In Memory

In memory of Louisa

My niece, Louisa Arnold suffered from the effects of Friedreich's from an early age. We witnessed the devastating effect of this condition on her body which meant years of painful treatment in Great Ormond Street Hospital to attempt to straighten her spine and a lifetime wheelchair bound requiring the care and support of others. Her brain worked and but her body didn't.
Her parents and sister provided the most amazing and dedicated support for Louisa at great personal cost to them, in terms of their physical and emotional investment in meeting Louisa's everyday needs, which were extensive. Louisa was truly courageous living with ataxia. She had such an active mind and a sharp sense of humour but was utterly dependent upon others. She loved life but bore witness to the increasing deterioration of her body that Friedreich's Ataxia causes. She died in October 2018 age 36.
I want to support Friedreich's Ataxia research to enable them to work towards solutions that will prevent others being affected by the dreadful condition.
I'm known for wearing shorts, and in 2019 I intend to wear shorts every day. I shall donate £1 per day to ataxia research and hope that others will provide sponsorship as I work towards my goal.

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