Jade's Story

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HELP STOP FRIEDREICH'S ATAXIA NOW

PLEASE HELP RAISE MONEY TO FUND RESEARCH INTO THIS DEVASTATING DISEASE -
SKYDIVE FOR ATAXIA UK

Hey there!

I am raising money for a charity based in London that helps people suffering from a neurological condition called Ataxia. On the 25th November of this year I will be challenging myself by skydiving for the first time from over 10, 000ft.

Ataxia has impacted my family greatly, with my grandmother, dad, aunt, uncle and cousin all being diagnosed with the condition Ataxia SCA 3. My siblings and I have a 50/50 chance of having been passed on the condition from my dad. T
Greater Manchester Marathon

Support Ataxia UK for 26 miles!
Anytime Fitness Mansfield Raise the Bar for Ataxia

September 25th is International Ataxia Awareness Day. Having our inspirational member Darran Stanesby who suffers with the incurable disease Cerebral Ataxia with no NHS funded research due to the rarity of this condition we are 100% behind the Charity,
with our Raise the Bar event.

Support Groups for People with Ataxia

Patsy Riggs tells about the role of a support group and we pay a visit to a group in action!
Ataxia and my Career

Richard Brown tells us about his experiences with ataxia whilst in employment.
About Ataxia Centres

Professor Julie Greenfield (Head of Research at Ataxia UK) and Professor Marios Hadjivassiliou (Ataxia Specialist Neurologist at Royal Hallamshire Hospital, Sheffield) discuss what Specialist Ataxia Centres are, how to get a referral to one, and why they're different to general GPs and neurologists.
Living with Late-Onset cerebellar Ataxia

John Abbott shares his experience of obtaining his diagnosis for late-onset ataxia, and how it has affected him.
Caring as a Parent of Someone with Ataxia

Grace Kay shares her experience of how she copes as a parent or a child with ataxia.
Being Diagnosed With Ataxia When You're Young

Jonathan Kay shares his experience of coping with an ataxia diagnosis.
Millie Mae Revisited

Four years on, we revisit Millie Mae
'Unfeeling'
Imagine

'Imagine': the story of Nathan and Jade, told through their eyes. A moving, yet heart-warming story of two courageous youngsters we were honoured to work with.
Finding out you've got ataxia

Being diagnosed is never easy. But there is a range of services available to support you!