‘I would like to say that the nicotinamide trials I have been involved with have so far been encouraging and I feel proud to know that some day the quality of life of those with Ataxia may be improved.’ Patrick

Trial in London - Testing the effect of a drug called Omaveloxolone (also see trial website).

Trial in Bristol - Testing the effect of a drug called 'granulocyte colony stimulating factor' in FA (also see here for more information)

Effectiveness of a speech therapy technique called LSVT in improving communication in people with Friedreich’s ataxia

Developing new ways to measure the effect of treatments in FA

Natural history study in Friedreich's ataxia (EFACTS)

Developing a new tool to measure how nerves are affected in FA - The researchers are particularly looking for people who have been diagnosed with FA in the past eight years.