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Healthcare research

Take part in this survey to tell us about your experience either within a Specialist Ataxia Centre or through primary, secondary and tertiary centres of care.

Ataxia UK NW London Branch Fundraising Supper Quiz 2019

Event by invitation only.

New initiative for rare diseases launched by Finnish pharmaceutical company

The 'New Modalities Ecosystem’, launched in 2018 by the Finnish pharmaceutical company Orion, aims to exploit Finnish expertise to deliver new treatments and technologies for rare diseases.

Effects of physiotherapy in patients with spinocerebellar ataxia type 7

A recent study investigating the effect of investigating the effect of physiotherapy on patients with spinocerebellar ataxia type 7 (SCA7) has found that it to significantly improve symptoms.