Tony's wife, Deanna, has Cerebellar ataxia, and the pair were instrumental in starting up the North West London Branch. The Branch meet regularly and allows members to benefit from shared experiences of being affected by ataxia.  

Dr Kaye is also a former trustee of the Royal Photographic Society, an educational charity, aimed at promoting photography and image-making and to support photographers in realising their potential, irrespective of their level of knowledge, equipment or skills.

Prior to retirement, Tony was employed by Kodak as a senior research imaging scientist with European-wide responsibilities for product quality and development and technical liaison with marketing.