Raising money to find a cure.
Some residents & Friends of 7r Towers, @eric_hallerberg ,will be running the #royalparkshalf Sunday. If you see us, give us some gentle words of encouragement. We'll need it. If you feel a little generous, @AtaxiaUK I'm sure would welcome any 'donations of encourage'!
Not many people have heard of Ataxia, not even Doctors. Ataxia UK are the only organisation working for those who have Ataxia, by raising awareness & raising funds for research....
As a sufferer of Ataxia, the day I was diagnosed my life felt like it had darkened forever, if I can help to raise funding to aid research to find a possible treatment/cure.
Genetic illness and funding for research, tends not to have a voice when it comes to the Government and its funding of genetic research. Charities such as Ataxia UK, are struggling to support the research that is so clearly needed. Ataxia UK are doing a wonderful job. Every penny made through fundraising, will be another penny 'of hope', and help keep a 'life-line' , out there for those suffering this 'life-limiting' cruel illness.
Inspired by Rebecca and Fraser Kennedy
To support vital research in to finding a cure for Friedreich's Ataxia
Ataxia has ravaged my dad's side of the family for years, however we had no idea the cause because coming from a small Caribbean island getting expert medical advice would cost far too much. However, now my dad, older brother and myself have been successfully diagnosed. I want to be a part of the solution instead of wallowing in the condition!
Jenny and Lilian are running a half marathon to raise money for Ataxia UK in aid of our friend Tallulah.
Inspired by the wonderful Bernadette and Andrew Downie.
£1200 funds a junior researcher for a month
Earlier this year my Dad died after a long illness due to a neurological disorder, or ataxia. He got excellent support from carers and the ataxia community in Ireland. I'm running 100km in one day to raise money for this community to help other sufferers.
I am lucky to be able to run a half marathon, but for those who have the Ataxia disease, like my Dad and my uncles, they are not so fortunate. I am running the Bath half on 4th March, please donate to help us learn more about this rare disease raise awareness.
Ataxia is a condition which I only came to know about last year. I am really keen to support the charity as someone in my family has been recently diagnosed with this disease.
Fundraising for Ataxia UK: supporting people affected by ataxia and finding a cure
I will be having a sponsored haircut on 3rd March to raise money for Ataxia UK on behalf of my cousin who suffers from Friedreich's Ataxia. She is getting married shortly before then and I will be her maid of honour - she wanted me to keep my long hair for the wedding. The actual hair will be donated to the Little Princess Trust.
I want to raise more awareness for ataxia.
I'm running the Manchester marathon for friedreich's ataxia charity as my nephew Oliver Franks has been recently diagnose with this condition.
Someone within the company I am working for has a loved one living with ataxia. Therefore, I have enrolled myself to run the Manchester Marathon 2018.