Offering your healthcare professional further information about ataxia can ensure better care for you and your community

How we help

We can supply you with:

  • a print copy of our Medical Guidelines: towards best clinical practice in managing the ataxiasThis is an up-to-date and comprehensive document that covers all known symptoms of the ataxias and how they're best managed by a healthcare professional. You can also send them this link (https://www.ataxia.org.uk/Pages/Category/medical-guidelines) to our digital copy of the Guidelines, so they can look up specifics online. 
  • A Summary leaflet for GPs, taking the highlights of the Medical Guidelines in a small, bite-sized document that works well as an introduction to the condition. 

If you'd like a copy of any of the above documents in print format, please email us at [email protected] or call the office to request some materials on 020 7582 1444.

We also have a medical registry, for any healthcare professional interested in keeping up to date with how best to manage ataxia for their patients. We recommend asking your healthcare professional to sign up. The e-newsletters are quarterly, and offer the latest information. 

How you can help

Some of our Friends attend educational training events for doctors and other healthcare professionals as a case study to test the students' approaches to diagnoses. This is a powerful way to offer your time towards improving future rates of diagnosis and recognition of ataxia among healthcare professionals. If you'd be interested in this, have a chat with your GP/neurologist and see what opportunities are available locally. 

We also run Ataxia Training Days in regions across the UK, usually as part of a wider awareness campaign. We invite healthcare professionals from across various fields of expertise, and very much value patients with ataxia sharing their story with delegates, helping them understand the impact of ataxia on daily life. We welcome our Ataxia Ambassadors to apply, but anyone who has a strength in public speaking would be welcome to present their story.