For People with Friedreich's Ataxia

For People with Friedreich's Ataxia

Taking part in research as a patient is a wonderful way to bring us ever closer to finding a cure for ataxia. Below is a list of current research trials and projects that are recruiting for patients with FA.

"I would like to say that the nicotinamide trials I have been involved with have so far been encouraging and I feel proud to know that some day the quality of life of those with Ataxia may be improved" - Patrick

Natural history study in Friedreich's ataxia (EFACTS)

Friedreich's ataxia Global Patient Registry (FAGPR)

On 23 June 2020 we held a webinar describing more about the FA Global Patient Registry. You can view a recording of the webinar here: