As part of our online support network, we have created a blog just for you: the ataxia community. Here you'll find advice and information from experienced members of the charity; fundraising stories from our wonderful fundraisers; support, stories and reflections on living with ataxia, or information about hobbies / extra-curricular activities people with ataxia have enjoyed.

Click here to read 'Your Blog,' a blog written by our Friends and supporters.

If you want to share your story or advice with our community, then get in touch! It only contributes towards what advice is out there for people with ataxia, but makes a great opportunity for the writers out there to get published!

Send your submissions to Steph Marley at [email protected] to propose your topic, and she’ll send you a brief in return.

Our Friends' blogs

Many of our Friends also write their own blogs about ataxia. Check them out below!

Wendy's Is This the Wheel Life?

Wendy discusses her experiences in dealing with the public perceptions and societal limitations that impact her life with ataxia: "the reality of disability in modern Britain," including how to plan a wedding when you have ataxia. Great for: well-written prose and reflections on life as someone with ataxia.

Iain's Kilted Walker

Follow Iain as he walks ... pretty much everywhere around the world in his kilt! Iain has worked hard to get into every local newspaper he can along the way, raising awareness of his condition, and fundraising as he goes. Great for: fundraising inspiration and taking control.

Amanda's Boy Number Two and Me

Amanda is the mother of Sebastian, aged six, who has episodic ataxia. Her blog discusses her personal experiences in caring for a child who has additional needs. Great for: parents of children with ataxia.

Arran's Eleanor Creative Blog

Read Arran's professional blog about running her own Creative Marketing company after receiving her SCA6 diagnosis. Great for: people with ataxia wanting to read about employment, and taking control.