The Ataxia UK Annual Conference is our biggest event of the year

Over 200 delegates from across the UK come together to hear the latest updates about ataxia research and care; meet with neurologists and specialist professionals; discuss the condition in workshops, talks and seminars; access information, support and advice; socialise with friends, and enjoy a dinner and a dance!

Annual Conference 2019: Making Connections

Our Annual Conference runs from 11.30am, Friday 4 October through to Saturday evening at the Radisson Blu, Waltham Close, Stansted, CM24 1PP. Read about what's in store below!

Ticket prices

Ticket type Early Bird (til 16/09) Regular rates (after 16/09)
All About Ataxia (Friday 4 October) 25 28
Friday Night Buffet 16 19
Under 12's Friday Night Buffet Free Free
Day Delegate with ataxia (Saturday 5 October) 36 40
Day Delegate without ataxia (Saturday 5 October) 39 43
Under 12's Children's Trip (Saturday 5 October) Free Free
Saturday Night Dinner and Entertainment 35 39
Under 12's Saturday Dinner and Entertainment 16 19

Bursaries

Each year, help with the cost of the conference is available for people who have ataxia and receive benefits. Up to 50% of the cost of travel, accommodation and delegate registration fees (including for a carer if one is required) can be paid against receipts. There are only a limited number of bursaries which are allocated on a first come first serve basis.

We can only award one bursary per person, per calendar year.

Please click here to fill out a bursary form, or call the office to request a paper form be sent to you (020 7582 1444).

Please note the bursary applications are almost full and so we encourage you to get in touch quickly if you'd like to apply for one. 

Click here to apply for a bursary 

Accommodation and adapted rooms

We hold our conferences in hotels that have as many adapted rooms as possible. This limits where we can hold our conferences across the country, as so few hotels have enough accommodation for people with adaptive needs. 

Unfortunately, all of the adapted rooms have been reserved and allocated. If you would like to be added to the cancellation list, please email Mike [email protected]. Alternatively, here is a list of nearby hotels with adapted rooms that you may want to call. All parking is free at the hotel, whether overnight or just for the day.

Delegates wanting overnight non-adapted accommodation must call the hotel on 01279 661 012 and quote ‘Ataxia UK’ for a discount before 16 September. Prices include breakfast and VAT.

Accommodation costs

Room type Cost
Single Occupancy £81
Double occupancy £91
Family rooms £130
Parking (day and overnight) free

What's in store?

We've got a great range of events lined up, from advice to accessing financial support and adaptive equipment, to mental health and music therapy. (Some items may be subject to change.)

 

 Friday Agenda

 

11.30-17.00

All About Ataxia

(separate booking required)

Join Ataxia UK Trustee Richard Brown and Ataxia Ambassador Gemma Fish as they present information videos made by Ataxia UK with Sheffield Ataxia Centre explaining the impact of ataxia.

16.30-18.30

Registration

18.30

FA Research Update

19.00

CA Research Update

19.45

Buffet (requires separate booking)

 

Saturday Agenda

 

8.30

Registration opens

9.30

Welcome and Housekeeping

Paul Coia

9.40

Ataxia UK update

Sue Millman

10.00

Accessing the Motability car scheme  

Lesley Bysouth, Head of Communications, Motability

10.10

Only Connect: Disability, Friendship and Community

Prof Tom Shakespeare

10.25

It works for me: Meeting Online

Dan Pettitt & Becky Henley

10.35

Independence through Shared Ownership

Mariana Senior, Advance Housing & Support

10.45

Managing your Mental Wellbeing

Malena Hallahan, Physical Health Psychology therapist

10.55

Break

11.15

Separate Research updates, lunch and Doctor’s Q&A for CA and FA delegates

11.15-12.00

FA Doctor’s Q&A

11.15-11.45 CA Research updates

12.00-13.15

FA Lunch

11.145-12.30 CA Doctor’s Q&A

13.30-14.00

FA research update

12.30-14.15 CA Lunch

14.15

Breakouts

16-30s spin off

On Saturday morning from 9.30 up until lunch at 12.00pm, there will be a stand alone conference for our 16-30s delegates on the topics of intimacy and relationships. You'll also hear from Alison Halls and the opportunities to access financial aid from the Mark Dower Trust! Thereafter, 16-30 delegates can chill out together in the afternoon, or join the breakouts with the rest of the Annual Conference delegates.  

It's an informal conference, where delegates are welcome to come and go when they like. Many of our 16-30s community have made strong friendships and bonds with one another over the years, so why not come along? When making your ticket purchase below, just tick the box that asks if you'd like to attend the 16-30s conference! 

 

 Breakouts

 

A

Own your own home!

Mariana Senior, Home Ownership Manager, Advance Housing & Support. Advance has developed a unique shared ownership scheme for people on benefits whose family or friends are able to give them just £15,000 to get them started. 

B

Managing gluten ataxia

Dr Heidi Urwin, Research Manager Coeliac UK. Heidi will share Coeliac UK's many years’ experience in helping people manage gluten free diet, and the handy app they have developed for your phone.

C

Yoga

Yoga can improve flexibility, strength, balance, and stamina. It can even be done from a wheelchair. Come and learn how.

D

FA Nicotinamide trial

Prof Paola Giunti & Dr Julie Greenfield explain what engaging in the forthcoming Nicotinamide Trial for FA will mean for participants

E

Benefits and Grants

Carlos Hagi is a CAB Benefits Advisor who also works independently. Come to the lesson to learn what you might be entitled to and how to claim it.

F

Neuro Physio for people with ataxia

Use it or lose it, is the mantra among many people with ataxia. Come and learn come exercises to keep you moving.

G

Managing your Mental Wellbeing

What mental health services are out there for people with rare conditions and chronic illnesses? Physical Health Psychology therapist Malena Hallahan chats about what can help you, both on the NHS and in private practices

H

Music therapy

North West London Branch have recommended this as a breakout in which everybody can get involved.

15.15

Break

15.35

It Works for Me: Shane Batby, The Ataxian Entrepreneur

Shane Batby & Hardeep Raj

16.00

Challenging traditional images of disability

Dan White, Cartoonist, creator of Cindy and Biscuit nominated for Best Children’s Comic British Comic Awards

16.15

Heads & Tails

Mike Garrett

16.25

Awards

Best Branch/Support Group 2019; Anne Ford Cup & Ernie Heath Shield

16.40

Review of the Day

Paul Coia and Harriet Bonney

17.00

Close

 

 Evening agenda

 

17.30-18.30

Branch and Support Group meeting

Sue Millman

19.15

Assemble for dinner

20.45

Evening entertainment

Steve Hewlett, ventriloquist with his friend, Arthur Lager

Interested?

Bookings are now open for the Annual Conference, and as well as attending talks and events, delegates can choose between afternoon workshops, enjoy a massage and let their hair down with 200 friends from across the UK.

If you have a baby and require a crèche in order to attend, please let us know. If we have enough responses this is something we will provide to support you and your members in being able to attend. Email [email protected] to let us know.

Book your tickets below now!

Book a place

Ticket Quantity Price

All About Ataxia - Friday

Sold out

Friday Buffet

Decrease Increase £16.00

Under 12's Friday Buffet

Decrease Increase £0.00

Day Delegate with ataxia - Saturday

Decrease Increase £36.00

Day delegate without ataxia - Saturday

Decrease Increase £39.00

Children under 12 - Saturday

Decrease Increase £0.00

Dinner and entertainment - Saturday

Decrease Increase £35.00

Under 12's dinner and entertainment - Saturday

Decrease Increase £16.00