Welfare, Benefits and Daily Living

Citizens Advice Bureau

The Citizens Advice Bureau (CAB) website contains free, confidential information and advice to assist people with money, legal, consumer and other problems.

Turn 2 Us

Turn2Us is a national charity that helps people in financial hardship gain access to welfare benefits, charitable grants and support services. You can also get help in finding an adviser for specific information.


will help when applying for PIP or ESA. Click on the following links to get help for ESA: www.esa-assessment.support/ and PIP: www.pip-assessment.support/

The National Key Scheme (NKS)

offers disabled people independent access to locked public toilets around the UK, using a Radar NKS key. www.radar-shop.org.uk


is an independent consumer research charity providing information for older and disabled people on products such as family cars, mobility scooters and washing machines. www.rica.org.uk

Euan's Guide

Euan's Guide is a highly-regarded and up-to-date accessibility guide to the accessible UK, including accommodation and things to do. You can search for accessible areas, and read and write reviews of said areas, on the Euan's Guide website. You can also follow Euan's Guide on Twitter (www.twitter.com/EuansGuide).


is a website that provides detailed information about access to local healthcare, education, jobs, services and places of interest. www.disabledgo.com

Family and Children

Contact a Family

is a UK charity that campaigns to improve the circumstances of families with disabled children and for their right to be included and take part in society. www.cafamily.org.uk  

The Council for Disabled Children

brings together a range of organisations including the Transition Information Network which aims to improve disabled young people’s transition into adulthood.


Counselling and Mental Health

The Counselling Directory

is a comprehensive database of UK counsellors and psychotherapists, with information on their training and experience, fees and contact information. www.counselling-directory.org.uk 

Alcohol Concern

Living with a rare and progressive condition can be difficult to come to terms with; Alcohol Concern is a national charity that works to help reduce the problems that can be caused by alcohol and support people affected by it: www.alcoholconcern.org.uk/Pages/Category/help-and-support

Genetic and Neurological organisations

Genetic Alliance UK

is a national charity which aims to improve the lives of parents and families affected by all different types of genetic conditions. They have a vast selection of information resources for both children and adults affected by a genetic disorder. www.geneticalliance.org.uk

The Neurological Alliance 

are the only collective voice for 80 organisations working together to make life better for millions of people in England with a neurological condition (of which Ataxia UK are a member). www.neural.org.uk

The Brain Charity

The Brain Charity offers national support for all neurological conditions.  The website offers practical help and information, A-Z of conditions, a newsletter, Q&A forum, news and events: www.thebraincharity.org.uk

St Mary's Hospital, Isle of Wight

The St Mary's Hospital on the Isle of Wight run an 'Island Neurological Network', and is also connected to the Hampshire Neurological Alliance. The service is voluntarily run, but offers a lot of support to some of our Friends living in both the Isle of Wight and Hampshire.  Read more about their organisation here: www.facebook.com/IslandNeurologicalNetwork/ 


Carers Trust

Visit Carers Trust to access advice on different aspects of caring, including self-care, benefits and work assessments, legal rights and accessing support. Caters to young and adult carers. https://carers.org/

Hobbies and interests


is a disability-led arts organisation that develops opportunities for disabled artists, and works to improve access to arts and culture for disabled people. www.shapearts.org.uk

Disability Arts Online 

Take a look on DAO to find organisations, artists or film that are accessibility-friendly www.disabilityartsonline.org.uk/home