The Ataxia UK Annual Conference is our biggest event of the year.

Over 200 delegates from across the UK come together to hear the latest updates about ataxia research and care; meet with neurologists and specialist professionals; discuss the condition in workshops, talks and seminars; access information, support and advice; socialise with friends, and enjoy a dinner and a dance!

bookings for 2019's conference will open on this page in the summer.

You can download our 2018 conference slides and see what we all got up to below.

Booking one of our conferences

Our Annual Conference runs from Friday afternoon through to Saturday evening, usually in early October. We hold introductory seminars on ataxia for the newly diagnosed on Friday and from Saturday, our main conference hosts specialist neurologists and speakers from across the world to offer information, advice and support on ataxia, and give the latest updates in ataxia research.

Our Friends are then treated to a three-course dinner and entertainment, while their children take a fun day trip out. Our younger Friends are welcome to attend the 16-30's Chill Out, where they can hear advice specific to their age range and have the chance to meet people their age who understand their condition, concerns and challenges.


Each year, help with the cost of the Conference is available for people who have ataxia and receive benefits. Up to 50% of the cost of travel, accommodation and delegate registration fees (including for a carer if one is required) can be paid against receipts. There are only a limited number of bursaries which are allocated on a first come first serve basis. We can only award one bursary per person, per calendar year.

More information on how to apply for a bursary will be published closer to the time of the conference.

Accommodation and adapted rooms

We hold our conferences in hotels that have as many adapted rooms as possible. This limits where we can hold our conferences across the country, as so few hotels have enough accommodation for people with adaptive needs. These adapted rooms are therefore limited, and we offer them on a first come first serve basis.


Bookings open for the Annual Conference in the summer, and as well as attending talks and events, delegates can choose between afternoon workshops, enjoy a massage and let their hair down with 200 friends from across the UK.

If you sign up to become a Friend of Ataxia UK, you'll be told first when bookings open, and secure early-bird tickets to reduce your cost. Sign up to the charity today to stay in touch about the conference, and much more!

The Annual Conference 2018

The entire staff of the Sheffield Specialist Ataxia Centre were in attendance last year, along with James Moore, actor from Emmerdale with ataxic cerebral palsy; the CEO from the NeuroMuscular Centre; after-dinner entertainment from our very own Jim Bull, and breakouts on physiotherapy, fatigue and benefits.

We celebrated some awardees who have made an enormous difference to ataxia awareness, fundraising and research over the past year, and enjoyed workshops for physiotherapy, fatigue management advice, ataxia awareness and welfare support.

Please click here to download the Annual Conference agenda for 2018 in PDF format.

Annual Conference 2018 Slides

Welcome to the Conference! Explore the themes of 2018's conference: 'Forward with Hope'

Sue Millman, CEO of Ataxia UK - Forward with Hope Updates on future projections for the charity, and our Strategic Plan for 2017-2020

William Littleboy, Friend of Ataxia UK - It Works for Me Hear from William Littleboy about how he's coped with his late-onset diagnosis of ataxia, and how its affected his career.

The Neuromuscular Centre An introduction to a unique centre for neuromusclar conditions, one of its kind in the UK

Richard Brown, Trustee of Ataxia UK - It Works for Me Richard Brown discusses being a parent with ataxia, and the decisions he's made throughout his life

Ataxia Fractures Lives Exploring the successes of raising awareness over the past two years, and what we hope to achieve moving forward

Research Updates for Friedreich's Ataxia Hearing from our Research department about clinical trials and the latest research progress for FA

Research Updates for Cerebellar Ataxia Hearing from our Research department about clinical trials and the latest research progress for CA

Meet the Ataxia Ambassadors! This year we trialled our Ambassadors Project with four individuals, who told delegates all about their experiences at Naidex in April 2018. We also celebrate those who are already ambassadors for the charity, and look forward to 2019's launch of the Ambassadors Project

Branches and Support Groups Award Celebrating the wonderful work of this year's winners of the Branches and Support Groups award: the South West Branch!

James Moore, Emmerdale Actor - It Works for Me Paul Coia interviews James about succeeding in acting regardless of having ataxic cerebral palsy

Would I Lie to You? Fundraiser Ataxia UK Conference Co-ordinator Mike Garrett and Community Fundraiser Rebecca Holt join forces for our fun fundraiser, Would I Lie To You?

Cup and Shield Awards Cheer for our awardees: someone with ataxia who's made the biggest impact this year to the charity's goals, and someone without ataxia who's made the biggest impact for the charity's goals

Dr Harriet Bonney, Chairman of Ataxia UK - Review of the Day A roundup of the day with our chairman, Dr Harriet Bonney and Paul Coia

16-30's Chill Out

The 16-30's Chill Out ran throughout the morning and early afternoon on Saturday, offering a blend of talks, advice-in-practice workshops and opportunities to socialise and ‘Chill Out!’ We heard from James Moore of Emmerdale; Alison Halls about the Mark Dower Trust,  and Malena Hallahan, a specialist in therapy and counselling for people with genetic disorders. 

Please click here to download the 16-30's Chill Out agenda for 2018 in PDF format.

As per below, tickets will not be on sale until the summer. Check back, or sign up to Join Ataxia UK and secure yourself early-bird rates!

Booking for this event is now closed. Thank you for your interest, and we hope to see you at next year's event. 

We also run events throughout the year on a regional basis; get in touch with us at [email protected] to enquire about any events happening near you.