Ataxia Q & A: Cardiac disorders that occur in patients with Friedreich's ataxia

With Dr Antonis Pantazis, Consultant Cardiologist, Royal Brompton & Harefield NHS Foundation Trust, UK

Latest

Exicure to launch gene therapy programme in Friedreich’s ataxia

Exicure have announced Friedreich’s ataxia (FA) as the therapeutic indication for the company’s first neurology development programme for their gene therapy technology.
New clinical trial testing HIV treatment, Etravirine, as potential therapy for FA to begin this year in Italy

A research group in Italy will soon be launching a clinical trial in an effort to repurpose anti-viral drug Etravirine for use in FA.
Charity Fun Quiz Night - Long Eaton, Nottingham

Join the Dawnbreaker Rotary Club for a Quiz Night on 20 March and raise funds and awareness whilst having fun!
Ataxia Classic 2020

Register your interest to be part of our first ever, very own cycle taking place in Yorkshire on 27 September 2020!

Ataxia Q&A: Eye disorders that occur in patients with Friedreich’s ataxia

Q + A with Fion Bremner, Consultant Ophthalmic Surgeon University College Hospital, the National Hospital for Neurology & Neurosurgery and the Hospital for Tropical Diseases
Ataxia Q & A: Auditory disorders that occur in patients with Friedreich's ataxia and other ataxias

Q + A with Professor Doris-Eva Bamiou, Professor of Neuroaudiology, The Ear Institute, Faculty of Brain Sciences, University College London
Support Groups for People with Ataxia

Hear about the role of an Ataxia UK Support Group, and see one in action.
Ataxia and my Career

Richard Brown tells us about his experiences with ataxia whilst in employment.
About Ataxia Centres

Professor Julie Greenfield (Head of Research at Ataxia UK) and Professor Marios Hadjivassiliou (Ataxia Specialist Neurologist at Royal Hallamshire Hospital, Sheffield) discuss what Specialist Ataxia Centres are, how to get a referral to one, and why they're different to general GPs and neurologists.
Living with Late-Onset cerebellar Ataxia

John Abbott shares his experience of obtaining his diagnosis for late-onset ataxia, and how it has affected him.
Caring as a Parent of Someone with Ataxia

Grace Kay shares her experience of how she copes as a parent or a child with ataxia.
Being Diagnosed With Ataxia When You're Young

Jonathan Kay shares his experience of coping with an ataxia diagnosis.
'Unfeeling'
Imagine

'Imagine': the story of Nathan and Jade, told through their eyes. A moving, yet heart-warming story of two courageous youngsters we were honoured to work with.