Although there is currently no cure for ataxia, there are a number of treatments available to help with the symptoms people experience. We recommend that people with progressive ataxia be seen regularly by a neurologist (at least annually) who can monitor the condition and provide help with any new problems that may have emerged. It also gives you a chance to benefit from any new medical advances. Ataxia UK supports the opening of Specialist Ataxia Centres around the UK. Based within the Centres are specialist neurologists and nurses who have expertise in ataxia investigation and symptom control.

Physiotherapy and exercise such as swimming may prevent loss of strength and preserve mobility. A speech and language therapist can help with problems involving speaking, swallowing, coughing, choking and, if needed, communication aids, such as some computer programs. An occupational therapist can also be helpful, for example with home adaptations, teaching strategies for daily activities or wheelchair assessments.

Many people with ataxia say it really helps them to meet other people with the condition and realise they are not alone in what they’re going through. Ataxia UK’s network of local Branches and support groups helps by running events, trips out, fun activities, and providing the opportunity to meet up and socialise. Others keep in touch with one another through our online health community forum, Health Unlocked, or virtual support group.