Ataxia UK is a medical research charity with a clear objective: to provide funds and support to ataxia research with the goal of developing treatments and cures for the ataxias.

There are many types of ataxia, including conditions such as Friedreich’s ataxia (FA) and the spinocerebellar ataxias (SCA). Our research strategy is to support projects on many different types of ataxia.

We believe in working collaboratively, to accelerate progress in research and raise the prospects for a cure. We will continue to work with researchers, patient groups and pharmaceutical companies around the world and to foster new relationships wherever there is great promise.

Working closely and engaging with people with ataxia is also a priority of the charity. See Ataxia UK’s Research Strategy, Annual Report 2016-17 and our research impact leaflet, detailing our achievements and the impact Ataxia UK-funded research has made in the field. 

Ataxia UK research activities

Funding research in the UK and internationally

Ataxia UK has been funding a range of projects over the years, from basic science research (such as understanding the disease mechanism of a particular type of ataxia) to more applied research including pilot trials of therapeutic interventions. See details of projects currently funded.

Many projects are jointly funded with other organisations. Being a member of the Association of Medical Research Charities, Ataxia UK follows best practice in managing the research programme. 

Facilitating the recruitment of participants for research studies

Ataxia UK supports research by helping to recruit participants to scientific research and healthcare studies. Go to our page Taking part in research to find out about opportunities to get involved in projects.  We also welcome enquiries from researchers needing support ([email protected])

Information sharing

Information exchange is imperative for research progress thus this is actively encouraged and facilitated. Information on ataxia research and developments is provided to people affected by ataxia in lay terms via Ataxia UK’s magazine, e-newsletters and conferences. You can sign up to receive  our researcher's registry for updates for more detailed, research-specific updates.

Research conferences 

Ataxia UK works jointly with other ataxia charities in organising international conferences and meetings. The next large conference for researchers is 27-30st September 2017.

Fostering collaborations and working together

Ataxia has been working closely with many ataxia charities worldwide, as well as other charitable organisations and pharmaceutical companies, as we believe that by working in partnership we will get the best results. Partnerships have involved jointly funded projects, co-hosting conferences, coordination of information exchange and new initiatives to drive research forward. Read our research partners page to see who we work with.

Encouraging involvement in ataxia research

It is important to build capacity and ensure more researchers are attracted to ataxia research. In addition we are working with pharmaceutical companies to encourage their involvement in ataxia research. You can also look to Ataxia UK to apply for a grant for your research.

For any research enquiries contact: [email protected]

Ataxia UK statement on animal testing

Ataxia UK is a medical research charity and as such we do not perform research involving animals ourselves, although we do fund research projects involving animals. We are members of the Association of Medical Research Charities and we agree with their policy on the use of animals in medical research. They have produced an information leaflet explaining why we believe research using animals is important.

                                                              

Ataxia UK recently passed the peer review audit by the Association of Medical Research Charities, of which we are a member.