Jo-Jo's Journey: moving forward

"Children meeting Jo-Jo for the first time are wary, they just don’t seem to know how to play with her. Her walking frame is a quite literally a barrier to intimacy. They don’t want to hold her hand at a party."Read more

Our children's stories

These are the children you're helping this Christmas by donating to The Big Give: one day left.Read more

Judged and jaded: our family's story

"Her school thought we were making it up; they thought I'd fabricated her ataxia. They put Jade on the child protection register."Read more

Better care for Kayden: our son's story

"Nothing could prepare me for what I was about to hear: “he's lucky to have even lived past two years.”Read more

Praying for the Future: Tallulah's story

"There was no one to tell me how I should handle all this, no one who could point me in the right direction, no one to teach me how to manage my symptoms."Read more

Support for Seb: our son's story

"A Specialist Ataxia Centre for children could help us find treatments that are effective now. Seb could be well; could develop; could enjoy his childhood, without the barriers that ataxia brings."Read more

Congratulations, me! Beka's Story

"I don’t even feel like I had a childhood. I mean, I still grew older but it seemed the older I got, the worse I got. Symptoms. Hospital appointments. Diagnosis. More, and worse, symptoms. Hospital appointments."Read more

Fashioning his dreams: Joe's Story

Jordan Jervis has spinocerebellar ataxia type 1. But this hasn’t stopped him pursuing his dream of becoming a clothing designer.Read more

The Lowes Down Under: David's story

David Lowe was awarded the Jerry Farr Travel Fellowship in 2016 that allowed him and his wife, Glenys, to visit Australia.Read more

Forever Yours: Jane's Story

Alan Maxwell tells us about his late wife, Jane, and her achievement in putting together her autobiography on living with ataxia, 'Forever Yours.'Read more

The Diagnosis

Deanna tells us about receiving her Friedreich's ataxia diagnosis, humorously listing the pros and cons of having the condition, and how her attitude towards life has changed since.Read more

Bex and the Exeter campaign

The Exeter Campaign: Meet Bex, the face of the Exeter campaign. Bex has long been involved with the Ataxia UK support network, starting her own Branch of the charity in Exeter eleven years ago.Read more

Phil and the Exeter campaign

The Exeter Campaign: Phil has Episodic ataxia, which can attack at any time without warning. The unpredictability of his condition has limited what he's able to do for work as well as pleasure.Read more

Beka and the Exeter campaign

The Exeter Campaign: Beka is 15 years old, and has Friedreich's ataxia. She was once an award-winning horse rider, but can no longer ride. This is her story.Read more

Former Lord Mayor of Exeter, Rachel Lyons

The Exeter Campaign: Rachel Lyons, Lord Mayor of Exeter 2013-14, was instrumental in helping Ataxia UK and the Exeter Branch to fund an awareness campaign by choosing us as her charity of the year.Read more

Seeing the world: Nigel's story

Nigel Davis was diagnosed with idiopathic spino-cerebellar ataxia (SCA with an unknown cause) at 17. He was able to manage his condition for some time, but after teaching for 19 years, he was forced to retire.Read more

Driving with ataxia: Austin's Story

Austin Fredericks was diagnosed with SCA in 2011. He's a qualified electrician, has faced prejudice by people who assume he isn’t fit to work, and has even been taken to court for ‘drunk driving' whilst sober.Read more

Student Life: Tallulah's Story

Tallulah is 19 and has Ataxia with Oculomotor Apraxia Type 2 (AOA2), one of the rarest forms of ataxia. It took a full decade to receive a diagnosis, and she's already fundraising for ataxia research.Read more

Crowdfunding for a chair: Will's story

Will Martin is 27 and was diagnosed with Friedreich’s ataxia whilst at secondary school. Will talks to us about how ataxia has isolated him from his peers, made him deflect from education and shares his crowdfunding goals for a new wheelchair.Read more

Coming to terms with it: Frances's story

Frances was diagnosed with spino-cerebellar ataxia type 3 (SCA3) in 2009 at 49. Her symptoms were worsening, but she didn’t want to believe anything was wrong. Frances tells us about acceptance, the changes she has had to make for her career and how she manages her symptoms.Read more