The term ‘personal information’ applies to personal data, as is identified in Data Protection Law 2018. It means data:

(a) Relating to a living individual

(b) From which he or she can be identified (from the data alone or with other information that we hold are likely to hold).

It can include information such as your name, date of birth, email address, postal address, telephone number, IP address, credit/debit card details, and information relating to your health and personal circumstances.

Data protection law recognises that certain categories of personal information are more sensitive. These are known as 'special category data' and include information relating to health, race, ethnic origin, political opinions, religious beliefs, trade union membership, genetics, biometrics (where used for ID purposes), sex life and sexual orientation. Criminal offence data is also subject to extra safeguards.

When you join the Friend of Ataxia UK membership programme, we will usually ask you to provide information on the type of ataxia you have. This information will only be used to provide ataxia-specific health information; signpost you to a local neurologist or clinic, or for the purposes of our research programmes. These details are always stored securely.

You provide Ataxia UK with personal information when you:

  • Participate in a fundraising event
  • Sign up as a Friend of Ataxia UK
  • Make a donation with us
  • When you call the Ataxia UK Helpline
  • Apply for a job
  • Register onto our professional medical and health professionals registry
  • When you call our helpline
  • Submit a case story