Jade's Story

Latest

Easter office hours

Closures over the bank holiday weekend.
Real-time audio-biofeedback (ABF) shown to improve stability in degenerative cerebellar ataxia

A group of researchers from Germany have found that real-time audio bio-feedback improves stability in degenerative cerebellar ataxia.
Preliminary evidence suggests that speech treatment could improve difficulty speaking in ARSACS

A recently published study has demonstrated that intensive home-based speech therapy can improve dysarthria (difficulty speaking) in autosomal recessive spastic ataxia Charlevoix-Saguenay (ARSACS).
Channel to Channel Ride for Ataxia UK

I'm fundraising for Ataxia UK as my son has Friedreichs Ataxia and i want to help those who have this condition.

Support Groups for People with Ataxia

Hear about the role of an Ataxia UK Support Group, and see one in action.
Ataxia and my Career

Richard Brown tells us about his experiences with ataxia whilst in employment.
About Ataxia Centres

Professor Julie Greenfield (Head of Research at Ataxia UK) and Professor Marios Hadjivassiliou (Ataxia Specialist Neurologist at Royal Hallamshire Hospital, Sheffield) discuss what Specialist Ataxia Centres are, how to get a referral to one, and why they're different to general GPs and neurologists.
Living with Late-Onset cerebellar Ataxia

John Abbott shares his experience of obtaining his diagnosis for late-onset ataxia, and how it has affected him.
Caring as a Parent of Someone with Ataxia

Grace Kay shares her experience of how she copes as a parent or a child with ataxia.
Being Diagnosed With Ataxia When You're Young

Jonathan Kay shares his experience of coping with an ataxia diagnosis.
'Unfeeling'
Imagine

'Imagine': the story of Nathan and Jade, told through their eyes. A moving, yet heart-warming story of two courageous youngsters we were honoured to work with.