David Arnold

   

My niece, Louisa Arnold suffered from the effects of Friedreich's from an early age. We witnessed the devastating effect of this condition on her body which meant that as a child she had to cope with months of painful treatment in Great Ormond Street Hospital in an attempt to straighten her spine (because curvature was causing pressure on her internal organs), and a lifetime wheelchair bound requiring the care and support of others. Her brain worked and but her body didn't.
Her parents and sister provided the most amazing and dedicated support for Louisa at great personal cost to them, in terms of their physical and emotional investment in meeting Louisa's everyday needs, which were extensive. Louisa was truly courageous living with ataxia. She had such an active mind and a sharp sense of humour but was utterly dependent upon others. She loved life but bore witness to the increasing deterioration of her body that Friedreich's Ataxia causes. She died in October 2018 at the age of 35.
I wanted to do something in Louisa's memory, and decided to support Friedreich's Ataxia research, albeit in a small way, in their work towards solutions that will, in the future,prevent others being affected by the dreadful condition.
I'm known for wearing shorts, and in 2019 I intend to wear shorts every day. I shall donate £1 per day to ataxia research and hope that others will provide sponsorship as I work towards my goal.

The picture, taken last summer by her sister, shows Louisa with her carer and her beloved dog,Jake.

David Arnold