Tony's wife, Deanna, has Cerebellar ataxia, and the pair were instrumental in starting up the North-West London Branch. The Branch meets regularly and allows members to benefit from shared experiences of being affected by ataxia. This experience has given Tony a vast knowledge of fundraising.

Dr Kaye is also a former trustee of the Royal Photographic Society, an educational charity that promotes photography and image-making and to support photographers in realising their potential, irrespective of their level of knowledge, equipment or skills. Prior to retirement, Tony was employed by Kodak as a senior research imaging scientist with European-wide responsibilities for product quality and development and technical liaison with marketing. 

Tony assists Ataxia UK on a regular basis with photography for events and print publications.