For People with Friedreich's Ataxia
Taking part in research as a patient is a wonderful way to bring us ever closer to finding a cure for ataxia. Below is a list of current research trials and projects that are recruiting for patients with FA.
"I would like to say that the nicotinamide trials I have been involved with have so far been encouraging and I feel proud to know that some day the quality of life of those with Ataxia may be improved" - Patrick
Natural history study in Friedreich's ataxia (EFACTS)
Friedreich's ataxia Global Patient Registry (FAGPR)
On 23 June 2020 we held a webinar describing more about the FA Global Patient Registry. You can view a recording of the webinar here:
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