Information seminars for people with a new diagnosis 

10.30am – 1.00pm 6 and 7 October 2020

This event is now full, but we will fill any spaces that become free through people dropping out, and also schedule another session giving people on the waiting list top priority. Please email [email protected] to join the waiting list.

Do you have a recent diagnosis? Or do you simply want to know more about ataxia? Do you want to understand more about how ataxia affects someone you know?

All About Ataxia seminars aim to give people who have a relatively recent diagnosis information about ataxia, although we know that people who have been diagnosed much longer have also found them useful. The seminars will take place over Zoom. Information about how to log on will be sent out nearer the time.

They give anyone affected by ataxia (patients, carers/family members) information about the clinical and practical implications of living with ataxia. They explain what is known about ataxia, how it may progress, and what can be done to mitigate its effects.

To make sure that the clinical information we give is absolutely accurate the sessions feature videos made in collaboration with the neurologists, nurses and therapists associated with the Sheffield Accredited Specialist Ataxia Centre looking at all aspects of ataxia.

The programme will be facilitated by four people with diagnoses of ataxia who have been trained to deliver the programme: Richard Brown, Gemma Fish and Dr Harriet Bonney (all current or former Trustees of Ataxia UK) and Shana De Figueiredo Scholtz (InControl Project Officer). They will share their life experiences, and offer tips and coping strategies.

Between them they have over 60 years’ experience of living with an ataxia diagnosis! Although they all have different ataxias, backgrounds, ages and circumstances, they are all proof that a diagnosis of ataxia doesn’t mean the end of ambition or achievements in life.

We have redesigned the format of All About Ataxia to enable it to be online and split it over two half days. There will be lots of opportunities to ask questions, and share experiences in small facilitated groups with other participants.

Places are limited, so please book yours below!

Sorry, this event is now sold out.