I was diagnosed with Friedreich’s Ataxia at the age of 44, after experiencing symptoms for a couple of years. I am now 46.
Life has definitely become smaller as the disease progresses. As I mentioned in a previous blog about exercise, I have become fearful of exercising outside, as my balance is quite poor and I am scared of falling. So I am doing less exercise, and because I love food, every meal and snack has become so exciting. It’s a bit of a vicious circle: as the food increases and the exercise decreases, I know I am putting on weight.

I know I need to get back into the mindset of caring about myself and my appearance, but it is hard. I am socialising less, so I am not as concerned about fitting into the right outfit anymore. I keep buying clothes and even hang them outside the wardrobe to inspire me, but I haven’t quite got there yet.
I know people are not judging me, but I judge myself. Speaking of judgement, I have a wee cat called Jess. Having a pet, especially when you live alone with a disability, is so comforting. As I’ve said before, overthinking can be a bad habit. Pets don’t judge, so I never worry about whether I am walking awkwardly or looking clumsy in front of Jess.
Pets are simply great company, and they are wonderful for the soul.