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Ataxia UK
Contact Office: 020 7582 1444
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    1. Support and information
    2. About ataxia
    3. Ataxia UK resources

    Ataxia resources

    Click on the type of resource below to find Ataxia UK's publications, leaflets and guides on the information you need.

    All of these publications are available in print to request from the office ([email protected]); however to save on costs and our impact on the environment, we've made them available to download from the website. 

    Support and services resources

    Expand

    Downloadable documents, leaflets and resources for support and services from Ataxia UK

    Great to share with someone who's newly diagnosed, a parent of someone with ataxia, or anyone who feels a bit stuck. 

    Ataxia UK videos

    Download a list of videos we have on our YouTube channel and see what a variety of topics we cover. You can see and read more about our videos here.

    Ataxia Online

    Read all about the support services we provide online. You can find out more about our online support here.

    Ataxia UK Annual Conference

    Download slides from 2018's Annual Conference: our "best yet."

    16-30's leaflet

    Read an introduction to the 16-30's Project, what is offers and who it's for. You can read more about the project on our 16-30's website.

    Ataxia: a Parents' Guide

    An A5 booklet to assist parents in supporting their child with ataxia (soon to be updated)

    Published: 11th October, 2018

    Updated: 14th June, 2019

    Author: Steph Marley

    Related topics:
    • Ataxia resources
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    Ataxia UK research documents

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    Downloadable publications, leaflets and documents for seeing what the Ataxia UK Research department have achieved, and are currently working on.

    These can be great tools for seeking donations to your fundraisers, or just to demonstrate to others what Ataxia UK do in the world of ataxia research.

    AUK Research summary leaflet

    a summary of what Ataxia UK-funded research has achieved so far.

    AUK's Research Strategy (2017-2020)

    What Ataxia UK aims to achieve over the next few years.

    Published: 11th October, 2018

    Updated: 14th June, 2019

    Author: Steph Marley

    Related topics:
    • Ataxia resources
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    To take to the GP

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    Downloadable documents, leaflets and publications to take to your GP, and help improve the healthcare you receive.

    Summary of Clinical Guidelines for GPs

    a short leaflet summarising the best way a healthcare professional can manage ataxia and support you. 

    Ataxia UK Medical Guidelines

    a comprehensive document created through collaboration with ataxia specialist neurologists and other healthcare professionals. It includes comprehensive sections on diagnosis, medical interventions for symptom relief and therapies.

    Published: 11th October, 2018

    Updated: 14th June, 2019

    Author: Steph Marley

    Related topics:
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    Explaining ataxia

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    Downloadable leaflets, publications and documents that explain ataxia.

    Great for sharing with loved ones, friends, workplaces and schools to help them understand what ataxia is. 

    What is ataxia?

    A5 booklet all about the condition 

    What is Friedreich's ataxia?

    A5 booklet all about FA

    Published: 11th October, 2018

    Updated: 14th June, 2019

    Author: Steph Marley

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    Publications about Ataxia UK

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    Download our About Us document to read more about Ataxia UK.

    About Us 

    For a bit more information about the charity, our mission and how to contact us

    Ataxia Magazine

    Check out, download and print our latest issues of the Ataxia Magazine, to access support, ataxia research updates and information from people within our community. 

    Ataxia UK poster

    Download and print off our Ataxia UK poster, saying who we are and why we raise funds

    Published: 19th November, 2018

    Updated: 14th June, 2019

    Author: Steph Marley

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    Fundraising resources

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    Click on the below links to download useful fundraising materials, information and leaflets to give out!

    Fundraising pack

    Access our array of advice and ideas for fundraising events and challenges with which you can support people affected by ataxia

    Fundraising towards research projects

    download leaflets for specific research projects, as fundraising tools to explain what you're raising funds towards.

    Sponsorship form

    Download and print off our sponsorship form to use in your fundraising!

    Schools fundraising pack

    Download our pack to help school children understand about ataxia, and how to raise funds for Ataxia UK at school 

    Published: 19th November, 2018

    Updated: 14th June, 2019

    Author: Steph Marley

    Related topics:
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    Conference Slides

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    If you were not able to join us in our conferences, please find a selection of presentations that highlight the talks. 

    Annual Conference 2019
    Regional Conference in Wales 2019
    Annual Conference 2018
    Regional Conference in Scotland 2018
    Annual Conference 2017

    Published: 27th September, 2019

    Updated: 8th October, 2019

    Author: Julia Schaff

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    Back to top

    Showing 10 of 7

    Latest

    • The Big Give Christmas Challenge: Ann's story

      Ann tells us about her granddaughter's challenges accessing care for her ataxia and the lengthy travels the members of the Support Group have to go on.

    • The Big Give Christmas Challenge: Georgia's story

      Living in North England, Georgia has to travel a long way to access the care she needs for her ataxia.

    • Ataxia Magazine 207

      Episodic ataxia type 1 results, International Ataxia Awareness Day, Music therapy and finding the right aid for you.

    • Ataxia Magazine 206

      SCA research, accessible airlines, raising awareness in Farnham and benefits of a gluten-free diet.

    Most read

    • Ataxia... what's that?

      Understanding and explaining ataxia.

    • For physiotherapists

    • Newly diagnosed?

      Access the advice, support and information you need after receiving your diagnosis.

    • How is ataxia diagnosed

    • For occupational therapists

    • For speech and language therapists

    • Living with Late-Onset cerebellar Ataxia

      John Abbott shares his experience of obtaining his diagnosis for late-onset ataxia, and how it has affected him.

    • Ataxia Fractures Lives

      "It's like a crack in a car windscreen: it may start very small, but you know it’s not going to go away; it's only going to get larger..."

    • Introduction & Full Document

    • About Ataxia UK

      Who we are, what we believe, what we do.

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    Become a Friend of Ataxia UK to access the best support, and keep up to date with the latest ataxia research news with our Ataxia Magazine and monthly E-newsletters.

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      Ataxia UK is a company limited by guarantee registered in England under 4974832 and registered as a Charity 1102391 (England) and SC040607 (Scotland) 

       

      Registered office Ataxia UK, 12 Broadbent Close, London, N6 5JW