By 2021, my partner Patrick was leading a full and active life. He had worked hard all over the country and in his spare time enjoyed gardening, rambling, and cycling. He was fit, independent, and full of energy.
Later that year, he was involved in a car accident on the motorway. Luckily, he walked away with only tissue and muscle damage. However, as time went on, we couldn’t understand why his health was deteriorating rather than improving. He began to feel unsteady on his feet, experiencing trips and falls, and his coordination wasn’t as sharp as it used to be.
After visiting our GP with our concerns, we were referred to the neurology department at our local hospital. Patrick was tested for MS and Parkinson’s, both of which came back negative. Blood samples were sent for genetic testing, and it was confirmed that Patrick had hereditary type 7 spastic paraplegia (SPG7).
After the initial shock, we began doing some research to try to understand what we might be facing both now and in the future. The real blow came when we were told there was no cure, no medication, and no guarantees about how severe his condition might become.
Following a couple of years of neurology appointments, physiotherapy, speech and language therapy, occupational health support, and a visit to the Ataxia Centre in London, we began to come to terms with what we were dealing with well, I did, at least. Patrick remained in denial and found it especially difficult to accept that he could no longer work.
We did everything we could to make life easier: making alterations around the home and accepting help from occupational therapy in the form of walking aids, a wheelchair, and equipment to support daily living.
Even with all the help and advice we received, and despite all the research we did, we couldn’t understand why Patrick’s condition had progressed so rapidly. We began to wonder whether the shock and trauma from the car accident may have triggered or accelerated his symptoms.
We’ve raised this with neurologists and genetic experts, who say it could be possible. But through all the research we’ve done and the stories we’ve read, we’ve yet to come across anyone else who has experienced something similar.
We know we’re not alone—but sometimes it can feel that way. That’s why sharing Patrick’s story means so much to us. If anyone reading this has experienced something similar, particularly following trauma or an accident, we’d really love to hear from you. Your experience, advice, or even just kind words could make a real difference.
Please feel free to get in touch with me, Nicola, by email at nikkixxx74000@gmail.com.
We’re stronger when we share.
Many thanks,
Nicola and Patrick
