‘Patient care pathway’ survey

Ataxia UK is working with researchers at University College London and the European Brain Council to learn more about the healthcare experiences of patients with ataxia in the UK, whether at a Specialist Ataxia Centre or  through  primary, secondary and tertiary centres of care.

We will gather this information through an online survey aimed at people with ataxia who are aged 16 and above (the survey can also be completed by someone else on their behalf). The data will also help us identify what works best for patients with ataxia, and to make policy recommendations for improvements in healthcare.

The survey can be found online here, further information about the study is here, and the survey definitions are found here. Alternatively, we can provide a paper version. Please contact Julie Greenfield, Ataxia UK’s Head of Research for any questions or further information.