The campaign

Ataxia disrupts the perception of people. Due to ataxic symptoms, people may seem wobbly or 'disordered', and others may assume that they are drunk. These misjudgements can ruin a day or night; a comment or opinion can do harm and once it’s said, it can’t be taken back.

The accusations that people face due to their unsteadiness can hurt. People living with ataxia face this prejudice daily, and some have restricted themselves to isolation as they fear leaving the comfort of their own home. 

Getting the word ATAXIA out in the community, healthcare industry and online is crucial to prevent and alleviate these misjudgements. 

Support the campaign this year by changing your profile picture and sharing your story across social media. Read stories from our Friends!

Ataxia can distupt someone's freedom, like James Moore explains in his story.

"The cab driver didn’t understand that I am #DisorderedNotDrunk. So, he detained me and prevented me from getting into my car, then he rang the police."

Read James' story here

Ataxia can disrupt someone’s true intention, as Beryl explains.

“I was the one who ended up hurt from the unkind assumptions made by my neighbour, due to my ataxia." Read Beryl's story here

 

Ataxia can disrupt someone’s trust, Martin tells us.

“So, I told her I had ataxia and she fully sympathised, but said embarrassingly that she still had to breathalyse me.” Read Martin's story here

Ataxia can disrupt the real picture, like Jason has experienced. 

“People with ataxia are generally treated as though their problems lie in the bottom of a bottle, instead of in their brains.” Read Jason's story here

 

Ataxia can disrupt someone’s confidence and ultimately, their life, read it here from Tara.

“It would be 5-6 years before I regained the confidence to leave my home again, and my ability to walk was gone.” Read Tara's story here

 

Ataxia can disrupt someone’s safety, just like Laura's was.

But when I got to the taxi, the driver accused me of being drunk and said he wouldn't take me, despite the group of people arguing my case.” 

Read Laura's story here

 

"A little while later, I went outside for a moment and while out there, I was grabbed by the arm and taken down the steps of the library."

Read Joe's story here

But we can improve the understanding of ataxia and combat these misconceptions, like Derek does.

“I explained my condition and afterwards she was embarrassed beyond belief.”

Read Derek's story here

Join us this International Ataxia Awareness Day on the 25 September. #DisorderedNotDrunk