couple of years. I am now 47.
I am lucky enough to still be driving. A while back, around Christmas, I was stopped by the police during a routine drink-driving campaign. When they spoke to me, I was slurring my words, as my speech tends to get worse when I am nervous. I think the officer was convinced I had been drinking. However, once I explained the symptoms of Friedreich’s ataxia and the breathalyser test came back at zero, he knew I was above board! I really don’t blame the police. They are just doing their job and keeping people safe.
People often think I am drunk because the symptoms of ataxia can mimic those of intoxication. Generally, though, people ask out of concern rather than malice, and once you explain the situation, they offer to help. 😊
As Friedreich’s ataxia is a rare disease, many people are unfamiliar with it and have never heard of it. Therefore, it is necessary to explain the symptoms. I think I might get a T-shirt that says, ‘I am not drunk!’ (Not that I’m saying a drop has never passed my lips! 😊)
