Jade's Story

Latest

Test appeal
Non-invasive eye exam found to predict disease severity in Friedreich’s ataxia

A study has found that a rapid, non-invasive eye exam could potentially be used as a tool for assessing Friedreich's ataxia patients and as a biomarker in clinical trials.
RareConnect Forum

Join the discussion of spinocerebellar ataxia type 29 and talk to/support other people affected by ataxia. This is separate to Ataxia UK's HealthUnlocked forum.
William Littleboy

Support Groups for People with Ataxia

Hear about the role of an Ataxia UK Support Group, and see one in action.
Ataxia and my Career

Richard Brown tells us about his experiences with ataxia whilst in employment.
About Ataxia Centres

Professor Julie Greenfield (Head of Research at Ataxia UK) and Professor Marios Hadjivassiliou (Ataxia Specialist Neurologist at Royal Hallamshire Hospital, Sheffield) discuss what Specialist Ataxia Centres are, how to get a referral to one, and why they're different to general GPs and neurologists.
Living with Late-Onset cerebellar Ataxia

John Abbott shares his experience of obtaining his diagnosis for late-onset ataxia, and how it has affected him.
Caring as a Parent of Someone with Ataxia

Grace Kay shares her experience of how she copes as a parent or a child with ataxia.
Being Diagnosed With Ataxia When You're Young

Jonathan Kay shares his experience of coping with an ataxia diagnosis.
'Unfeeling'
Imagine

'Imagine': the story of Nathan and Jade, told through their eyes. A moving, yet heart-warming story of two courageous youngsters we were honoured to work with.