Inspired by Rebecca and Fraser Kennedy
To support vital research in to finding a cure for Friedreich's Ataxia
Ataxia has ravaged my dad's side of the family for years, however we had no idea the cause because coming from a small Caribbean island getting expert medical advice would cost far too much. However, now my dad, older brother and myself have been successfully diagnosed. I want to be a part of the solution instead of wallowing in the condition!
Jenny and Lilian are running a half marathon to raise money for Ataxia UK in aid of our friend Tallulah.
£1200 funds a junior researcher for a month
Earlier this year my Dad died after a long illness due to a neurological disorder, or ataxia. He got excellent support from carers and the ataxia community in Ireland. I'm running 100km in one day to raise money for this community to help other sufferers.
To help find a cure for Friedreich’s Ataxia.
I am lucky to be able to run a half marathon, but for those who have the Ataxia disease, like my Dad and my uncles, they are not so fortunate. I am running the Bath half on 4th March, please donate to help us learn more about this rare disease raise awareness.
Ataxia is a condition which I only came to know about last year. I am really keen to support the charity as someone in my family has been recently diagnosed with this disease.
Fundraising for Ataxia UK: supporting people affected by ataxia and finding a cure
I will be having a sponsored haircut on 3rd March to raise money for Ataxia UK on behalf of my cousin who suffers from Friedreich's Ataxia. She is getting married shortly before then and I will be her maid of honour - she wanted me to keep my long hair for the wedding. The actual hair will be donated to the Little Princess Trust.
I want to raise more awareness for Ataxia.
I'm running the Manchester marathon for friedreich's ataxia charity as my nephew Oliver Franks has been recently diagnose with this condition.
Someone within the company I am working for has a loved one living with ataxia. Therefore, I have enrolled myself to run the Manchester Marathon 2018.
PLEASE HELP RAISE MONEY TO FUND RESEARCH INTO THIS DEVASTATING DISEASE -
Hey there!I am raising money for a charity based in London that helps people suffering from a neurological condition called Ataxia. On the 25th November of this year I will be challenging myself by skydiving for the first time from over 10, 000ft. Ataxia has impacted my family greatly, with my grandmother, dad, aunt, uncle and cousin all being diagnosed with the condition Ataxia SCA 3. My siblings and I have a 50/50 chance of having been passed on the condition from my dad. T
September 25th is International Ataxia Awareness Day. Having our inspirational member Darran Stanesby who suffers with the incurable disease Cerebral Ataxia with no NHS funded research due to the rarity of this condition we are 100% behind the Charity,with our Raise the Bar event.
On September 10th I will be taken part in the Great North Run half marathon (my first ever! Yikes!)
I'm participating in the "Pedal For Scotland Classic Challenge" and I'm using this to help the charity that provided invaluable support to a child of close friends.