It is International Ataxia Awareness Day on 25 Septemberso save the date! This year we will focus on the challenges around ataxia diagnosis. If you have been diagnosed with ataxia, or are currently going through one, we would like to hear from you. You can tell us about your diagnosis journey and experiences by taking part in this survey here

If you would like to share an in-depth story about your diagnosis experience, or would like to speak to our Communications Officer, Leanna, please email [email protected].

Join the campaign on 25 September and be ready to raise awareness of ataxia across social media.


- Follow us on our Twitter @AtaxiaUK, Facebook /Ataxia UK and Instagram @ataxia_uk 


- Share our social media posts and let's reach as many people as possible!


- From the 23 September, add our Facebook frame to your profile photo by clicking on your profile photo, add frame, then search for 'Ataxia... Let's talk about diagnosis'


- Use hashtags: #TenPointFive #IAAD #AtaxiaUK #AtaxiaDiagnosis