"A Specialist Ataxia Centre for children could help us find treatments that are effective now. Seb could be well; could develop; could enjoy his childhood, without the barriers that ataxia brings." Read more
Alan Maxwell tells us about his late wife, Jane, and her achievement in putting together her autobiography on living with ataxia, 'Forever Yours.' Read more
Austin Fredericks was diagnosed with SCA in 2011. He's a qualified electrician, has faced prejudice by people who assume he isn’t fit to work, and has even been taken to court for ‘drunk driving' whilst sober. Read more
Tallulah is 19 and has Ataxia with Oculomotor Apraxia Type 2 (AOA2), one of the rarest forms of ataxia. It took a full decade to receive a diagnosis, and she's already fundraising for ataxia research. Read more
They can feature anything from advice to personal stories, or thoughts and ideas about the future. If you'd like your work to be featured in this blog, then take a look at our Blogging How-to Guide and contact Steph Marley at [email protected]!
In the meantime, why not read the blogs of our Friends? Expand the block below to check them out!
Wendy's Is This the Wheel Life?
Wendy discusses her experiences in dealing with the public perceptions and societal limitations that impact her life with ataxia: "the reality of disability in modern Britain," including how to plan a wedding when you have ataxia. Great for: well-written prose and reflections on life as someone with ataxia.
Iain's Kilted Walker
Follow Iain as he walks ... pretty much everywhere around the world in his kilt! Iain has worked hard to get into every local newspaper he can along the way, raising awareness of his condition, and fundraising as he goes. Great for: fundraising inspiration and taking control.
Tallulah's Ataxic Fantastic
Tallulah's blog is a mindful and insightful exploration of being a young woman and student - and one who has ataxia. Great for: people with ataxia who want to reflect on society and community.
Amanda's Boy Number Two and Me
Amanda is the mother of Sebastian, aged six, who has episodic ataxia. Her blog discusses her personal experiences in caring for a child who has additional needs. Great for: parents of children with ataxia.
Kiara's Friedreich's Ataxia Journey
Particularly useful for our Irish readers, Kiara's blog explores support, care and living with ataxia in Ireland. As our own support is UK-based, Irish readers may want to visit the Ataxia Foundation Ireland charity, of which Kiara is a member. Great for: Living with ataxia in Ireland.
Arran's Eleanor Creative Blog
Read Arran's professional blog about running her own Creative Marketing company after receiving her SCA6 diagnosis. Great for: people with ataxia wanting to read about employment, and taking control.
Becky and Dan's Head over Wheels
Follow the journey of Becky and Dan, a new couple in which one person has ataxia, and the other is learning all about it. Dan’s partner Becky shares her journey of understanding disability from an able-bodied perspective, and how they support one another, in a wonderfully positive and insightful blog about falling in love.
"Children meeting Jo-Jo for the first time are wary, they just don’t seem to know how to play with her. Her walking frame is a quite literally a barrier to intimacy. They don’t want to hold her hand at a party."Read more
These are the children you're helping this Christmas by donating to The Big Give: one day left.Read more
"Her school thought we were making it up; they thought I'd fabricated her ataxia. They put Jade on the child protection register."Read more
"Nothing could prepare me for what I was about to hear: “he's lucky to have even lived past two years.”Read more
"There was no one to tell me how I should handle all this, no one who could point me in the right direction, no one to teach me how to manage my symptoms."Read more
"A Specialist Ataxia Centre for children could help us find treatments that are effective now. Seb could be well; could develop; could enjoy his childhood, without the barriers that ataxia brings."Read more
"I don’t even feel like I had a childhood. I mean, I still grew older but it seemed the older I got, the worse I got. Symptoms. Hospital appointments. Diagnosis. More, and worse, symptoms. Hospital appointments."Read more
Jordan Jervis has spinocerebellar ataxia type 1. But this hasn’t stopped him pursuing his dream of becoming a clothing designer.Read more
David Lowe was awarded the Jerry Farr Travel Fellowship in 2016 that allowed him and his wife, Glenys, to visit Australia.Read more
Alan Maxwell tells us about his late wife, Jane, and her achievement in putting together her autobiography on living with ataxia, 'Forever Yours.'Read more
Deanna tells us about receiving her Friedreich's ataxia diagnosis, humorously listing the pros and cons of having the condition, and how her attitude towards life has changed since.Read more
The Exeter Campaign: Meet Bex, the face of the Exeter campaign. Bex has long been involved with the Ataxia UK support network, starting her own Branch of the charity in Exeter eleven years ago.Read more
The Exeter Campaign: Phil has Episodic ataxia, which can attack at any time without warning. The unpredictability of his condition has limited what he's able to do for work as well as pleasure.Read more
The Exeter Campaign: Beka is 15 years old, and has Friedreich's ataxia. She was once an award-winning horse rider, but can no longer ride. This is her story.Read more
The Exeter Campaign: Rachel Lyons, Lord Mayor of Exeter 2013-14, was instrumental in helping Ataxia UK and the Exeter Branch to fund an awareness campaign by choosing us as her charity of the year.Read more
Nigel Davis was diagnosed with idiopathic spino-cerebellar ataxia (SCA with an unknown cause) at 17. He was able to manage his condition for some time, but after teaching for 19 years, he was forced to retire.Read more
Austin Fredericks was diagnosed with SCA in 2011. He's a qualified electrician, has faced prejudice by people who assume he isn’t fit to work, and has even been taken to court for ‘drunk driving' whilst sober.Read more
Tallulah is 19 and has Ataxia with Oculomotor Apraxia Type 2 (AOA2), one of the rarest forms of ataxia. It took a full decade to receive a diagnosis, and she's already fundraising for ataxia research.Read more
Will Martin is 27 and was diagnosed with Friedreich’s ataxia whilst at secondary school. Will talks to us about how ataxia has isolated him from his peers, made him deflect from education and shares his crowdfunding goals for a new wheelchair.Read more
Frances was diagnosed with spino-cerebellar ataxia type 3 (SCA3) in 2009 at 49. Her symptoms were worsening, but she didn’t want to believe anything was wrong. Frances tells us about acceptance, the changes she has had to make for her career and how she manages her symptoms.Read more