Many people with inherited types of ataxia have children. Some people develop ataxia after they have had children, and others may do so while knowing that they have ataxia. Every person with ataxia will have a different view on whether to have children. It is always a deeply personal decision.

If someone has a known recessively inherited ataxia (e.g. Friedreich’s ataxia) and they wish to start a family, it is possible for their partner to be tested to see if they are likely to be a carrier of the same type of ataxia. If he/she is not a carrier, then their child is highly unlikely to develop that type of ataxia.

See also the leaflet: Ataxia: a parents' guide

If you're a parent of someone with ataxia, why not request to join our closed Parents Facebook group to access specialist peer advice and support?