The term ‘personal information’ applies to personal data, as is identified in Data Protection Law 2018. It means data:

(a) Relating to a living individual

(b) From which he or she can be identified (from the data alone or with other information that we hold are likely to hold).

It can include information such as your name, date of birth, email address, postal address, telephone number, IP address, credit/debit card details, and information relating to your health and personal circumstances.

Data protection law recognises that certain categories of personal information are more sensitive. These are known as 'special category data' and include information relating to health, race, ethnic origin, political opinions, religious beliefs, trade union membership, genetics, biometrics (where used for ID purposes), sex life and sexual orientation. Criminal offence data is also subject to extra safeguards.

When you join the Friend of Ataxia UK membership programme, we will usually ask you to provide information on the type of ataxia you have. This information will only be used to provide ataxia-specific health information; signpost you to a local neurologist or clinic, or for the purposes of our research programmes. These details are always stored securely.

You provide Ataxia UK with personal information when you:

 

Participate in a fundraising event

We will collect the following types of information:

  • Title
  • Name
  • Postal address
  • Email address
  • Telephone number
  • T-shirt size
  • Date of Birth
  • Bank details if there is a fee to enter the event

We use this information to:

  • Confirm your place
  • To send event information
  • To send you an Ataxia UK T-shirt if you requested one
  • To claim Gift Aid

We will share this information with:

HMRC if you consent to Gift Aid.

We rely on legitimate interest to process your information to enable you to take part in the event, and to send charitable communications to you by post or phone.

Sign up as a Friend of Ataxia UK

We will collect the following types of information:

  • Title
  • Name
  • Postal address
  • Email address
  • Telephone number
  • Date of birth
  • Bank details if making a donation
  • Health information

We use this information to:

  • To post you a free copy of the Ataxia UK Magazine and send the Ataxia UK e-Newsletter
  • To conduct anonymous medical surveys on ataxia
  • To claim Gift Aid

We will share this information with:

  • HMRC if you consent to Gift Aid.

We rely on consent to process your information to send you our free Ataxia UK Magazine and e-Newsletter. We rely on legitimate interests for marketing to you by post or phone, and consent for other types of marketing.

Make a donation with us

We will collect the following types of information:

  • Title
  • Name
  • Postal address
  • Bank details
  • Gift Aid submission (If UK Taxpayer)

If you choose to give it to us we also collect email, and phone/mobile number.

We use this information to:

  • Process your donation
  • Add you to our marketing lists so that we can inform you about other ways to get involved with us including other fundraising initiatives, volunteering and research opportunities.
  • To claim Gift Aid.

We rely on legitimate interest to process your information to enable you to donate.

We rely on legitimate interests for marketing to you by post or phone, and consent for other types of marketing.

HMRC are legally obliged to process your name address and tax status for Gift Aid. For high value donations we rely on legal obligation to conduct additional due diligence on donors to ensure compliance with money laundering law and to ensure that there are no reputational or ethical risks associated with the donor or the donation.

Apply for a job

We will collect the following types of information:

  • Name
  • Address
  • Email address
  • Telephone number
  • Eligibility to work in the UK
  • Your CV/ work experience
  • Emergency contact details
  • Bank details
  • Equal opportunities disclosure

We will use this information to:

  • Assess if you are suitable for the role,
  • Decide if we need to make reasonable adjustments for your interview,
  • To pay you if successful.
  • We collect details about race/ ethnicity, religion beliefs, sexual orientation for monitoring and inclusion and to enable us to identify trends. We keep this information separate from your application.

We initially rely on legitimate interest to process your information as a job candidate. We are legally obliged to process information about your right to work in the UK and we will take a copy of your passport as evidence of your right to work if we interview you. We are legally obliged to make reasonable adjustments for you if you have a disability.

Helpline

We collect the following types of information:

  • Name
  • Details about you are calling us
  • Postal address
  • Email address
  • Phone/mobile number

With your consent, we will also send you information that may be of help to you, such as our Ataxia UK information booklet, or notify you of other services in your area that could help you.

We will not share your information with anyone without your consent. We rely on your consent to provide us with information to enable us to advise you. If we feel we need to break confidentiality, we will rely on legal obligation and safeguarding law.

Register onto our professional medical and health professionals’ registry

We collect the following types of information:

  • Name
  • Country
  • Email address

We rely on consent to send you information by email.

Submit a case story

Some people provide us with information about themselves to be used as case studies for the Ataxia UK Magazine or website.  In such instances, we obtain your consent to use these.