Disordered not drunk: Laura's story

Laura shares with us a time at university that filled her with anger and shame. Read more

Disordered not drunk: Dan’s story

Dan shares a story that left him feeling embarrassed and upset, and how the situation could have been helped. Read more

Disordered not Drunk: Tara's Story

Tara shares a difficult story of a time when someone accused her of being drunk, and another time she was unable to explain her condition by herself. Read more

Places to Change: working towards social inclusion

Kimberley has started the very important campaign 'places to change', here she shares the reasons behind it. Read more

The Road Travelled So Far

Here, Jason shares the journey of his ataxia diagnosis; the things he has lost along the way and how his mindset is now. Read more

Ataxia: my poem

Read this expressive poem about ataxia, and how it affects Linda's everyday life. Read more

Coping with my condition: Jonathan's Story

Read about Jonathan's journey of diagnosis and coping through his passion of music. Read more

Jo-Jo's Journey: moving forward

"Children meeting Jo-Jo for the first time are wary, they just don’t seem to know how to play with her. Her walking frame is a quite literally a barrier to intimacy. They don’t want to hold her hand at a party." Read more

Our children's stories

These are the children you're helping this Christmas by donating to The Big Give: one day left. Read more

Judged and jaded: our family's story

"Her school thought we were making it up; they thought I'd fabricated her ataxia. They put Jade on the child protection register." Read more

Better care for Kayden: our son's story

"Nothing could prepare me for what I was about to hear: “he's lucky to have even lived past two years.” Read more

Praying for the Future: Tallulah's story

"There was no one to tell me how I should handle all this, no one who could point me in the right direction, no one to teach me how to manage my symptoms." Read more

Support for Seb: our son's story

"A Specialist Ataxia Centre for children could help us find treatments that are effective now. Seb could be well; could develop; could enjoy his childhood, without the barriers that ataxia brings." Read more

Congratulations, me! Beka's Story

"I don’t even feel like I had a childhood. I mean, I still grew older but it seemed the older I got, the worse I got. Symptoms. Hospital appointments. Diagnosis. More, and worse, symptoms. Hospital appointments." Read more

Fashioning his dreams: Joe's Story

Jordan Jervis has spinocerebellar ataxia type 1. But this hasn’t stopped him pursuing his dream of becoming a clothing designer. Read more

The Lowes Down Under: David's story

David Lowe was awarded the Jerry Farr Travel Fellowship in 2016 that allowed him and his wife, Glenys, to visit Australia. Read more

Forever Yours: Jane's Story

Alan Maxwell tells us about his late wife, Jane, and her achievement in putting together her autobiography on living with ataxia, 'Forever Yours.' Read more

The Diagnosis

Deanna tells us about receiving her Friedreich's ataxia diagnosis, humorously listing the pros and cons of having the condition, and how her attitude towards life has changed since. Read more

Bex and the Exeter campaign

The Exeter Campaign: Meet Bex, the face of the Exeter campaign. Bex has long been involved with the Ataxia UK support network, starting her own Branch of the charity in Exeter eleven years ago. Read more

Phil and the Exeter campaign

The Exeter Campaign: Phil has episodic ataxia, which can attack at any time without warning. The unpredictability of his condition has limited what he's able to do for work as well as pleasure. Read more